Re: son just diagnosed 1/12/08

[Guest guest]

What is your sons name so we can find his picture?? Thanks!

>

> i uploaded some pics i took of his head and just wanted to see what

> the other parents on here think, the brian and spine specialist, dr

> yundt want to see how it looks next month to see what to do about it.

> thanks

>

[Guest guest]

sorry, his name is joey

From: Meg <mdrewapnp@...>Plagiocephaly Sent: Tuesday, January 13, 2009 8:19:09 PMSubject: Re: son just diagnosed 1/12/08

What is your sons name so we can find his picture?? Thanks!>> i uploaded some pics i took of his head and just wanted to see what > the other parents on here think, the brian and spine specialist, dr > yundt want to see how it looks next month to see what to do about it. > thanks>

[Guest guest]

Kara,

This is what I see in the pictures you posted. His ears seem to be at a different level (one higher than the other). There also seems to be some front bossing (front right) and the back right side of his head is flat.

I don't know how old your son is, but if he is already rolling over, repositioning him might just be useless. Getting him in a band will most likely improve his condition. Also the sooner the better. Keep in mind that their head grows the most before they turn 9 months of age. It doesn't stop growing after that, but it grows slower.

Don't wait too long and trust your own instinct.

Leila,

Maysa, 11m 4w, 10 weeks in DOC band + CST

http://mymaysa.wordpress.com/ --- On Wed, 1/14/09, kara wallace <kara4j@...> wrote:

From: kara wallace <kara4j@...>Subject: Re: Re: son just diagnosed 1/12/08Plagiocephaly Date: Wednesday, January 14, 2009, 12:44 AM

sorry, his name is joey

From: Meg <mdrewapnpgmail (DOT) com>PlagiocephalySent: Tuesday, January 13, 2009 8:19:09 PMSubject: Re: son just diagnosed 1/12/08

What is your sons name so we can find his picture?? Thanks!>> i uploaded some pics i took of his head and just wanted to see what > the other parents on here think, the brian and spine specialist, dr > yundt want to see how it looks next month to see what to do about it. > thanks>

[Guest guest]

I looked at 's pictures, he is adorable! I do see the plagio - how old is

he?? Have you

been doing repositioning to keep him off of his right side? I am a big believer

of early

treatment - so, if I were in your shoes I would call the specialist and ask for

a referral to

either Cranial Technologies (CT) or Hanger or both and go and get an evaluation

from these

people as they are the ones who do the banding and they can give you

measurements on

your sons head and recommend a band or not. If were only 3 or 4 months I

would say

waiting another month would be ok - but I am guessing he is maybe 6 months or

older?

Good luck and keep us posted!

Mom, meg to Lucy 6.5m, STARband grad 1/12/09

>

> i uploaded some pics i took of his head and just wanted to see what

> the other parents on here think, the brian and spine specialist, dr

> yundt want to see how it looks next month to see what to do about it.

> thanks

>

[Guest guest]

thank you for looking at them! joeys is 4.5 months, born 8/30. yes we are trying to keep him off his right side but i think after looking on the internet he also has toricollis, so he likes his head on that side. he has another doc appt on the 16th and joeys doc said that we will see by next month what to do about it, thanks meg!

From: Meg <mdrewapnp@...>Plagiocephaly Sent: Wednesday, January 14, 2009 6:30:11 AMSubject: Re: son just diagnosed 1/12/08

I looked at 's pictures, he is adorable! I do see the plagio - how old is he?? Have you been doing repositioning to keep him off of his right side? I am a big believer of early treatment - so, if I were in your shoes I would call the specialist and ask for a referral to either Cranial Technologies (CT) or Hanger or both and go and get an evaluation from these people as they are the ones who do the banding and they can give you measurements on your sons head and recommend a band or not. If were only 3 or 4 months I would say waiting another month would be ok - but I am guessing he is maybe 6 months or older? Good luck and keep us posted!Mom, meg to Lucy 6.5m, STARband grad 1/12/09>> i uploaded

some pics i took of his head and just wanted to see what > the other parents on here think, the brian and spine specialist, dr > yundt want to see how it looks next month to see what to do about it. > thanks>

[Guest guest]

Have him evaluated for tort. Tort and plagio go hand in hand so you'll want to resolve both. If he does have tort he'll probably be seen by a physical harpist for stretching and strengthening exercises 3 times a week for starters. There's some general ones you can do on your own, but it's best to get evaluated. The physical therapist will give you some exercises specific to your sons condition to do at home between visits too. This is good for insurance purposes as well because many want to see that you tried PT and repositioning before getting a band before they will approve payment. Every carrier is different of course so you'll have to look into your plan. Good luck!

Elaine (twin A) tort & plagio, 7 1/2 months old, 1 week helmet #2

On Wed, Jan 14, 2009 at 1:45 PM, kara wallace <kara4j@...> wrote:

thank you for looking at them! joeys is 4.5 months, born 8/30. yes we are trying to keep him off his right side but i think after looking on the internet he also has toricollis, so he likes his head on that side. he has another doc appt on the 16th and joeys doc said that we will see by next month what to do about it, thanks meg!

From: Meg <mdrewapnp@...>Plagiocephaly

Sent: Wednesday, January 14, 2009 6:30:11 AM Subject: Re: son just diagnosed 1/12/08

I looked at 's pictures, he is adorable! I do see the plagio - how old is he?? Have you been doing repositioning to keep him off of his right side? I am a big believer of early treatment - so, if I were in your shoes I would call the specialist and ask for a referral to

either Cranial Technologies (CT) or Hanger or both and go and get an evaluation from these people as they are the ones who do the banding and they can give you measurements on your sons head and recommend a band or not. If were only 3 or 4 months I would say

waiting another month would be ok - but I am guessing he is maybe 6 months or older? Good luck and keep us posted!Mom, meg to Lucy 6.5m, STARband grad 1/12/09

>> i uploaded some pics i took of his head and just wanted to see what > the other parents on here think, the brian and spine specialist, dr > yundt want to see how it looks next month to see what to do about it.

> thanks>

[Guest guest]

Hi Kara,

I did take a look at 's pics, he is a cutie. I definitely see the

plagio- it is the exact opposite of what my daughter's was like. If you would

consider banding, I would definitely do so sooner than later. I know it is a

tough decision, but once you decide to do it, the time flies by. My daughter,

now 9 months, just finished 2 weeks ago. The earlier you start, the less time

the kids usually have to wear the band because they are growing faster! I would

definitely go for a consult to see how many mm or how severe the plagio is- they

take different measurements of the head. Also if you wait too long, you may not

get as much correction.

I agonized over the decision and got upset about it, but once she got the

band it never even phased her and it just became part of her. Now she is done

and she won't even remember it!!! Good Luck!! If you have any questions feel

free to write!

Mom to McKenna- 9 months

Band grad 10/20-1/09

> From: kara wallace <kara4j@...>

> Subject: Re: Re: son just diagnosed 1/12/08

> Plagiocephaly

> Date: Wednesday, January 14, 2009, 6:45 PM

> thank you for looking at them! joeys is 4.5 months, born

> 8/30. yes we are trying to keep him off his right side  but

> i think after looking on the internet he also has

> toricollis, so he likes his head on that side. he has

> another doc appt on the 16th and joeys doc said that we will

> see by next month what to do about it, thanks meg!  

>

>

>

>

> ________________________________

> From: Meg <mdrewapnp@...>

> Plagiocephaly

> Sent: Wednesday, January 14, 2009 6:30:11 AM

> Subject: Re: son just diagnosed 1/12/08

>

>

> I looked at 's pictures, he is adorable! I do see

> the plagio - how old is he?? Have you

> been doing repositioning to keep him off of his right side?

> I am a big believer of early

> treatment - so, if I were in your shoes I would call the

> specialist and ask for a referral to

> either Cranial Technologies (CT) or Hanger or both and go

> and get an evaluation from these

> people as they are the ones who do the banding and they can

> give you measurements on

> your sons head and recommend a band or not. If were

> only 3 or 4 months I would say

> waiting another month would be ok - but I am guessing he is

> maybe 6 months or older?

> Good luck and keep us posted!

> Mom, meg to Lucy 6.5m, STARband grad 1/12/09

>

>

> >

> > i uploaded some pics i took of his head and just

> wanted to see what

> > the other parents on here think, the brian and spine

> specialist, dr

> > yundt want to see how it looks next month to see what

> to do about it.

> > thanks

> >

[Guest guest]

leila,

thank u for looking at the pics, he is 4.5 months he can roll from tummyto back and is trying to roll back to tummy, he sleeps on his tummy and so i have been moving his head to the other side when he falls asleep, we have a appt 2/16 so we will see what to do from there. his ears are at different levels, the doc said that his frontal sutures are closed but not ridged.

kara

From: L R <leilarem@...>Plagiocephaly Sent: Wednesday, January 14, 2009 6:11:45 AMSubject: Re: Re: son just diagnosed 1/12/08

Kara,

This is what I see in the pictures you posted. His ears seem to be at a different level (one higher than the other). There also seems to be some front bossing (front right) and the back right side of his head is flat.

I don't know how old your son is, but if he is already rolling over, repositioning him might just be useless. Getting him in a band will most likely improve his condition. Also the sooner the better. Keep in mind that their head grows the most before they turn 9 months of age. It doesn't stop growing after that, but it grows slower.

Don't wait too long and trust your own instinct.

Leila,

Maysa, 11m 4w, 10 weeks in DOC band + CST

http://mymaysa. wordpress. com/

From: kara wallace <kara4j (DOT) com>Subject: Re: Re: son just diagnosed 1/12/08PlagiocephalyDate: Wednesday, January 14, 2009, 12:44 AM

sorry, his name is joey

From: Meg <mdrewapnpgmail (DOT) com>PlagiocephalySent: Tuesday, January 13, 2009 8:19:09 PMSubject: Re: son just diagnosed 1/12/08

What is your sons name so we can find his picture?? Thanks!>> i uploaded some pics i took of his head and just wanted to see what > the other parents on here think, the brian and spine specialist, dr > yundt want to see how it looks next month to see what to do about it. > thanks>

[Guest guest]

hi shannon

thanks for looking at joeys pics, my husband just got fired so now i dont know what to do for my son, i want him to get treatment if he needs it, so now we r both looking for jobs and we now are just living off of my hubbys unemployment, im so stressed!

kara

From: Roper <sbmcd15@...>Plagiocephaly Sent: Wednesday, January 14, 2009 1:01:53 PMSubject: Re: Re: son just diagnosed 1/12/08

Hi Kara,I did take a look at 's pics, he is a cutie. I definitely see the plagio- it is the exact opposite of what my daughter's was like. If you would consider banding, I would definitely do so sooner than later. I know it is a tough decision, but once you decide to do it, the time flies by. My daughter, now 9 months, just finished 2 weeks ago. The earlier you start, the less time the kids usually have to wear the band because they are growing faster! I would definitely go for a consult to see how many mm or how severe the plagio is- they take different measurements of the head. Also if you wait too long, you may not get as much correction. I agonized over the decision and got upset about it, but once she got the band it never even phased her and it just became part of her. Now she is done and she won't even remember it!!! Good Luck!! If you have any questions feel free to write!Mom to McKenna- 9 monthsBand grad

10/20-1/09> From: kara wallace <kara4j (DOT) com>> Subject: Re: Re: son just diagnosed 1/12/08> Plagiocephaly> Date: Wednesday, January 14, 2009, 6:45 PM> thank you for looking at them! joeys is 4.5 months, born> 8/30. yes we are trying to keep him off his right side but> i think after looking on the internet he also has> toricollis, so he likes his head on that side. he has> another doc appt on the 16th and joeys doc said that we will>

see by next month what to do about it, thanks meg! > > > > > ____________ _________ _________ __> From: Meg <mdrewapnpgmail (DOT) com>> Plagiocephaly> Sent: Wednesday, January 14, 2009 6:30:11 AM> Subject: Re: son just diagnosed 1/12/08> > > I looked at 's pictures, he is adorable! I do see> the plagio - how old is he?? Have you > been doing repositioning to keep him off of his right side?> I am a big believer of early > treatment - so, if I were in your shoes I would call the> specialist and ask for a referral to > either Cranial Technologies

(CT) or Hanger or both and go> and get an evaluation from these > people as they are the ones who do the banding and they can> give you measurements on > your sons head and recommend a band or not. If were> only 3 or 4 months I would say > waiting another month would be ok - but I am guessing he is> maybe 6 months or older? > Good luck and keep us posted!> Mom, meg to Lucy 6.5m, STARband grad 1/12/09> > > >> > i uploaded some pics i took of his head and just> wanted to see what > > the other parents on here think, the brian and spine> specialist, dr > > yundt want to see how it looks next month to see what> to do about it. > > thanks> >

[Guest guest]

HI Kara,

I am sorry to hear about your job situation, I know the market right now

is horrible :-( But I know if you go with a consult with Cranial Technologies,

they may be able to do an evaluation and then wait until the job market gets a

little better to actually get it. My daughter started when she was over 6.5

months. So you have time to still get great results, people on this board have

banded at over a year with good results. It is good that you are aware of it

though and can try to keep him off his prominent side as much as you can. Feel

free to email me personally if you ever want to " chat " . You don't live in NJ

by any chance?

Mom to McKenna

>

> > From: kara wallace <kara4j (DOT) com>

> > Subject: Re: Re: son just diagnosed 1/12/08

> > Plagiocephaly

> > Date: Wednesday, January 14, 2009, 6:45 PM

> > thank you for looking at them! joeys is 4.5 months,

> born

> > 8/30. yes we are trying to keep him off his right

> side  but

> > i think after looking on the internet he also has

> > toricollis, so he likes his head on that side. he has

> > another doc appt on the 16th and joeys doc said that

> we will

> > see by next month what to do about it, thanks meg!  

> >

> >

> >

> >

> > ____________ _________ _________ __

> > From: Meg <mdrewapnpgmail (DOT) com>

> > Plagiocephaly

> > Sent: Wednesday, January 14, 2009 6:30:11 AM

> > Subject: Re: son just diagnosed 1/12/08

> >

> >

> > I looked at 's pictures, he is adorable! I do

> see

> > the plagio - how old is he?? Have you

> > been doing repositioning to keep him off of his right

> side?

> > I am a big believer of early

> > treatment - so, if I were in your shoes I would call

> the

> > specialist and ask for a referral to

> > either Cranial Technologies (CT) or Hanger or both and

> go

> > and get an evaluation from these

> > people as they are the ones who do the banding and

> they can

> > give you measurements on

> > your sons head and recommend a band or not. If

> were

> > only 3 or 4 months I would say

> > waiting another month would be ok - but I am guessing

> he is

> > maybe 6 months or older?

> > Good luck and keep us posted!

> > Mom, meg to Lucy 6.5m, STARband grad 1/12/09

> >

> >

> > >

> > > i uploaded some pics i took of his head and just

> > wanted to see what

> > > the other parents on here think, the brian and

> spine

> > specialist, dr

> > > yundt want to see how it looks next month to see

> what

> > to do about it.

> > > thanks

> > >

[Guest guest]

What is the avg cost of the bands? And consults?On Jan 15, 2009, at 4:46 PM, Roper wrote:HI Kara,I am sorry to hear about your job situation, I know the market right now is horrible :-( But I know if you go with a consult with Cranial Technologies, they may be able to do an evaluation and then wait until the job market gets a little better to actually get it. My daughter started when she was over 6.5 months. So you have time to still get great results, people on this board have banded at over a year with good results. It is good that you are aware of it though and can try to keep him off his prominent side as much as you can. Feel free to email me personally if you ever want to "chat". You don't live in NJ by any chance? Mom to McKenna> > > From: kara wallace <kara4j (DOT) com>> > Subject: Re: Re: son just diagnosed 1/12/08> > Plagiocephaly> > Date: Wednesday, January 14, 2009, 6:45 PM> > thank you for looking at them! joeys is 4.5 months,> born> > 8/30. yes we are trying to keep him off his right> side but> > i think after looking on the internet he also has> > toricollis, so he likes his head on that side. he has> > another doc appt on the 16th and joeys doc said that> we will> > see by next month what to do about it, thanks meg! > > > > > > > > > > ____________ _________ _________ __> > From: Meg <mdrewapnpgmail (DOT) com>> > Plagiocephaly> > Sent: Wednesday, January 14, 2009 6:30:11 AM> > Subject: Re: son just diagnosed 1/12/08> > > > > > I looked at 's pictures, he is adorable! I do> see> > the plagio - how old is he?? Have you > > been doing repositioning to keep him off of his right> side?> > I am a big believer of early > > treatment - so, if I were in your shoes I would call> the> > specialist and ask for a referral to > > either Cranial Technologies (CT) or Hanger or both and> go> > and get an evaluation from these > > people as they are the ones who do the banding and> they can> > give you measurements on > > your sons head and recommend a band or not. If > were> > only 3 or 4 months I would say > > waiting another month would be ok - but I am guessing> he is> > maybe 6 months or older? > > Good luck and keep us posted!> > Mom, meg to Lucy 6.5m, STARband grad 1/12/09> > > > > > >> > > i uploaded some pics i took of his head and just> > wanted to see what > > > the other parents on here think, the brian and> spine> > specialist, dr > > > yundt want to see how it looks next month to see> what> > to do about it. > > > thanks> > >

[Guest guest]

Usually consultations are free, but I would call just to double check the

specific location you are going to. Bands vary depending on what time you get,

I believe Cranial Technology bands are 3,300- 3,600. We went to a local

orthodist recommended by our pediatrician and we paid just under 2,000 out of

pocket and we will get it back if I keep appealing and win with the insurance

co- my fingers are crossed.

> > >

> > > > From: kara wallace <kara4j (DOT) com>

> > > > Subject: Re: Re: son just diagnosed

> 1/12/08

> > > > Plagiocephaly

> > > > Date: Wednesday, January 14, 2009, 6:45 PM

> > > > thank you for looking at them! joeys is 4.5

> months,

> > > born

> > > > 8/30. yes we are trying to keep him off his

> right

> > > side but

> > > > i think after looking on the internet he

> also has

> > > > toricollis, so he likes his head on that

> side. he has

> > > > another doc appt on the 16th and joeys doc

> said that

> > > we will

> > > > see by next month what to do about it,

> thanks meg!

> > > >

> > > >

> > > >

> > > >

> > > > ____________ _________ _________ __

> > > > From: Meg <mdrewapnpgmail (DOT)

> com>

> > > > Plagiocephaly

> > > > Sent: Wednesday, January 14, 2009 6:30:11 AM

> > > > Subject: Re: son just diagnosed

> 1/12/08

> > > >

> > > >

> > > > I looked at 's pictures, he is

> adorable! I do

> > > see

> > > > the plagio - how old is he?? Have you

> > > > been doing repositioning to keep him off of

> his right

> > > side?

> > > > I am a big believer of early

> > > > treatment - so, if I were in your shoes I

> would call

> > > the

> > > > specialist and ask for a referral to

> > > > either Cranial Technologies (CT) or Hanger

> or both and

> > > go

> > > > and get an evaluation from these

> > > > people as they are the ones who do the

> banding and

> > > they can

> > > > give you measurements on

> > > > your sons head and recommend a band or not.

> If

> > > were

> > > > only 3 or 4 months I would say

> > > > waiting another month would be ok - but I am

> guessing

> > > he is

> > > > maybe 6 months or older?

> > > > Good luck and keep us posted!

> > > > Mom, meg to Lucy 6.5m, STARband grad 1/12/09

> > > >

> > > >

> > > > >

> > > > > i uploaded some pics i took of his head

> and just

> > > > wanted to see what

> > > > > the other parents on here think, the

> brian and

> > > spine

> > > > specialist, dr

> > > > > yundt want to see how it looks next

> month to see

> > > what

> > > > to do about it.

> > > > > thanks

> > > > >

> >

> >

> >

[Guest guest]

hi shonnon,

no i live in madras oregon, hanger is just an hour away from me

From: Roper <sbmcd15@...>Plagiocephaly Sent: Thursday, January 15, 2009 1:46:31 PMSubject: Re: Re: son just diagnosed 1/12/08

HI Kara,I am sorry to hear about your job situation, I know the market right now is horrible :-( But I know if you go with a consult with Cranial Technologies, they may be able to do an evaluation and then wait until the job market gets a little better to actually get it. My daughter started when she was over 6.5 months. So you have time to still get great results, people on this board have banded at over a year with good results. It is good that you are aware of it though and can try to keep him off his prominent side as much as you can. Feel free to email me personally if you ever want to "chat". You don't live in NJ by any chance? Mom to McKenna> > > From: kara wallace <kara4j (DOT) com>> > Subject: Re: Re: son just diagnosed 1/12/08> > Plagiocephaly> > Date: Wednesday, January 14, 2009, 6:45 PM> > thank you for looking at them! joeys is 4.5 months,> born> > 8/30. yes we are trying to keep him off his right> side but>

> i think after looking on the internet he also has> > toricollis, so he likes his head on that side. he has> > another doc appt on the 16th and joeys doc said that> we will> > see by next month what to do about it, thanks meg! > > > > > > > > > > ____________ _________ _________ __> > From: Meg <mdrewapnpgmail (DOT) com>> > Plagiocephaly> > Sent: Wednesday, January 14, 2009 6:30:11 AM> > Subject: Re: son just diagnosed 1/12/08> > > > > > I looked at 's pictures, he is adorable! I do> see> > the plagio - how old is he?? Have you > > been doing repositioning to keep him off of his right> side?> > I am a big believer of early > > treatment - so, if I were in your shoes I would call>

the> > specialist and ask for a referral to > > either Cranial Technologies (CT) or Hanger or both and> go> > and get an evaluation from these > > people as they are the ones who do the banding and> they can> > give you measurements on > > your sons head and recommend a band or not. If > were> > only 3 or 4 months I would say > > waiting another month would be ok - but I am guessing> he is> > maybe 6 months or older? > > Good luck and keep us posted!> > Mom, meg to Lucy 6.5m, STARband grad 1/12/09> > > > > > >> > > i uploaded some pics i took of his head and just> > wanted to see what > > > the other parents on here think, the brian and>

spine> > specialist, dr > > > yundt want to see how it looks next month to see> what> > to do about it. > > > thanks> > >

[Guest guest]

hi sandra,

we havent gone for a consult, we r going back to the speailest on the 16th of next month and we will see from there what to do about his plagio, dose anyone live in oregon?

kara

From: Parisi <mydoula@...>Plagiocephaly Sent: Thursday, January 15, 2009 3:46:28 PMSubject: Re: Re: son just diagnosed 1/12/08

What is the avg cost of the bands? And consults?

On Jan 15, 2009, at 4:46 PM, Roper wrote:

HI Kara,I am sorry to hear about your job situation, I know the market right now is horrible :-( But I know if you go with a consult with Cranial Technologies, they may be able to do an evaluation and then wait until the job market gets a little better to actually get it. My daughter started when she was over 6.5 months. So you have time to still get great results, people on this board have banded at over a year with good results. It is good that you are aware of it though and can try to keep him off his prominent side as much as you can. Feel free to email me personally if you ever want to "chat". You don't live in NJ by any chance? Mom to McKenna> > > From: kara wallace <kara4j (DOT) com>> > Subject: Re: Re: son just diagnosed 1/12/08> > Plagiocephaly> > Date: Wednesday, January 14, 2009, 6:45 PM> > thank you for looking at them! joeys is 4.5 months,> born> > 8/30. yes we are trying to keep him off his right> side but> > i think after looking on the internet he also has> > toricollis, so he likes his head on that side. he has> > another doc appt on the 16th and joeys doc said that> we will> > see by next month what to do about it, thanks meg! > > > > > > > > > > ____________ _________ _________ __> > From: Meg <mdrewapnpgmail (DOT) com>> > Plagiocephaly> > Sent: Wednesday, January 14, 2009 6:30:11 AM> > Subject: Re: son just diagnosed 1/12/08> > > > > > I looked at 's pictures, he is adorable! I do> see> > the plagio - how old is he?? Have you > > been doing repositioning to keep him off of his right> side?> > I am a big believer of early > > treatment - so, if I were in your shoes I would call> the> > specialist and ask for a referral to > > either Cranial Technologies (CT) or Hanger or both and> go> > and get an evaluation from these > > people as they are the ones who do the banding and> they can> > give you measurements on > > your sons head and recommend a band or not. If > were> > only 3 or 4 months I would say > > waiting another month would be ok - but I am guessing> he is> > maybe 6 months or older? > > Good luck and keep us posted!> > Mom, meg to Lucy

6.5m, STARband grad 1/12/09> > > > > > >> > > i uploaded some pics i took of his head and just> > wanted to see what > > > the other parents on here think, the brian and> spine> > specialist, dr > > > yundt want to see how it looks next month to see> what> > to do about it. > > > thanks> > >