Guest guest Posted May 10, 2003 Report Share Posted May 10, 2003 Hi Jacquie, If you don't mind discussing could you expand on " fibro " ? Can you tell me the full name of the condition? I think it is the one my sister has, and when she has a flare up she is just absolutely stuffed. You mentioned vioxx, whats that? Thanks, Jen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2003 Report Share Posted May 10, 2003 I an not Jacquie....hehehe. But fibro is fibromyalgia. It is similar to arthritis in that it causes general pain. It is considered muscular though rather than joint related. It actually means muscle pain (fibro-pain, myalgia-muscle). People who have it, including myself, experience good days and bad. I am currently in a bad period myself (ie a fibro flare). It gets very hard to even move some days. It also causes sleep issues and other problems. Hope that helps. Tamara mom to Ebony, 5 years old, asd, adhd, bipolar and , 2, polish (lol) wife to Terry > >Reply-To: parenting_autism >To: <parenting_autism > >Subject: Jacquie-fibro >Date: Sat, 10 May 2003 20:24:07 +1000 > >Hi Jacquie, > >If you don't mind discussing could you expand on " fibro " ? Can you tell me >the full name of the condition? I think it is the one my sister has, and >when she has a flare up she is just absolutely stuffed. > >You mentioned vioxx, whats that? > >Thanks, > >Jen > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2003 Report Share Posted May 10, 2003 Tamara, I was just reading more about this today. If my symptoms don't go away on the new antidepressant I'm going to mention this to my doctor and have him check the symptoms. I have all the pressure points. Weakness, tiredness, cramping. It would also explain why my bloodwork was good. Jacquie-fibro >Date: Sat, 10 May 2003 20:24:07 +1000 > >Hi Jacquie, > >If you don't mind discussing could you expand on " fibro " ? Can you tell me >the full name of the condition? I think it is the one my sister has, and >when she has a flare up she is just absolutely stuffed. > >You mentioned vioxx, whats that? > >Thanks, > >Jen > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2003 Report Share Posted May 10, 2003 I have been looking more into Fibro therapies. I still haven't re- tried the guaifenesin therapy, for the life of me I don't know why. I have it in my purse. It really seemed to work, just made me so incredibly tired but I can never seem to remember to take it at night. I was also reading about thyroid levels. That the thyroid level they check (TSH) isn't the type they should be checking....that it often comes back normal. Of course, the website I saw this on was selling a 'herbal' thyroid stimulator drug (kindof like an oral diabetic drug). Therapies from magnets to bracelets to herbs to acupuncture...I'm still a skeptic about everything. I've also heard HGH can help. AUGH! My ultram started giving me massive headaches. ODDLY with all my pain, headaches has never been a problem for me. So I am back on Lortab. I have noticed a pattern with my pain. Always when I'm tired. If I go take a nap, I wake up feeling pretty good for about four hours. Unfortunately, I can't always sleep when I feel bad. And I do feel bad when I sit for long periods of time, and feel better if I get up and do some light chore around the house. It's so funny, if I do too much it kills me, and if I don't do enough it kills me too. > Tamara, > I was just reading more about this today. If my symptoms don't go away on the new antidepressant I'm going to mention this to my doctor and have him check the symptoms. I have all the pressure points. Weakness, tiredness, cramping. > It would also explain why my bloodwork was good. > > Jacquie-fibro > >Date: Sat, 10 May 2003 20:24:07 +1000 > > > >Hi Jacquie, > > > >If you don't mind discussing could you expand on " fibro " ? Can you tell me > >the full name of the condition? I think it is the one my sister has, and > >when she has a flare up she is just absolutely stuffed. > > > >You mentioned vioxx, whats that? > > > >Thanks, > > > >Jen > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2003 Report Share Posted May 10, 2003 > If you don't mind discussing could you expand on " fibro " ? Can you tell me the full name of the condition? I think it is the one my sister has, and when she has a flare up she is just absolutely stuffed. > Sure. Fibromyalgia. I wish I could sum it up in a sentence, but it just seems to be a whole basket of symptoms with no known cause or cure. It's in the arthritis family, but also in the autoimmune family too. <sigh> > You mentioned vioxx, whats that? A prescription anti-inflammatory that works a helluva lot better than I thought it did! LOL. I have to take it every day. Jacquie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2003 Report Share Posted May 10, 2003 > > tried the guaifenesin therapy, > > What is it? I've never heard of it. Guaifenesin is an expectorant actually. You use it when you have a chest cold and it breaks up the phlegm in your lungs. It's a common ingredient in cold meds, but you can get it by script in the pure form. Nobody seems to know exactly why it works, but seems to help fibromites. Maybe better oxygenation to the muscles? > Yesterday I was feeling better, so I went to Zellers AND to the big grocery > store. Halfway through the groceries, my feet just stopped. I was SO > exhausted it was hard to move another step. Geriatric men were passing me > by like the INDY 500. I came home and put my feet up on a pillow for two > hours and that helped, but man it was awful. > > I just get so angry at being so limited in what I can do. :-( I get really mad about it too, frustrated. Then I feel sorry for myself. And when I feel really good, I always overdo it. I know, I hate it when old people seem to have less pain than I do. I've always thought there has GOT to be something more wrong with me, but I know it's the Fibro. Lately, I've started like, twitching. I've already been ruled out for MS, but still...it's always there in the back of my head...is it something more. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2003 Report Share Posted May 10, 2003 > I have been looking more into Fibro therapies. I still haven't re- > tried the guaifenesin therapy, for the life of me I don't know why. > I have it in my purse. It really seemed to work, just made me so > incredibly tired but I can never seem to remember to take it at night. What is it? I've never heard of it. > > I was also reading about thyroid levels. That the thyroid level they > check (TSH) isn't the type they should be checking....that it often > comes back normal. Yup, mine is always perfect. Of course, the website I saw this on was selling > a 'herbal' thyroid stimulator drug (kindof like an oral diabetic > drug). Therapies from magnets to bracelets to herbs to > acupuncture...I'm still a skeptic about everything. I just bought a copper bracelet the other morning in desperation. My hand is not so bad, but I don't know if that's because of thebracelet, or because I've finally gotten back on track with sleep. > I have noticed a pattern with my pain. Always when I'm tired. If I > go take a nap, I wake up feeling pretty good for about four hours. Same here. If I don't get enough sleep, I am in so much pain -- which is hard for me, because I've never been much of a sleeper; 6 hours has always been my average. I really need to force myself to go to bed earlier, and I don't always succeed, even though the payback the next day is just awful. > Unfortunately, I can't always sleep when I feel bad. And I do feel > bad when I sit for long periods of time, and feel better if I get up > and do some light chore around the house. It's so funny, if I do > too much it kills me, and if I don't do enough it kills me too. YES! Yesterday I was feeling better, so I went to Zellers AND to the big grocery store. Halfway through the groceries, my feet just stopped. I was SO exhausted it was hard to move another step. Geriatric men were passing me by like the INDY 500. I came home and put my feet up on a pillow for two hours and that helped, but man it was awful. I just get so angry at being so limited in what I can do. :-( Jacquie Quote Link to comment Share on other sites More sharing options...
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