A new Scaphocephaly member!

[Guest guest]

Hi all, I've been peeking in for a couple of weeks and finally

stepped up to join you. I have a almost 5 month - adjusted to 4

month old daughter with scaphocephaly, she was breech and a premie.

We had the 3d cat scan to rule out the sutchers being fused all good

there. She was casted on Monday at CT - Paramus, NJ. She -

did fantastic. We go back on the 15th for the band.

Needless to say, I am very excited something is finally happening

to " resolve " this. We haven't had the best experience getting here,

alot of ring around the rosie with CHOP, mostly with them not hearing

us.

What I'm confused about, first not knowing how to read the board,

cronilogically and the sort, second, I had opened a message and it

ended up being about the scapho shape. I knew it was uncommon, what

I didn't realize is there is a " special " band. I can't find

the " Regan " picture in the July 2008 calendar on CT.

So, now that I've rambled on, I'll close for now. I am so glad I've

found this group, I'm positive I'll be here often;)

getting DOC band 5/15/08 - a very special date, it was my

Grandmothers birthday and it will be my 10th year anniversary for

quitting smoking, things happen for a reason!!!!!!!!!!!

[Guest guest]

Welcome to the group . Post some pictures of your daughter when

you get her band, and keep us posted on her progress.

-christine

sydney 2 yrs starband grad

>

> Hi all, I've been peeking in for a couple of weeks and finally

> stepped up to join you. I have a almost 5 month - adjusted to 4

> month old daughter with scaphocephaly, she was breech and a premie.

> We had the 3d cat scan to rule out the sutchers being fused all good

> there. She was casted on Monday at CT - Paramus, NJ. She -

> did fantastic. We go back on the 15th for the band.

>

> Needless to say, I am very excited something is finally happening

> to " resolve " this. We haven't had the best experience getting here,

> alot of ring around the rosie with CHOP, mostly with them not hearing

> us.

>

> What I'm confused about, first not knowing how to read the board,

> cronilogically and the sort, second, I had opened a message and it

> ended up being about the scapho shape. I knew it was uncommon, what

> I didn't realize is there is a " special " band. I can't find

> the " Regan " picture in the July 2008 calendar on CT.

>

> So, now that I've rambled on, I'll close for now. I am so glad I've

> found this group, I'm positive I'll be here often;)

>

>

> getting DOC band 5/15/08 - a very special date, it was my

> Grandmothers birthday and it will be my 10th year anniversary for

> quitting smoking, things happen for a reason!!!!!!!!!!!

>