An Into - Son, 7 months, Starband, Canada

[Guest guest]

Hi, I am from Calgary and I have a 7 month old who is finally going to get

fitted for a

starband.

I noticed his head around 6 weeks looking wonky but didn't know what it was. At

the 2

month vaccination appointment, the nurse showed me a pic of plagiocephaly. I

instantly

noticed it on my son's head. She said she didn't think it was that bad.

I brought it up with the Dr. at the 3 month appointment and she said it was fine

and

would go away on it's own. I started to do online research and joined this group

and

learned a LOT. Bless you all! I knew to fight my way into treatment and

information. I

learned about repositioning on my own. Felt guilty for putting him in a car seat

and

swing... gave all of those horrible items away such as bouncy chairs etc...

I went in to the Dr. again at 4 months and asked to be referred to a specialist.

At 5.5

months, I was in at the Head Shape Clinic at Alberta Children's Hospital. They

don't

measure with mm's like many of you have written about. They have a score out of

15. The

higher the more severe. The Neurologist said my son was about 6/15 and just

below the

threshold for a helmet.

I just went back today for a follow up appointment and she said he is now down

to a 4/15.

I personally still see enough flatness on the right side quite obviously and

bossing on the

front and misaligned ears. The neurologist agreed. I went straight to the point

and asked

if instead of coming back in another month, could my son just get the Starband

and get

treated right away. She said it was totally up to me and supported my decision.

In two weeks we are getting a scan and then the band will be ordered and away we

go.

I want to tell you that I would never have come this far without reading your

posts. I have

never posted before but I have followed this community for awhile and read your

resources. It is so unfortunate that so many children are needing treatment for

this mostly

preventable condition.

It's hard because it is certainly not life threatening or as severe as many

other child

ailments, but we all still need support and information out there, especially

since it can be

treated!