Evan's PC appointment today....doing a happy dance here!!

[Guest guest]

Hi everyone. Just wanted to let you all know that our prayers were answered and

wanted to thank you all for your prayers and good thoughts!!

We went to see Evan's cardiologist this morning and.....ready........NO

CHANGES!!!! He's doing just fine. His EKG has not changed since last year when

we were there. He will need to have an echo done because he didn't have one

done last year and they really need an update to check and see how the PA is and

make sure the leak hasn't gotten any worse. But, since Evan will be in the

hospital on May 28th for his MRI anyway, and will be sedated, they are going to

do an echo immediately after the MRI. I'm sooooooooo happy that they are going

to do that as the hospital we are going to for the MRI is not the one we usually

go to for " heart stuff " . But CHOA's Sibley Heart Center does have echo techs at

the other hospital too.

Also, I asked about Evan needing another OH surgery to have the pulmonary valve

replaced and she said that they've had CHD kids make it quite a ways into their

teens and even early 20s before needing the surgery. Not a guarantee, of

course, but that was very encouraging to me!!

Anyway, sorry to make that so long but I'm just real excited that our visit went

so well. Now I'm just antsy about tomorrow's EEG. I still don't understand how

the Neurologist expects an 4.5 year old autistic child with major sensory

integration issues to leave the EEG leads on his head for 24 hours. Oh

well........we shall see!

Love, prayers and heart hugs,

Debbie (GA), Mom to Evan (4.5 y/o with ToF, RBBB, Autism Spectrum Disorder,

Asthma); (now a whole year old and HH and NT?); and my 3 angel babies

whom I will finally see when God says it's time!

9:1-3

[Guest guest]

That is awesome.

---

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[Guest guest]

That is great news!! :-)

Evan's PC appointment today....doing a happy dance

here!!

Hi everyone. Just wanted to let you all know that our prayers were answered

and wanted to thank you all for your prayers and good thoughts!!

We went to see Evan's cardiologist this morning and.....ready........NO

CHANGES!!!! He's doing just fine. His EKG has not changed since last year when

we were there. He will need to have an echo done because he didn't have one

done last year and they really need an update to check and see how the PA is and

make sure the leak hasn't gotten any worse. But, since Evan will be in the

hospital on May 28th for his MRI anyway, and will be sedated, they are going to

do an echo immediately after the MRI. I'm sooooooooo happy that they are going

to do that as the hospital we are going to for the MRI is not the one we usually

go to for " heart stuff " . But CHOA's Sibley Heart Center does have echo techs at

the other hospital too.

Also, I asked about Evan needing another OH surgery to have the pulmonary

valve replaced and she said that they've had CHD kids make it quite a ways into

their teens and even early 20s before needing the surgery. Not a guarantee, of

course, but that was very encouraging to me!!

Anyway, sorry to make that so long but I'm just real excited that our visit

went so well. Now I'm just antsy about tomorrow's EEG. I still don't understand

how the Neurologist expects an 4.5 year old autistic child with major sensory

integration issues to leave the EEG leads on his head for 24 hours. Oh

well........we shall see!

Love, prayers and heart hugs,

Debbie (GA), Mom to Evan (4.5 y/o with ToF, RBBB, Autism Spectrum Disorder,

Asthma); (now a whole year old and HH and NT?); and my 3 angel babies

whom I will finally see when God says it's time!

9:1-3

[Guest guest]

Congrats on the good news! Everyone needs that every once in a while.

As to the EEG, when Micki last had an EEG they had a cap type thing

that strapped underneath the chin. The wires attached to the cap.

Grandpa laid down with her to keep her calm. The hardest part was

keeping her awake most of the night. Luckily they were able to get

what they needed.

Wilhelm

MickisDaddy

Micki 8 Dx Autistic, Mental Retardation, and a beautiful angel

[Guest guest]

how the Neurologist expects an 4.5 year old autistic child with

major sensory integration issues to leave the EEG leads on his head

for 24 hours. Oh well........we shall see!

>

SOOOO Happy for you Debbie!!!

YAY!!!

Good luck tomorrow...

We'll be at the Autism Clinic

tomorrow as well...jenna has to go

for a year check up..should be fun..

(not, have to drive with my " ex " again,

ugh....2 1/2 hours one way..)

So i'll be thinking of you having some

fun,too!!! lol

nancy

[Guest guest]

Great news, Debbie! I'm doing a happy dance for Evan and you!

Maggie

________________________________________________________________

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[Guest guest]

Wonderful news Debbie!!! Very happy to hear it!

Sue

[Guest guest]

I'm dancing with ya, hon.

Tuna

>>>>>>>>>>>>>>>>

We went to see Evan's cardiologist this morning

and.....ready........NO CHANGES!!!! He's doing just

fine. His EKG has not changed since last year when we

were there.

>>>>>>>>>>>>>>>>>>>

=====

mom to:

, 8, ASD

, 4, NT

Normal is just a setting on the washing machine.

- Whoopi Goldberg

______________________________________________________________________

Post your free ad now! http://personals.yahoo.ca

[Guest guest]

i'm doing the happy dance too. That's great news

Cecilia from Perú, mom to Dessirée (05/07/99)

Lovely husband

_____

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-----Mensaje original-----

De: Debbie

Enviado el: Martes, 13 de Mayo de 2003 03:32 p.m.

Para: AutismSpectrum ; parent2parent ;

CHDFamilies ; CHDParents ;

DSIKids ; parenting_autism ;

HeartsOfHope2000

Asunto: Evan's PC appointment today....doing a happy

dance here!!

Hi everyone. Just wanted to let you all know that our prayers were

answered and wanted to thank you all for your prayers and good

thoughts!!

We went to see Evan's cardiologist this morning and.....ready........NO

CHANGES!!!! He's doing just fine. His EKG has not changed since last

year when we were there. He will need to have an echo done because he

didn't have one done last year and they really need an update to check

and see how the PA is and make sure the leak hasn't gotten any worse.

But, since Evan will be in the hospital on May 28th for his MRI anyway,

and will be sedated, they are going to do an echo immediately after the

MRI. I'm sooooooooo happy that they are going to do that as the

hospital we are going to for the MRI is not the one we usually go to for

" heart stuff " . But CHOA's Sibley Heart Center does have echo techs at

the other hospital too.

Also, I asked about Evan needing another OH surgery to have the

pulmonary valve replaced and she said that they've had CHD kids make it

quite a ways into their teens and even early 20s before needing the

surgery. Not a guarantee, of course, but that was very encouraging to

me!!

Anyway, sorry to make that so long but I'm just real excited that our

visit went so well. Now I'm just antsy about tomorrow's EEG. I still

don't understand how the Neurologist expects an 4.5 year old autistic

child with major sensory integration issues to leave the EEG leads on

his head for 24 hours. Oh well........we shall see!

Love, prayers and heart hugs,

Debbie (GA), Mom to Evan (4.5 y/o with ToF, RBBB, Autism Spectrum

Disorder, Asthma); (now a whole year old and HH and NT?); and my

3 angel babies whom I will finally see when God says it's time!

9:1-3