Evan's PC appointment today....doing a happy dance here!!

May 13, 2003

This is great news.

Jacquie H

Evan's PC appointment today....doing a happy dance

here!!

Hi everyone. Just wanted to let you all know that our prayers were answered

and wanted to thank you all for your prayers and good thoughts!!

We went to see Evan's cardiologist this morning and.....ready........NO

CHANGES!!!! He's doing just fine. His EKG has not changed since last year when

we were there. He will need to have an echo done because he didn't have one

done last year and they really need an update to check and see how the PA is and

make sure the leak hasn't gotten any worse. But, since Evan will be in the

hospital on May 28th for his MRI anyway, and will be sedated, they are going to

do an echo immediately after the MRI. I'm sooooooooo happy that they are going

to do that as the hospital we are going to for the MRI is not the one we usually

go to for " heart stuff " . But CHOA's Sibley Heart Center does have echo techs at

the other hospital too.

Also, I asked about Evan needing another OH surgery to have the pulmonary

valve replaced and she said that they've had CHD kids make it quite a ways into

their teens and even early 20s before needing the surgery. Not a guarantee, of

course, but that was very encouraging to me!!

Anyway, sorry to make that so long but I'm just real excited that our visit

went so well. Now I'm just antsy about tomorrow's EEG. I still don't understand

how the Neurologist expects an 4.5 year old autistic child with major sensory

integration issues to leave the EEG leads on his head for 24 hours. Oh

well........we shall see!

Love, prayers and heart hugs,

Debbie (GA), Mom to Evan (4.5 y/o with ToF, RBBB, Autism Spectrum Disorder,

Asthma); (now a whole year old and HH and NT?); and my 3 angel babies

whom I will finally see when God says it's time!

9:1-3

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