Guest guest Posted June 1, 2003 Report Share Posted June 1, 2003 Hi everyone Does anoyone have articles or info on smoking and CF. I want to give it to my family so that they understand the effects. Having articles to print out would be the best. Thanks mum to Liam wcf Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2003 Report Share Posted June 1, 2003 WHAT IS THERE TO SHOW THE FAMILY, YOU DONT SMOKE WHEN YOU HAVE CF IT IS A FATAL ENOUGH LUNG DISEASE WITHOUT ADDING SMOKING TO IT. COME ON PEOPLE LETS USE SOME COMMON SENSE. SORRY I JUST HAD TO VENT. > >Reply-To: cfparents >To: <cfparents >,<crataegus > >Subject: CF and smoking >Date: Mon, 2 Jun 2003 08:51:18 +1200 > >Hi everyone >Does anoyone have articles or info on smoking and CF. I want to give it to >my family so that they understand the effects. Having articles to print >out would be the best. > > >Thanks > > > mum to Liam wcf > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2003 Report Share Posted June 1, 2003 sometimes people are ignorant and dont want to admit it is a bad thing to do around CF! It is a tricky situation because they are family AND THIS SORT OF THING CAN DESTROY FAMILES!!! Moniquw CF and smoking > >Date: Mon, 2 Jun 2003 08:51:18 +1200 > > > >Hi everyone > >Does anoyone have articles or info on smoking and CF. I want to give it to > >my family so that they understand the effects. Having articles to print > >out would be the best. > > > > > >Thanks > > > > > > mum to Liam wcf > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2003 Report Share Posted June 2, 2003 Some people have trouble understanding that their second hand smoke really effects people. Also, as a former smoker, I know that most smokers don't realize that even if they smoke outside that the carcinogens get into their clothes and are then brought into the house. The smoky smell on clothes are really just the carcinogens being left on the clothes. I know that many people think that if they are not actively smoking around the child it is good enough. They think if they air out the house and they can't smell the smoke, there is no stuff left over in the air. But it is not true, All that junk just embedded itself in the furniture and curtains and whatnot. my 2 cents CF and smoking >Date: Mon, 2 Jun 2003 08:51:18 +1200 > >Hi everyone >Does anoyone have articles or info on smoking and CF. I want to give it to >my family so that they understand the effects. Having articles to print >out would be the best. > > >Thanks > > > mum to Liam wcf > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2003 Report Share Posted June 2, 2003 I really understand your situation. I have a sister that has smoked for a long time and I had to tell her when Zach was born that he could not be around any smoke. I told her, " Doctor's orders - nobody smokes around Zach. " She was very understanding. She also knows that we make sure we always sit in non-smoking sections at restaurants and stay in non-smoking rooms at hotels, even if Zach is not with us. We do not even want the smoke on our clothes. It can be difficult for people to understand the dangers, but either they are willing to listen or they are not. It is your responsibility as the parent to protect your child even if it is from a family member who is smoking. Know that you are doing the right thing even if family members become angry with you. Best of luck handling this difficult situation. Sara - mommy to Zach 15 months wcf > Hi everyone > Does anoyone have articles or info on smoking and CF. I want to give it to my family so that they understand the effects. Having articles to print out would be the best. > > > Thanks > > > mum to Liam wcf > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2003 Report Share Posted June 2, 2003 If at all possible try to find a restaurant that is 0% SMOKING Not just smoking and non smoking sections. this is only a disguise. It is still in the air even if you do not smell it. i know it is had finding 100% smoke free places but IT IS WORTH THE SEARCH!! Re: CF and smoking I really understand your situation. I have a sister that has smoked for a long time and I had to tell her when Zach was born that he could not be around any smoke. I told her, " Doctor's orders - nobody smokes around Zach. " She was very understanding. She also knows that we make sure we always sit in non-smoking sections at restaurants and stay in non-smoking rooms at hotels, even if Zach is not with us. We do not even want the smoke on our clothes. It can be difficult for people to understand the dangers, but either they are willing to listen or they are not. It is your responsibility as the parent to protect your child even if it is from a family member who is smoking. Know that you are doing the right thing even if family members become angry with you. Best of luck handling this difficult situation. Sara - mommy to Zach 15 months wcf > Hi everyone > Does anoyone have articles or info on smoking and CF. I want to give it to my family so that they understand the effects. Having articles to print out would be the best. > > > Thanks > > > mum to Liam wcf > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2003 Report Share Posted June 3, 2003 I am so grateful that here in CA they have totally banned smoking in all restaurants and most public places. Non smoking sections are a joke, the smoke from the smoking section just drifts over to the non smoking section anyway. I hope this ban on smoking in public goes nationwide. You can't even smoke legally in bars here anymore, although I know of some small places that ignore this law. I really don't care, I wouldn't take my kid to a bar anyway. love, M Re: CF and smoking > Ever notice that whenever you go to restaurants, in order to get to the bathroom, you have to walk through the smoking section and your CF child is always the one who has to go? that's what happens to us. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2003 Report Share Posted June 3, 2003 In a message dated 6/3/2003 4:10:52 AM Central Daylight Time, brmorey@... writes: > I am so grateful that here in CA they have totally banned smoking in all > restaurants and most public places. Non smoking sections are a joke, the > smoke from the smoking section just drifts over to the non smoking section > anyway. I hope this ban on smoking in public goes nationwide. You can't > even smoke legally in bars here anymore, although I know of some small > places that ignore this law. I really don't care, I wouldn't take my kid to > a bar anyway. > > love, > M > They had those law her but are state over ruled that and they could go back to what ever they wanted too. I loved it when I didn't have to go into a restaurant and ask to be sited in a nonsmoking area and then they would say well it will be longer and I give them the look of death and say I don't care we will wait. LOL! This just happen this month and they have been smoke free in all the restaurants since the first of the year. It really sucks!! But it was nice will it lasted. Deb A Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2003 Report Share Posted June 3, 2003 Where did you search? Try searching pubmed http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?db=PubMed Type cystic fibrosis smoke into the search field. I've copied a couple of the abstracts below. ~ > To elaborate, I have searched and searched and there has been no real study on CF and smoking. > Tucker > Mom of Milan 4 1/2 wcf : Thorax 1999 Apr;54(4):357-66 Related Articles, Links Health effects of passive smoking-10: Summary of effects of parental smoking on the respiratory health of children and implications for research. Cook DG, Strachan DP. Department of Public Health Sciences, St 's Hospital Medical School, Cranmer Terrace, London SW17 0RE, UK. BACKGROUND: Two recent reviews have assessed the effect of parental smoking on respiratory disease in children. METHODS: The results of the systematic quantitative review published as a series in Thorax are summarised and brought up to date by considering papers appearing on Embase or Medline up to June 1998. The findings are compared with those of the review published recently by the Californian Environmental Protection Agency (EPA). Areas requiring further research are identified. RESULTS: Overall there is a very consistent picture with odds ratios for respiratory illnesses and symptoms and middle ear disease of between 1.2 and 1.6 for either parent smoking, the odds usually being higher in pre-school than in school aged children. For sudden infant death syndrome the odds ratio for maternal smoking is about 2. Significant effects from paternal smoking suggest a role for postnatal exposure to environmental tobacco smoke. Recent publications do not lead us to alter the conclusions of our earlier reviews. While essentially narrative rather than systematic and quantitative, the findings of the Californian EPA review are broadly similar. In addition they have reviewed studies of the effects of environmental tobacco smoke on children with cystic fibrosis and conclude from the limited evidence that there is a strong case for a relationship between parental smoking and admissions to hospital. They also review data from adults of the effects of acute exposure to environmental tobacco smoke under laboratory conditions which suggest acute effects on spirometric parameters rather than on bronchial hyperresponsiveness. It seems likely that such effects are also present in children. CONCLUSIONS: Substantial benefits to children would arise if parents stopped smoking after birth, even if the mother smoked during pregnancy. Policies need to be developed which reduce smoking amongst parents and protect infants and young children from exposure to environmental tobacco smoke. The weight of evidence is such that new prevalence studies are no longer justified. What are needed are studies which allow comparison of the effects of critical periods of exposure to cigarette smoke, particularly in utero, early infancy, and later childhood. Where longitudinal studies are carried out they should be analysed to look at the way in which changes in exposure are related to changes in outcome. Better still would be studies demonstrating reversibility of adverse effects, especially in asthmatic subjects or children with cystic fibrosis. Publication Types: Review Review, Tutorial PMID: 10092699 [PubMed - indexed for MEDLINE] ********* 1: Am J Respir Crit Care Med 2002 Oct 15;166(8):1099-104 Related Articles, Links Pulmonary function tests in preschool children with cystic fibrosis. Beydon N, Amsallem F, Bellet M, Boule M, Chaussain M, Denjean A, Matran R, Pin I, Alberti C, Gaultier C. Department of Physiology of the Debre Teaching Hospital, Paris, France. Pulmonary function tests have rarely been assessed in preschool children with cystic fibrosis (CF). The objective of this multicenter study was to compare pulmonary function in 39 preschool children with CF (height, 90-130 cm; 16 homozygous Delta F508) and in 79 healthy control children. Functional residual capacity (helium dilution technique) and expiratory interrupter resistance (Rint(exp)) (interrupter technique) were measured. As compared with control children, children with CF had significantly higher Rint(exp), expressed as absolute values and as Z-scores (1.05 +/- 0.36 versus 0.80 +/- 0.20 kPa.L(-1). second, p < 0.0001; and 1.31 +/- 1.72 versus 0.19 +/- 0.97, p < 0.0001), and significantly lower specific expiratory interrupter conductance (1.29 +/- 0.34 versus 1.63 +/- 0.43 kPa(-1). second, p < 0.0001). The effect of the bronchodilator salbutamol on Rint(exp) was not significantly different between children with CF and control children. Rint(exp) Z-scores were significantly higher in children with CF who were exposed to passive smoke (n = 8) (p < 0.03). Children with CF and with a history of respiratory symptoms (n = 31) had significantly higher functional residual capacity Z-scores (p < 0.02) and lower specific expiratory interrupter conductance Z-scores (p < 0.04). Genotype did not influence the data. We conclude that Rint(exp) and functional residual capacity measurements may help to follow young children with CF who are unable to perform reproducible forced expiratory maneuvers. Publication Types: Multicenter Study PMID: 12379554 [PubMed - indexed for MEDLINE] ************* Glycoconj J 2001 Sep;18(9):661-84 Related Articles, Links Human airway mucin glycosylation: A combinatory of carbohydrate determinants which vary in cystic fibrosis. Lamblin G, Degroote S, Perini JM, Delmotte P, Scharfman A, Davril M, Lo-Guidice JM, Houdret N, Dumur V, Klein A, Rousse P. INSERM U 377, Faculte de Medecine and Universite de Lille 2, place de Verdun, 59045 Lille Cedex, France. Human airway mucins represent a very broad family of polydisperse high molecular mass glycoproteins, which are part of the airway innate immunity. Apomucins, which correspond to their peptide part, are encoded by at least 6 different mucin genes (MUC1, MUC2, MUC4, MUC5B, MUC5AC and MUC7). The expression of some of these genes (at least MUC2 and MUC5AC) is induced by bacterial products, tobacco smoke and different cytokines. Human airway mucins are highly glycosylated (70-80% per weight). They contain from one single to several hundred carbohydrate chains. The carbohydrate chains that cover the apomucins are extremely diverse, adding to the complexity of these molecules. Structural information is available for more than 150 different O-glycan chains corresponding to the shortest chains (less than 12 sugars). The biosynthesis of these carbohydrate chains is a stepwise process involving many glycosyl- or sulfo-transferases. The only structural element shared by all mucin O-glycan chains is a GalNAc residue linked to a serine or threonine residue of the apomucin. There is growing evidence that the apomucin sequences influence the first glycosylation reactions. The elongation of the chains leads to various linear or branched extensions. Their non- reducing end, which corresponds to the termination of the chains, may bear different carbohydrate structures, such as histo-blood groups A or B determinants, H and sulfated H determinants, a, b, x or y epitopes, as well as sialyl- or sulfo- (sometimes sialyl- and sulfo-) a or x determinants. The synthesis of these different terminal determinants involves three different pathways with a whole set of glycosyl- and sulfo-transferases. Due to their wide structural diversity forming a combinatory of carbohydrate determinants as well as their location at the surface of the airways, mucins are involved in multiple interactions with microorganisms and are very important in the protection of the underlying airway mucosa. Airway mucins are oversulfated in cystic fibrosis and this feature has been considered as being linked to a primary defect of the disease. However, a similar pattern is observed in mucins from patients suffering from chronic bronchitis when they are severely infected. Airway mucins from severely infected patients suffering either from cystic fibrosis or from chronic bronchitis are also highly sialylated, and highly express sialylated and sulfated x determinants, a feature which may reflect severe mucosal inflammation or infection. These determinants are potential sites of attachment for Pseudomonas aeruginosa, the pathogen responsible for most of the morbidity and mortality in cystic fibrosis, and the expression of the sulfo- and glycosyl-transferases involved in their biosynthesis is increased by TNFalpha. In summary, airway inflammation may simultaneously induce the expression of mucin genes (MUC2 and MUC5AC) and the expression of several glycosyl- and sulfo-transferases, therefore modifying the combinatory glycosylation of these molecules. PMID: 12386453 [PubMed - in process] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2003 Report Share Posted June 3, 2003 This reminds me of the email signature of a pulmonologist: Having smoking sections is restaurants is like having peeing sections in swimming pools. ~ > I am so grateful that here in CA they have totally banned smoking in all > restaurants and most public places. Non smoking sections are a joke, the > smoke from the smoking section just drifts over to the non smoking section > anyway. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2003 Report Share Posted June 3, 2003 This one sums it up nicely: ************* Arch Dis Child 1994 Oct;71(4):353-4 Related Articles, Links Passive smoking and impaired lung function in cystic fibrosis. Smyth A, O'Hea U, G, Smyth R, Heaf D. University of Liverpool. Passive smoking was measured in 57 children with cystic fibrosis and in 51 controls using a questionnaire and a measurement of urinary cotinine concentration. In the cystic fibrosis group, cotinine was significantly lower than in the controls. Also in this group, when the parents smoked the child's forced expiratory volume in one second decreased by 4% and the forced vital capacity by 3% for every 10 cigarettes smoked in the household each day. Publication Types: Clinical Trial Controlled Clinical Trial PMID: 7979533 [PubMed - indexed for MEDLINE] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2003 Report Share Posted June 3, 2003 LOL thats funny! love, Re: CF and smoking > This reminds me of the email signature of a pulmonologist: > > Having smoking sections is restaurants is like > having peeing sections in swimming pools. > > > ~ > > > > I am so grateful that here in CA they have totally banned smoking > in all > > restaurants and most public places. Non smoking sections are a > joke, the > > smoke from the smoking section just drifts over to the non smoking > section > > anyway. > > > > ------------------------------------------- > The opinions and information exchanged on this list should IN NO WAY > be construed as medical advice. > > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. > > ------------------------------------ > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 7, 2003 Report Share Posted June 7, 2003 Your so right --THEY have done that in FLORIDA ,It is in FULL effect on July 7th . Many have been doing it since Jan 1,2003. It sure makes a difference. Love you all THE BEACH WAS GREAT ..I just drove in . I am addicted to you all :):~~~~~~~ LOVE & HUGS, grandmomBEV Re: CF and smoking I am so grateful that here in CA they have totally banned smoking in all restaurants and most public places. Non smoking sections are a joke, the smoke from the smoking section just drifts over to the non smoking section anyway. I hope this ban on smoking in public goes nationwide. You can't even smoke legally in bars here anymore, although I know of some small places that ignore this law. I really don't care, I wouldn't take my kid to a bar anyway. love, M Re: CF and smoking > Ever notice that whenever you go to restaurants, in order to get to the bathroom, you have to walk through the smoking section and your CF child is always the one who has to go? that's what happens to us. > ------------------------------------------- The opinions and information exchanged on this list should IN NO WAY be construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2003 Report Share Posted June 8, 2003 Welcome back from us too Grandmom Queen mum We missed you!! love, M RE: CF and smoking > Welcome back Bev. Glad you had a good time with the family. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2003 Report Share Posted June 8, 2003 That is so very nice of you all to post me. I sure did miss everyone. I feel like its been a year:):) I know all must have been well :) thanks again LOVE & HUGS, GRDMBEV Re: CF and smoking Welcome back from us too Grandmom Queen mum We missed you!! love, M RE: CF and smoking > Welcome back Bev. Glad you had a good time with the family. > > ------------------------------------------- The opinions and information exchanged on this list should IN NO WAY be construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. ------------------------------------ Quote Link to comment Share on other sites More sharing options...
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