Question

[Guest guest]

Hi Everyone:

Hope y'all are having a good day, and as pain free as possible. I'm hanging

in there, reading all the messages learning more and more every day!

A while back I read about someone who's doctor prescribed something to thin

out her bile. My doctor and I were discussing this the other day, and I

told him I would try to find out what it is. I'm so grateful he has not

blown me off like so many others have. I even sent a gift basket to his

office this afternoon, to thank him for everything. I know all the girls in

the office will LOVE the goodies, and let's face it, you need to make

friends with his staff if you want to see him.

He is going to schedule me to get a second opinion with a doctor at

Jefferson Hospital in Philadelphia. Has anyone had any experience with this

hospital? So far I have had two ERCP's with stents, and within weeks, after

they take the stent out, I am right back where I started. All this has been

done at s Hopkins in Baltimore, and my doctor there feels he's done all

he can. I've always been a bit of a mystery. And since he perforated my

duodenum during the last ERCP, I think he's a little gun shy. I have daily

crippling pain, requiring 100 mgs. of Oxycontin twice a day. I also use

Actiq pops for breakthrough pain. I can manage on this, believe it or not,

but I wouldn't say it makes me pain free. I have to get up an hour earlier

to take a pill before I have to take my shower and get ready for work.

Otherwise, I wouldn't be able to move. I also have nausea about everyday,

helped by phenergan suppositories. And tired? I think a combination of the

drugs, and the pain, not to mention the depression, sometimes I wish I could

fall asleep, and never wake up.

Is a sphincteroplasty where they tie the pancreatic duct directly to the

duodenum somehow? Dr. Greer is thinking this might prevent the duct from

continually getting blocked. He is open to anything to help me get some

type of permanent relief. This is going on three years now. Day in and day

out. Well I guess I don't have to tell you!

Any comments would be greatly appreciated.

Robin R.

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