Fw: [CYSTIC-L] CF on Today Show

June 10, 2003

I didn't see this forwarded to these lists so I apologize if this is a

repeat.

love,

----- Original Message -----

Hello.

I just wanted to let you all know that we have received word that on

Wednesday, June 11, NBC's Today show will be airing a segment on the dietary

supplement glutathione, and its potential application for CF. Glutathione --

in pill form or when aerosolized -- may have a therapeutic benefit in the

lungs of people with CF. The piece will include interviews with

Hudson, a mother from Utah who has three children with CF, and Dr. Preston

, executive vice president for medical affairs at the CF Foundation,

among others.

It is important to note that glutathione -- while promising -- is still in

the early stages of development as a treatment for CF and has not been

approved by the Food and Drug Administration (FDA) for clinical use. Any

existing data on glutathione and CF is still preliminary. Using therapies

that are not FDA-approved can present serious health risks to individuals

with CF and should not be included in a therapeutic regimen without the

express consent of their CF physician. But that being said, glutathione

does represent one of the many new strategies being explored by the CF

scientific and medical community and the attention of the Today show offers

a wonderful opportunity to promote awareness of CF and the encouraging

therapeutic developments presently on the horizon.

If you can, tune in and/or pass this information along to all those you know

who may be interested. We will try and tape the segment as well.

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WARNING: Consult a trusted doctor before ANY change to your treatment.

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Visit us at Http://Cystic-L.org and see our extensive Handbook on-line

(contains much CF information, and references to other CF resources),

the Photo Archives (people with CF, parents with CF, subscribers to

Cystic-L, and a memorial page), the CF Shop, the world's largest

cystic fibrosis bookstore (in the CF Shop), and much more!

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KNOWLEDGE IS POWER!

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