Guest guest Posted June 14, 2003 Report Share Posted June 14, 2003 Hi Katy, I'm forwarding a post I did to the Cystic-L site last week. My daughter is 7 months old today and had her first PFT test last Wednesday. Someone else had asked for us to share our experience, so this is it. Hope it helps, if you have any other questions, feel free to email me. I was very unsure about the whole thing but the Doctors assured me it was safe and would provide a lot of information. I'm glad we did it and it really wasn't bad. Take care, Mom to Ellie 7mo wcf, Jack 2yrs nocf [CYSTIC-L] Infant PFT Has anyone had experience with infant PFTs? Our Dr. wants to have Vince do one. (If our HMO approves.) They said they use some drops to knock him out and then put him in some vest thing that squeezed the air out of his lungs. Doing this they can check his lung capacity, etc. Thanks!! Lori mom to Scout 4 and Vince 21 months both wCF *-.,,.-**-.,,.-**-.,,.-**-.,,.-**-.,,.-**-.,,.-**-.,,.-**-.,,.-**-.,,.-* WARNING: Consult a trusted doctor before ANY change to your treatment. @}->- @}->- @}->- Visit us at Http://Cystic-L.org and see our extensive Handbook on-line (contains much CF information, and references to other CF resources), the Photo Archives (people with CF, parents with CF, subscribers to Cystic-L, and a memorial page), the CF Shop, the world's largest cystic fibrosis bookstore (in the CF Shop), and much more! @}->- @}->- @}->- KNOWLEDGE IS POWER! *-.,,.-**-.,,.-**-.,,.-**-.,,.-**-.,,.-**-.,,.-**-.,,.-**-.,,.-**-.,,.-* *-.,,.-**-.,,.-**-.,,.-**-.,,.-**-.,,.-**-.,,.-**-.,,.-**-.,,.-**-.,,.-* WARNING: Consult a trusted doctor before ANY change to your treatment. @}->- @}->- @}->- Visit us at Http://Cystic-L.org and see our extensive Handbook on-line (contains much CF information, and references to other CF resources), the Photo Archives (people with CF, parents with CF, subscribers to Cystic-L, and a memorial page), the CF Shop, the world's largest cystic fibrosis bookstore (in the CF Shop), and much more! @}->- @}->- @}->- KNOWLEDGE IS POWER! *-.,,.-**-.,,.-**-.,,.-**-.,,.-**-.,,.-**-.,,.-**-.,,.-**-.,,.-**-.,,.-* Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2003 Report Share Posted June 14, 2003 , Thank you so much. It really helps me, now I know what to expect and maybe it won't be so stressful for me. Katy Mom to Austin almost 4 w/o CF & Piper 11 months w/CF losterloh2 wrote: Hi Katy, I'm forwarding a post I did to the Cystic-L site last week. My daughter is 7 months old today and had her first PFT test last Wednesday. Someone else had asked for us to share our experience, so this is it. Hope it helps, if you have any other questions, feel free to email me. I was very unsure about the whole thing but the Doctors assured me it was safe and would provide a lot of information. I'm glad we did it and it really wasn't bad. Take care, Mom to Ellie 7mo wcf, Jack 2yrs nocf [CYSTIC-L] Infant PFT Has anyone had experience with infant PFTs? Our Dr. wants to have Vince do one. (If our HMO approves.) They said they use some drops to knock him out and then put him in some vest thing that squeezed the air out of his lungs. Doing this they can check his lung capacity, etc. Thanks!! Lori mom to Scout 4 and Vince 21 months both wCF *-.,,.-**-.,,.-**-.,,.-**-.,,.-**-.,,.-**-.,,.-**-.,,.-**-.,,.-**-.,,.-* WARNING: Consult a trusted doctor before ANY change to your treatment. @}->- @}->- @}->- Visit us at Http://Cystic-L.org and see our extensive Handbook on-line (contains much CF information, and references to other CF resources), the Photo Archives (people with CF, parents with CF, subscribers to Cystic-L, and a memorial page), the CF Shop, the world's largest cystic fibrosis bookstore (in the CF Shop), and much more! @}->- @}->- @}->- KNOWLEDGE IS POWER! *-.,,.-**-.,,.-**-.,,.-**-.,,.-**-.,,.-**-.,,.-**-.,,.-**-.,,.-**-.,,.-* *-.,,.-**-.,,.-**-.,,.-**-.,,.-**-.,,.-**-.,,.-**-.,,.-**-.,,.-**-.,,.-* WARNING: Consult a trusted doctor before ANY change to your treatment. @}->- @}->- @}->- Visit us at Http://Cystic-L.org and see our extensive Handbook on-line (contains much CF information, and references to other CF resources), the Photo Archives (people with CF, parents with CF, subscribers to Cystic-L, and a memorial page), the CF Shop, the world's largest cystic fibrosis bookstore (in the CF Shop), and much more! @}->- @}->- @}->- KNOWLEDGE IS POWER! *-.,,.-**-.,,.-**-.,,.-**-.,,.-**-.,,.-**-.,,.-**-.,,.-**-.,,.-**-.,,.-* ------------------------------------------- The opinions and information exchanged on this list should IN NO WAY be construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2003 Report Share Posted June 16, 2003 X-rays once a year, unless a major flare-up of an infection is suspected .... then they do one at that time whether due or not. M Debbie wrote: >. . . > >How often do your children have chest x-rays done? Lexi had her first at 2 months of age . . . > >Debbie - mom of is 3.5 months > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2003 Report Share Posted June 17, 2003 Hey , I don't know if you've read any of the other posts regarding this infant PFT they seem to do in the states. This is the first I have heard of this procedure. Do you know much about it and why it isn't done here? Matty has bronchitis again. We was taken off of the nebulizer at our last clinic visit on May 9th because he was so healthy. My middle son got sick a few weeks ago and unfort. caught it. Now he is sick, has a very nasty cough. He is back on the neb. And is on antibiotics. This is the second time he has had bronchitis, he had it once in December. Any advise, comments, etc. I always value your opinion. Howz your life, family, boys, etc. Cheryl, mom to 3 boys, Zac 7 yrs. wocf, Jake 2 yrs. wocf, Matty 17 mo. (almost) wcf Re: FW: [CYSTIC-L] Infant PFT X-rays once a year, unless a major flare-up of an infection is suspected .... then they do one at that time whether due or not. M Debbie wrote: >. . . > >How often do your children have chest x-rays done? Lexi had her first at 2 months of age . . . > >Debbie - mom of is 3.5 months > > Quote Link to comment Share on other sites More sharing options...
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