Re: Gene mutation question JAN

[Guest guest]

> Jan,

>

> My daughter also has 1 G551D gene.

>

>

Does she have a lot of sinus problems? My son's CF doctor says most

of the children he sees have some sinus issues but it doesn't seem

that way fron this list. Only a few have mentioned sinus problems.

G551D seems to run towards more sinus polyps than some other

mutations I have read but you can't go strictly by the mutations

either. Each CF individual has such a different response.

jan

[Guest guest]

In a message dated 6/15/2003 6:29:19 AM Central Daylight Time,

drea@... writes:

> Hi,

> has G551D, but not any sinus problems. But then again we are dealing

> with her first real cold in over 2 years. Anyone know anything about the

> 1898=1G

You got to think about the kids ages too because it took 6 years before my

daughter started having sinus problems. Deb A

[Guest guest]

Hi,

has G551D, but not any sinus problems. But then again we are dealing

with her first real cold in over 2 years. Anyone know anything about the

1898=1G<A mutation? That is the other one she has.

Re: Gene mutation question JAN

> Jan,

>

> My daughter also has 1 G551D gene.

>

>

Does she have a lot of sinus problems? My son's CF doctor says most

of the children he sees have some sinus issues but it doesn't seem

that way fron this list. Only a few have mentioned sinus problems.

G551D seems to run towards more sinus polyps than some other

mutations I have read but you can't go strictly by the mutations

either. Each CF individual has such a different response.

jan

[Guest guest]

Jan,

She doesn't have a lot of sinus problems really. She did have her

sinuses scrapped/washed and they said they weren't to bad, but she

does/did have ear problems until she had her grommets put in.

Re: Gene mutation question JAN

> Jan,

>

> My daughter also has 1 G551D gene.

>

>

Does she have a lot of sinus problems? My son's CF doctor says most

of the children he sees have some sinus issues but it doesn't seem

that way fron this list. Only a few have mentioned sinus problems.

G551D seems to run towards more sinus polyps than some other

mutations I have read but you can't go strictly by the mutations

either. Each CF individual has such a different response.

jan

[Guest guest]

she

> does/did have ear problems until she had her grommets put in.

>

>

>

Grommets/ What are they?

jan

[Guest guest]

jAN,

tUBES IN HER EARS OR DRAINAGE.

JULIE

Re: Gene mutation question JAN

she

> does/did have ear problems until she had her grommets put in.

>

>

>

Grommets/ What are they?

jan