Re: Ortho-McNeil and Retreat Update

[Guest guest]

Becki,

I would love to get a diary or 2, what do I need to do?

Kathy Mom of Aimee 12wcf and Alysun 11wocf

[Guest guest]

Hey Becki,

I don't know if you are interested in any more stuff for the campers, but the

Tobi people sent Really nice back packs packed with stuff for the Cf people at

our local great strides, maybe they would do the same for you if you wrote to

them. Just a thought.

Ortho-McNeil and Retreat Update

Hello Everyone...

Well I just recieved a huge surprise. I had mailed a letter to Ortho-MCNeil

SEVERAL weeks ago but today I got a kock on the door. It was the UPS guy. I

got

5 LARGE packages from them FULL of CF stuff and different respirartory

therapy videos meant for any lung disease ( PEP. FLUTTTER, Auto-something

drainage...) Plus a zillion books and 2 boxes of CF Medical Diaries...very

nice....

If anyone is interested in anything let me know...I'm gonna charge a VERY

small amount to raise money for the support group here ( we want to have a

summe

rparty at the water park here and other activities during the year )...$5 per

video plus shipping (won't be much ) and $2 for books plus shipping ( $2 if

that ) ....

There are a lot of books for kids with CF....Little ones and school age too.

Some stuff will go in a goodie bag at the retreat for every camper but they

sent SOOOOOOOOOOOOOOOOOO much...LOL

My hubby hasn't seen the boxes piled high in our living room yet...LOL

Plus I found out today that Pancreacarb ( Digestive Care, INC ) is making

our camp T-Shirts...I designed them...very cute. They are also sending goodie

Bags for every camper....

Im getting excited about the Retreat coming up...it'll be so much

fun...Rafting and swimming and a Big BBQ...plus rock climbing and repelling (

I won't be

able todo that b/c of the arthritis and whatnot ) but it'll be fun. We will be

in this big old cabin that was built in Davie Crocket's time and re-furbished

and includes electricity now.

Its RIGHT on the water of the Nolichucky.....Plus the Appalachin trail in

righ there...Excuss my pitiful spelling...LOL

Becki

YOUR FAVORITE LilGooberGirl

YOUNGLUNG EMAIL SUPPORT LIST

www.topica.com/lists/younglung

Pediatric Interstitial Lung Disease Society

http://groups.yahoo.com/group/InterstitialLung_Kids/

[Guest guest]

Hi Becki,

I would be interested in some of the children's books if you don't mind.

Where should I send you the check. My address is Maunsell P.O. Box

604

Medford, MA 02155.

Thanks,

Jenna

[Guest guest]

just as a quick note if you ship the books and videos media mail it will

cost even less to ship them

Ortho-McNeil and Retreat Update

> Hello Everyone...

> Well I just recieved a huge surprise. I had mailed a letter to

Ortho-MCNeil

> SEVERAL weeks ago but today I got a kock on the door. It was the UPS guy.

I got

> 5 LARGE packages from them FULL of CF stuff and different respirartory

> therapy videos meant for any lung disease ( PEP. FLUTTTER, Auto-something

> drainage...) Plus a zillion books and 2 boxes of CF Medical Diaries...very

nice....

> If anyone is interested in anything let me know...I'm gonna charge a VERY

> small amount to raise money for the support group here ( we want to have a

summe

> rparty at the water park here and other activities during the year )...$5

per

> video plus shipping (won't be much ) and $2 for books plus shipping ( $2

if

> that ) ....

> There are a lot of books for kids with CF....Little ones and school age

too.

> Some stuff will go in a goodie bag at the retreat for every camper but

they

> sent SOOOOOOOOOOOOOOOOOO much...LOL

> My hubby hasn't seen the boxes piled high in our living room yet...LOL

> Plus I found out today that Pancreacarb ( Digestive Care, INC ) is making

> our camp T-Shirts...I designed them...very cute. They are also sending

goodie

> Bags for every camper....

> Im getting excited about the Retreat coming up...it'll be so much

> fun...Rafting and swimming and a Big BBQ...plus rock climbing and

repelling ( I won't be

> able todo that b/c of the arthritis and whatnot ) but it'll be fun. We

will be

> in this big old cabin that was built in Davie Crocket's time and

re-furbished

> and includes electricity now.

> Its RIGHT on the water of the Nolichucky.....Plus the Appalachin trail in

> righ there...Excuss my pitiful spelling...LOL

>

> Becki

> YOUR FAVORITE LilGooberGirl

> YOUNGLUNG EMAIL SUPPORT LIST

> www.topica.com/lists/younglung

> Pediatric Interstitial Lung Disease Society

> http://groups.yahoo.com/group/InterstitialLung_Kids/

>

>

>

[Guest guest]

excuse me for sounding rude, I would love some books or videos for children,

but can my son pick up germs from you or your house, I am assuming that you

have +ve sputum cultures for CF related germs. Sorry for sounding so rude,

I guess I'm an over protective mother

mum to Liam 10 months wcf

Ortho-McNeil and Retreat Update

>

>

> > Hello Everyone...

> > Well I just recieved a huge surprise. I had mailed a letter to

> Ortho-MCNeil

> > SEVERAL weeks ago but today I got a kock on the door. It was the UPS

guy.

> I got

> > 5 LARGE packages from them FULL of CF stuff and different respirartory

> > therapy videos meant for any lung disease ( PEP. FLUTTTER,

Auto-something

> > drainage...) Plus a zillion books and 2 boxes of CF Medical

Diaries...very

> nice....

> > If anyone is interested in anything let me know...I'm gonna charge a

VERY

> > small amount to raise money for the support group here ( we want to have

a

> summe

> > rparty at the water park here and other activities during the

year )...$5

> per

> > video plus shipping (won't be much ) and $2 for books plus shipping ( $2

> if

> > that ) ....

> > There are a lot of books for kids with CF....Little ones and school age

> too.

> > Some stuff will go in a goodie bag at the retreat for every camper but

> they

> > sent SOOOOOOOOOOOOOOOOOO much...LOL

> > My hubby hasn't seen the boxes piled high in our living room yet...LOL

> > Plus I found out today that Pancreacarb ( Digestive Care, INC ) is

making

> > our camp T-Shirts...I designed them...very cute. They are also sending

> goodie

> > Bags for every camper....

> > Im getting excited about the Retreat coming up...it'll be so much

> > fun...Rafting and swimming and a Big BBQ...plus rock climbing and

> repelling ( I won't be

> > able todo that b/c of the arthritis and whatnot ) but it'll be fun. We

> will be

> > in this big old cabin that was built in Davie Crocket's time and

> re-furbished

> > and includes electricity now.

> > Its RIGHT on the water of the Nolichucky.....Plus the Appalachin trail

in

> > righ there...Excuss my pitiful spelling...LOL

> >

> > Becki

> > YOUR FAVORITE LilGooberGirl

> > YOUNGLUNG EMAIL SUPPORT LIST

> > www.topica.com/lists/younglung

> > Pediatric Interstitial Lung Disease Society

> > http://groups.yahoo.com/group/InterstitialLung_Kids/

> >

> >

> >