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Hello Donna,

I am pleased that your Whipple was so successful. It's good to hear

of surgery working so well; it gives hope to lots of others. It

isn't suitable for me partly because there is no healthy tissue left

in my pancreas (it is calcified throughout) but also because I have

a very high cancer risk and it would only make sense to remove the

whole thing, for obvious reasons. I am also on the verge of becoming

diabetic.

I have the high cancer risk because I have hereditary pancreatitis

and have had CP since I was four or five years old. I'm 57 now.

Research indicates a 40% lifetime risk of pancreatic cancer in such

cases. That's not easy to live with. This is why my panc

specialist/surgeon is willing to do this operation, if I wish. He

isn't trying to persuade me to have it done; it's an offer which I

can take up if I wish. Apart from the CP symptoms (pain etc.), I'm

reasonably fit, still working and eating well and he seems to think

I would have a good chance of making a good recovery with less, or

no pain. He's an outstanding pancreatic surgeon and specialist.

However, the TP does carry risks, which he has discussed fully with

me, and I would be diabetic. No guarantees can be given that pain

will disappear completely. I'm very likely to end up diabetic anyway

before too long as I am in the end-stage of CP.

The most impossible decision of my life, obviously!

Best wishes and carry on doing well. Thanks for your message.

Fliss

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