Re: Re: OT Advice for a family of beginners

[Guest guest]

Hey Carol,

I think you'd like Dr. NC's book ... I'd like your take on it ...

As I read it, it's an SCD book, but customized for ASD, sort of like

pecanbread customized SCD for ASD, thus is not an 'official' SCD site.

Yes, Dr. Haas, Elaine, Pecanbread, Dr. -McBride have saved and

improved lives. I'll bet there'll be future SCD books/authors coming from this

list as recovery takes place.

Agape,

carolfrilegh wrote:

>

> Anybody new or old to SCD should get the SCD book 'Gut and Psychology

Syndrome'

> by Natasha -McBride, MD.

> It's a must read written by an MD mother who used SCD with customiztion

to recover

her son.

> You can get it at the Body Ecology website.

> Agape,

Dear ,

The GAPS diet may have similarities to SCD, but personally (and I and I am not

a

moderator) I don't advocate it as a reading recommendation to everyone.

Others who advocate their own choice of diet like Dr. McCandless

(GFCF), Karyn Serousssi (GFCF, BED and other diets)), Owens

(LOD), Dr. Natasha -McBride (GAPs), Sally Fallon, (Weston-Price) Jordan

Rubin (The Makers Diet) may mention SCD or look like SCD or support

" customizing " SCD

or praise Elaine and her work.

A prominent autism doctor ( I think it was Wakefield) did this at an

Autism

Canada mini DAN conference inToronto . He then proceeded to recommend the GF

diet

instead of SCD. So they like the medium (Elaine) but not always the message

(SCD)

Because food falls into limited categories (dairy, veggies, fruits,

nuts, animal protein, eggs etc.) it is easy to find similarities amomg diets.

Some

of these diets restrict some carbs, not always the same as what we

eliminate. ( This is like the analogy, " Adam is a man, Adam has a

beard. " False conclusion, " all men have beards. "

Attention to the other diets often means adding or permitting non

compliant foods. In other cases it removes so many SCD foods that there

is little left to eat.

This was my experience with LOD. I was told it was needed

when a kidney stone was suspected I denied myself all sorts of things

like dark green vegetables only to find I T I had no stones was misdiagnosed.

and

furthermore I have further restrictions because of Latex Allergy.

Meanwhile I developed a false psychological aversion to the LOD list of things I

really need

for SCD balanced nutrition, things I've been having for six years.

Elaine has given us a rare gift, a healing diet where the pieces fit

together. It may not work for all of the people all of the time, and

this was never promised, However 80% (in terms of improvement or cure)

is a significant ratio of success.

Some may needt some legal enhancements (which I did not require).

Yet, we will continue to try to attach bells and whistles in the name

of " customization. "

I do find it valid to ask " if SCD is not working for you have you made

sure you are doing it correctly? " If not you have options:

1.Start again with the intro

2. Try adding foods again and monitor very carefully

3. Give it up with the thought of coming back and trying again if

things don't work out.

4. Do the other diet you are investing your preference towards and if

that doesn't work, come back.

But do not think if you resume the Standard American diet you will do

anything but harm or the " other diet " may disagree with you or your child..

One more thing. When I " customized " a few of my Granny's recipes they

weren't like Granny's anymore!

BTW: you are determined to tinker with SCD you better find a new name

for it because SCD is trademarked.

Kirstie Ally doesn't bring Weight Watchers' dinners to her Craig

counselor. LOL!

Carol F.

SCD 6 years, celiac

For information on the Specific Carbohydrate Diet, please read the book

_Breaking the Vicious Cycle_ by Elaine Gottschall and read the following

websites:

http://www.breakingtheviciouscycle.info

and

http://www.pecanbread.com

[Guest guest]

Pecanbread IS a customization of SCD, that's why it's not an 'official' SCD

website.

Thank God for Pecanbread and it's consideration of not only gut problems, but

how gut problems affect the immune, endocrine, and central nervous systems also,

thus ASD.

Who do we thank for Pecanbread?...Jody?, Sheila?, Mimi?

Agape and thanks to you all,

Gertrude Snicklegrove wrote:

Becky,

I too was disappointed that no one posted about the ability of SCD to recover

autism alone.

Autism has no cure, and is a complex situation. Not that other illness is not

complex, but autism is a puzzle.

Putting the pieces of the puzzle is what has to be done for most people with

autism to recover. It includes measures that the " norm " would never, ever have

to use. Even between us parents, there is a wide difference in treatment.

Since I am one of the pecanbread members bringing up customization of SCD if

is not enough alone, I think it is important to explain why.

If, like many parents, following SCD to the letter with no extra supplements

or strategies is not working effectively enough on its own, there is room to

improve. Bone marrow broths, looking to see if there is phenol intolerance and

reducing those foods, possibly adding in enzymes, finding reactions to food with

sprays as opposed to organic, why wouldn't someone want to maximize SCD to help

their child heal? Or themselves?

Fundamentally, what is wrong with customization. If someone is doing the

Feingold Program, they can adapt that into SCD legal foods, and if that means

their child does not need to take Ritalin or Risperidol over that diet

modification, both of which are terribly hard on the kidneys and liver in metal

toxic children, how is that not a step forward?

I understand others on the list may not be suffering with autism, but if your

child is not speaking, if your child is uncontrollable, or the many other issues

surrounding autism, it should be understood, there are a variety of tools

available to help progress along. Some members here have made very detailed

vitamin/mineral supplement protocols, some use enzyme therapy, some opt for

natural anti-fungal therapy instead of meds which can be much harder on the

system for some. Some have many true allergies to work around and organ

problems.

Systematic yeast is another story, when the yeast mutates from the biofilms

into a rhizoid form.

So, looking a person individually, and tailoring their health needs is not

about philosophy or opinion, it is about healing that person.

I see that a clarification between diets is needed for new pecanbread members,

but it is not a competition. Plenty of members having success with SCD still

have problems, still need to come post and gather new ideas to study.

I absolutely agree, Elaine has given us a rare gift. Elaine was a genius in my

book. I have read her writings and conversations over and over again. I am

constantly learning something new. My family uses SCD.

My youngest Ben, ASD and leaky gut and fungal rectal infection, well, using

SCD and enzymes and a few other things, we have completely put leaky gut and

fungal cysts into dormancy. He is moving out of ASD to normal child status.

Hunter is classical autistic, adhd and metal poisoned with gut issues. He has

moved from more severe autism to the ASD diagnosis, his adhd has lessened,

although still and issue. He will always be on SCD, if he leaves SCD there is

regression, so it is a lifetime strategy.

No one can tell another absolutely what food they can or cannot tolerate, only

the individual will be able to find this out themselves.

I have faith in the value of SCD, based on experience with it, the science

behind it, the whole she bang. But autism spectrum issues have new uncharted

territory of complications and factors. They can be figured out to a great

extent though, its working a puzzle. No one knows exactly what the puzzle will

look like for each person on spectrum.

That's the best I can say from a fellow pecanbreader that utilizes some

customization of SCD.

Summer

> Elaine has given us a rare gift, a healing diet where the pieces fit

> together. It may not work for all of the people all of the time, and

> this was never promised, However 80% (in terms of improvement or cure)

> is a significant ratio of success.

I suspect that this 80% figure is from those who had GI issues such as

celiac, UC, and IBS. Most but not all of the people on this list are

doing SCD for their ASD children. I highly doubt this statistic applies

to ASD children on SCD, unless the majority of the 80% are in the

'showing improvement' category. Which, to be fair, there are several ASD

biomedical interventions that that have a similar ratio of success based

on those terms.

Recently a mom posted a request to parents of kids who have been able to

recover from SCD alone. I was very disappointed that we still have not

heard from anyone yet.

Becky

Mom to Noah (6, HFA) and (3, NT)

SCD 3 months