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Thanks grandmomBEV, I appreciate everything that you just said. I definitely

don't feel as bad and next time I will know how to handle it better.

Love,

Jenna

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The nurse couldn't say anything about the type of illness (do to the

HIPPA ), that would have maybe helped the situation. But , perhaps next time

you might smiling say to those nearest you , your so sorry, but she has CF &

must be kept separate as her immune system isn't strong.dont give too much ,

then they will think it is even worse & maybe feel like it is right if she

is " more ill then they are???????? it is a crazy world........You are so

right. If your blood isn't spilling on them , they would just as soon see

you sit there. Its kind of like the handicap parking places " crap " people

come up with ..........Oh,oh, here is an open box -----:):):)

The stories I have heard about them as well as hospital ER rooms

I do hope all is well now.

LOVE & HUGS, GRDMBEV

Emergency room

Had to take Hannah to the ER tonight at our local hospital. She fell and

had

a huge lump/gash on the side of her head. Atleast she doesn't have a

concussion and didn't need stitches.

When I registered her, they asked me if Hannah had any other medical issues.

I told them that she has CF. Well the registrar immediately had her in

triage and in an examining room. There were a lot of people waiting and

several

children. I told them that I would wait our turn as long as we could stay

in an

examining room, as maybe she wouldn't be exposed to a whole lot more germs.

The registrar told me to read the sign in the ER which stated that " Other

patients, may not look as though they have something wrong with them, but

could

have urgent health problems that are not noticeable by just looking. " I

didn't

feel that bad then about being wisked into a room. However, there were a

hell

of a lot of people complaining. Has anyone had this experience before?

What

do you say to people who are rude and think that you are just cutting? I

just felt crappy about the whole experience and did not open my mouth.

Thanks for the help in advance.

Jenna

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Jenna,

I'm so glad Hannah appears to be okay. Head wounds are always scary! I

could really empathize with your dilemma because I've been on both

sides of that fence.

A few times I've had to go to ER for severe migraine. I usually only

go when symptoms are so severe, like nonstop vomiting. ER nurses must

have it burned into their brains that when someone comes in with a

migraine, get them into a quiet, dark room fast! No dilly-dallying.

But I'm sure that's very aggravating to other people who were there

first. I never thought about refusing, the alternative is to sit in

the waiting room shaking uncontrollably and puke all over them. :)

A couple years ago, I took my daughter to the ER because I suspected

she'd fractured her skull after fainting and hinting her head on

cement (she'd vomited blood three times, sort of a clue there!). And

even though there was a sign posted in the ER stating that patients

are seen in the order of importance, the doctor took his sweet time by

first seeing a toddler with a low temp and a pre-teen with a sprained

ankle. So much for order of importance. I could understand the

toddler, but the teen who even said she wasn't in pain.

The dumb-bunny doctor was going to release my daughter without even

x-raying her until I stopped him and asked why she couldn't hear out

of her left ear. He said, " Well, they didn't tell me that! " (Like he

can't read the chart on his own? I'd read the chart and it clearly

said she'd vomited blood three times and couldn't hear from her left

ear.) He looked in her ear, saw blood behind the ear drum and sent her

immediately for a CT scan, then called an ambulance to have her

transported out of town to a hospital with a neurosurgeon.

Sometimes when I'm pinching pennies and paying bills, I fantasize

about how much money might have received if left the ER,

gone to another one on our own, then sued the doctor for negligence.

It's just a fantasy, but a fun one! Anyway, don't worry about what

others think. You were looking out for your daughter's overall health.

I guess you could buy her a t-shirt that says, " Stay back! I'm highly

contagious! " And have her wear it for any future ER visits!

Kim

Had to take Hannah to the ER tonight at our local hospital. She

fell and had a huge lump/gash on the side of her head. Atleast she

doesn't have a concussion and didn't need stitches.

When I registered her, they asked me if Hannah had any other medical

issues. I told them that she has CF. Well the registrar immediately

had her in triage and in an examining room. There were a lot of

people waiting and several children. I told them that I would wait

our turn as long as we could stay in an examining room, as maybe she

wouldn't be exposed to a whole lot more germs.

The registrar told me to read the sign in the ER which stated that

" Other patients, may not look as though they have something wrong with

them, but could have urgent health problems that are not noticeable by

just looking. " I didn't feel that bad then about being wisked into a

room. However, there were a hell of a lot of people complaining. Has

anyone had this experience before? What do you say to people who are

rude and think that you are just cutting? I just felt crappy about

the whole experience and did not open my mouth.

Thanks for the help in advance.

Jenna

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What happened to you was proper procedure. Let them complain and thank God for

them that they don't have to go through what you do to keep you child healthy

every day.

Dawn mom of 4, 7 and under, the youngest wcf

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This is something that I wish had happened to us the one time that we had to

take to the ER. Instead of letting us get away from the germs in the

waiting room we sat for a very long time. She was only dehydrated but she had

sort of plopped down and lay on the floor with glassy eyes. She refused to drink

anything. She had only been diagnosed a month before and was only 2 or 3 weeks

out of her first CF admission. None of this was taken into account though and

they made us sit with her in the germ riddled waiting room for more than an

hour.

mom of 4 & 1/2 with CF

Emergency room

Had to take Hannah to the ER tonight at our local hospital. She fell and had

a huge lump/gash on the side of her head. Atleast she doesn't have a

concussion and didn't need stitches.

When I registered her, they asked me if Hannah had any other medical issues.

I told them that she has CF. Well the registrar immediately had her in

triage and in an examining room. There were a lot of people waiting and

several

children. I told them that I would wait our turn as long as we could stay in

an

examining room, as maybe she wouldn't be exposed to a whole lot more germs.

The registrar told me to read the sign in the ER which stated that " Other

patients, may not look as though they have something wrong with them, but

could

have urgent health problems that are not noticeable by just looking. " I

didn't

feel that bad then about being wisked into a room. However, there were a hell

of a lot of people complaining. Has anyone had this experience before? What

do you say to people who are rude and think that you are just cutting? I

just felt crappy about the whole experience and did not open my mouth.

Thanks for the help in advance.

Jenna

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Jenna,

There is no reason for you to feel guilty for special treatment. The

emergency room already had a policy in place--you did not ask for special

treatment

and even offered to wait your turn.

Getting Hannah into an examining room was very important. There is such a

high risk of exposure to germs in an emergency waiting room. I think it is

great the hospital staff understood the risks of exposure and isolated Hannah.

Hope Hannah is doing alright.

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