Re: Questions to anyone who can help

[Guest guest]

Hi ,

Not sure if I can help but here is my contribution:

1. I have used herbal pancreatic suuplements - I didn't notice

any difference but then I wasn't doing this in any scientific way - I

had added so many different things to my regimen that it is hard

to tell what worked and what didn't.

2. I don't go to a gym but I try to do aerobics at home...I find that it

sometimes makes me have a flare a day or so later. Any type of

hard exertion seems to cause an increase in that type of pain (as

opposed to just " work-out sore muscles) " .

3. As far as the fear of eating....that is a major thing that I am

battling...I see it as strong as a phobia. I am to the point that the

best gift in the world would be that I never had to eat again (other

than getting cured of course). Other than the pain, I would say

that this is my major symptom of the disease and it is very

interfering with my life. But do you find that the doctors don't take

this seriously? That the response is either outright ingnoring or

the comment " well you just gotta eat " .?

4. Yes I am still working - but that is about the extent of my life. I

get up, work, go home, go to bed.....Weekends basically stay in

bed or on the couch. I am hoping that part of this inactivity is due

to it being a snowless winter - so no motivation to go out and

play. Come spring when gardening starts, I will be in a better

position to evaluate the extent of my energy level. But right now, I

crave inactivity.

Hope this helps!

Laurie

[Guest guest]

Hi ,

Just a few brief comments.

I find one of the main triggers for a CP attack is when I overdo physical

exertion. I must be very self aware and experienced to minimize the episodes

resulting from Physical activity. But, we are all different and you may be able

to

do it.

Instead of Creon, have you tried Pancrease?

Eating is always an up to the minute challenge, I've been known to get up

from the table 2 minutes after I have sat down to have a meal. I just conclude

that sometimes it works and sometimes it don't

Again, self awareness and experience are valuable tools in developing the

most successful ability of dealing with Chronic Panc.

Fear of pain, you betcha, one of the most beneficial tools in gaining

experience on how to live with this disease. Look at it as your ally and friend,

not

as your enemy

Best wishes, Poncho