Re: Re: worst clinic visit

[Guest guest]

Hi, I was told that you could get the vest when the child's chest measures about

21 inches but that many people get them before they hit that mark. We got

's vest from the other company ElectroMed, it's called the MedPulse vest

system. pretty much the same thing as ABI's vest at a lower cost. They are

both great products and are great with insurance. They are considered medical

equipment, so maybe if you insurance pays for you nebulizer they may pay for a

vest.....

good luck

worst clinic visit

>

>

> > Yesterday was Dallas' worst clinic visit ever. I know it wasn't

> > totally bad, but we've kept him really healthy for 2 years (

actually

> > we've jsut been darn lucky) and it was kind of depressing.

> > He's lost weight, hasn't grown in height, and his o2 levels were

> > down. He usually runs at about 98 or 99% and he was at 91. I

> > know..not bad by alot of cf patients standards..but it sort of

seems

> > like it will be a downward battle.

> > Does anyone else feel this bad when their cf child goes from

healthy

> > to typical CF case?

> > the weight I'm not too concerned about. If anyone knows how to

put

> > weight on, it's me! lol

> > I've started giving him whipping cream in his milk, alot more

whole

> > fat dairy products, fattier cuts of meat, etc. but how do you

make a

> > kid grow?????

> > I was also told yesterday that once he reaches a 22 " chest and I

have

> > $16,000 US to spend, we can buy him a vest.

> > I know our insurance company would never cover that. I guess

it'll

> > be another bank loan..but I'm sure it'd be worth it, hearing from

all

> > of you how much you like yours.

> > Anyways, that's all.

> > Hope everyone has a happy healthy day!

> > Carla

> >

> >

> >

> > -------------------------------------------

> > The opinions and information exchanged on this list should IN NO

WAY

> > be construed as medical advice.

> >

> > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

> TREATMENTS.

> >

> > ------------------------------------

> >

> >

> >

[Guest guest]

Where in Manitoba? I grew up in Munich, ND, which is only about 15 miles

south of the border, and we often went up to Winkler, Winnepeg, ,

Crystal City, and several others. It's a beautiful area! We plan on going

up there fishing hopefully next summer. Right now we're living in Fargo,

ND, and love it here.

worst clinic visit

> >

> >

> > > Yesterday was Dallas' worst clinic visit ever. I know it wasn't

> > > totally bad, but we've kept him really healthy for 2 years (

> actually

> > > we've jsut been darn lucky) and it was kind of depressing.

> > > He's lost weight, hasn't grown in height, and his o2 levels were

> > > down. He usually runs at about 98 or 99% and he was at 91. I

> > > know..not bad by alot of cf patients standards..but it sort of

> seems

> > > like it will be a downward battle.

> > > Does anyone else feel this bad when their cf child goes from

> healthy

> > > to typical CF case?

> > > the weight I'm not too concerned about. If anyone knows how to

> put

> > > weight on, it's me! lol

> > > I've started giving him whipping cream in his milk, alot more

> whole

> > > fat dairy products, fattier cuts of meat, etc. but how do you

> make a

> > > kid grow?????

> > > I was also told yesterday that once he reaches a 22 " chest and I

> have

> > > $16,000 US to spend, we can buy him a vest.

> > > I know our insurance company would never cover that. I guess

> it'll

> > > be another bank loan..but I'm sure it'd be worth it, hearing from

> all

> > > of you how much you like yours.

> > > Anyways, that's all.

> > > Hope everyone has a happy healthy day!

> > > Carla

> > >

> > >

> > >

> > > -------------------------------------------

> > > The opinions and information exchanged on this list should IN NO

> WAY

> > > be construed as medical advice.

> > >

> > > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

> > TREATMENTS.

> > >

> > > ------------------------------------

> > >

> > >

> > >

[Guest guest]

Wow--we lived awfully close to each other growing up!! Small world!

Re: worst clinic visit

> I grew up in a tiny town about 60 miles south east of . Now

> we live on the west shore of Lake Manitoba, about 45 miles north of

> Portage la Prairie. My sister lived in Fargo for a few years. I

> always liked it when we visited. She went to head State.

> Carla

>

>

> > Where in Manitoba? I grew up in Munich, ND, which is only about 15

> miles

> > south of the border, and we often went up to Winkler, Winnepeg,

> ,

> > Crystal City, and several others. It's a beautiful area! We plan

> on going

> > up there fishing hopefully next summer. Right now we're living in

> Fargo,

> > ND, and love it here.

> >

>

>

>

>

> -------------------------------------------

> The opinions and information exchanged on this list should IN NO WAY

> be construed as medical advice.

>

> PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

TREATMENTS.

>

> ------------------------------------

>

>

>