Guest guest Posted July 23, 2003 Report Share Posted July 23, 2003 Thanks! Maybe he thought there was another one...when we saw him he said we were the only case he knew of. I've since " met " two others online who have children with CF and alpha-1. )O( mama to , 2yo, w/CF, and , 4yo, no CF Re: Dr. Spencer/ Yes it is the same Dr. Spencer. He was telling us some about his research before Abby's bronch and mentioned alpha-1 anti-tripsin deficiency - that he was doing a study on it. I remembered seeing one of your posts and told him that I'd heard about one with both CF and alpha-1. He seemed very interested and I offered to try and contact you, however that is now pointless since you already see him. He never even let on that he knew of such a patient - at least that was the impression I got. We really like him and they say he's a top-notch researcher. He really encouraged us with his enthusiasm regarding the gene therapy trial. Good luck to you. Joe > Who me? :-) My son has alpha-1-antitrypsin deficiency and CF! > > I have been no-mail, just signed back on the list yesterday. > > We see a Dr. Spencer in Gainesville...could it be the same one? He is > also very interested in both alpha-1 and CF. > > Glad to hear about Abby's good results! > )O( > mama to , 2yo, w/CF, and , 4yo, no CF > Quote Link to comment Share on other sites More sharing options...
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