Guest guest Posted July 23, 2003 Report Share Posted July 23, 2003 Yes it is the same Dr. Spencer. He was telling us some about his research before Abby's bronch and mentioned alpha-1 anti-tripsin deficiency - that he was doing a study on it. I remembered seeing one of your posts and told him that I'd heard about one with both CF and alpha-1. He seemed very interested and I offered to try and contact you, however that is now pointless since you already see him. He never even let on that he knew of such a patient - at least that was the impression I got. We really like him and they say he's a top-notch researcher. He really encouraged us with his enthusiasm regarding the gene therapy trial. Good luck to you. Joe > Who me? :-) My son has alpha-1-antitrypsin deficiency and CF! > > I have been no-mail, just signed back on the list yesterday. > > We see a Dr. Spencer in Gainesville...could it be the same one? He is > also very interested in both alpha-1 and CF. > > Glad to hear about Abby's good results! > )O( > mama to , 2yo, w/CF, and , 4yo, no CF > > > No Pseudomonas > > Talked to Dr. Spencer today and Abby grew no Pa from the washings > taken in the bronch. The gram neg rods were the Proteus miribilis - > low pop. and very sensitive. They meet Monday to review literature > and discuss the Proteus and how to handle it. Spencer took some of > the fluid to his lab to check neutrophils etc. and noted she had 4% > in one lung and 10% in the other, meaning she had some inflammation > but not enough to become overly concerned. We are very thankful for > the news. > > He still wants to meet the mother of the patient on this list who has > a child with the alpha tripsin thing and CF. He's doing an in- depth > study on it. > > Joe > > > Quote Link to comment Share on other sites More sharing options...
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