Re: Finally getting 2nd band after 2 1/2 months of trying.

[Guest guest]

Which CT are you going to? I remember you having an issue with

graduating at 95% but didn't realize this was all still going on.

They're behavior does seem really odd.

Jake-2 (DOCBand Grad 9/08)

Jordan-4.5

>

> I am relieved yet angry at having to fork over 3k bucks tomorrow.

I'm trying to decide if I

> should send a letter of complain to CT.

>

> On 11/7 my son was taken out of his band after only 6 weeks of

treatment. The plagio was

> almost gone but the brachy was still significant. His CI went from

98 to 95%. The tech was

> very nice but refused to give him more tim in the band or

recommend a 2nd band. I was

> not at all happy with the result. His physical therapist and Dr

agreed his head was still flat

> as did strangers " oh don't worry about his flat head, his hair

will cover it. " etc. I was not

> just being a picky mom.

>

> I felt like there was still room left in the band since it was

still a little loose so I called up

> the next day and asked to have a second opinion about continuing

treatment. The

> receptionist gave me an appointment and then canceled it the next

day telling me my

> son's case " had to be reviewed by a superior. "

>

> A person who never saw my son took over 2 weeks to get back to me

to tell me...to get a

> second opinion with the same technician I originally had a 2nd

opinion appointment with.

> I then called but they had no appointments available until almost

2 weeks later. Now a

> month went by and the band really was too small. When we finally

got in, the 2nd tech

> recommended another band. By now the exit scan we did (which had

put my son in

> hysterics) was too old. I said great let's get the band, let's set

up a scan appointment. They

> wouldn't let me set up a scanning appointment until the paperwork

was taken care of. It

> took them until January to get insurance and Dr's scripts together

(even though with the

> first band it took 2 days). To top it off my new insurance won't

pay a penny.

>

> The 2nd band will be ready 1/23. I am really upset that we lost

that time between his 7th

> and 9th month. We'll never get that head growth back and I'm

concerned we won't see the

> level of correction we could have if he had spent more time in the

first band or went

> straight into the 2nd. I have no idea why they were so

uncooperative. They were so helpful

> in the beginning. I don't know if they were trying to cover up a

mistake in the

> manufacture of the first band (it didn't correct the brachy and he

had to be taken out of

> even though it wasn't snug and very little foam had been shaved

out) or they just didn't

> want to go against the first tech's opinion. I had kid with

significant brachy, a pediatrician

> on board with banding, and was willing to pay out of pocket...what

went wrong?

> Should I complain? I'm worried that if I do they might not treat

my son well.

>

[Guest guest]

Paramus. I had only heard good things about them...in fact the only negative

thing any Dr

or person on the net seemed to say was that they were overzealous about banding

and

pressured parents. It really perplexes me as to why they didn't let me see

another tech

about a 2nd band right away or talk to me about treatment options when I was

unhappy

about him graduating so soon.

My son had developmental delay. He spent most of the last two months on his back

if I

wasn't holding him or doing tummy time. I think there has been regression on

top of all

this. He's now doing much better now (rolling and learning to sit). Part of why

I " m annoyed

is that I'm sure we would have been done with banding now if he had had a 2nd

band right

away instead we are started the process all over again at 9 months.

> >

> > I am relieved yet angry at having to fork over 3k bucks tomorrow.

> I'm trying to decide if I

> > should send a letter of complain to CT.

> >

> > On 11/7 my son was taken out of his band after only 6 weeks of

> treatment. The plagio was

> > almost gone but the brachy was still significant. His CI went from

> 98 to 95%. The tech was

> > very nice but refused to give him more tim in the band or

> recommend a 2nd band. I was

> > not at all happy with the result. His physical therapist and Dr

> agreed his head was still flat

> > as did strangers " oh don't worry about his flat head, his hair

> will cover it. " etc. I was not

> > just being a picky mom.

> >

> > I felt like there was still room left in the band since it was

> still a little loose so I called up

> > the next day and asked to have a second opinion about continuing

> treatment. The

> > receptionist gave me an appointment and then canceled it the next

> day telling me my

> > son's case " had to be reviewed by a superior. "

> >

> > A person who never saw my son took over 2 weeks to get back to me

> to tell me...to get a

> > second opinion with the same technician I originally had a 2nd

> opinion appointment with.

> > I then called but they had no appointments available until almost

> 2 weeks later. Now a

> > month went by and the band really was too small. When we finally

> got in, the 2nd tech

> > recommended another band. By now the exit scan we did (which had

> put my son in

> > hysterics) was too old. I said great let's get the band, let's set

> up a scan appointment. They

> > wouldn't let me set up a scanning appointment until the paperwork

> was taken care of. It

> > took them until January to get insurance and Dr's scripts together

> (even though with the

> > first band it took 2 days). To top it off my new insurance won't

> pay a penny.

> >

> > The 2nd band will be ready 1/23. I am really upset that we lost

> that time between his 7th

> > and 9th month. We'll never get that head growth back and I'm

> concerned we won't see the

> > level of correction we could have if he had spent more time in the

> first band or went

> > straight into the 2nd. I have no idea why they were so

> uncooperative. They were so helpful

> > in the beginning. I don't know if they were trying to cover up a

> mistake in the

> > manufacture of the first band (it didn't correct the brachy and he

> had to be taken out of

> > even though it wasn't snug and very little foam had been shaved

> out) or they just didn't

> > want to go against the first tech's opinion. I had kid with

> significant brachy, a pediatrician

> > on board with banding, and was willing to pay out of pocket...what

> went wrong?

> > Should I complain? I'm worried that if I do they might not treat

> my son well.

> >

>

[Guest guest]

I like CT again!

Some good news after a really long drive. There was an accident on the way to CT

so I

called them to tell them we were going to be late. I was told to go home if we

couldn't be

there soon as they were too busy to fit us in. I had a crying baby in my car

stuck in traffic

for 2 hours and I was about to lose it, we were being put off again. I was

almost in tears. A

scan doesn't take that long, they could be <i>that</i> busy. I called back and

this time

our new tech picked up the phone and she was so nice and said come on in. She

then

called a higher up at CT and explained what we had been going through. I got an

apology

and a reduction in price to match my old insurance that I had with the first

band and they

are going to expedite the manufacture of the new band. We were treated really

well after

that. Funny thing though, the waiting room was empty and we went in right

away...so I

have no idea why we were told to go home at first. Doesn't matter, good news is

I love the

new tech! I feel so much better.

> > >

> > > I am relieved yet angry at having to fork over 3k bucks tomorrow.

> > I'm trying to decide if I

> > > should send a letter of complain to CT.

> > >

> > > On 11/7 my son was taken out of his band after only 6 weeks of

> > treatment. The plagio was

> > > almost gone but the brachy was still significant. His CI went from

> > 98 to 95%. The tech was

> > > very nice but refused to give him more tim in the band or

> > recommend a 2nd band. I was

> > > not at all happy with the result. His physical therapist and Dr

> > agreed his head was still flat

> > > as did strangers " oh don't worry about his flat head, his hair

> > will cover it. " etc. I was not

> > > just being a picky mom.

> > >

> > > I felt like there was still room left in the band since it was

> > still a little loose so I called up

> > > the next day and asked to have a second opinion about continuing

> > treatment. The

> > > receptionist gave me an appointment and then canceled it the next

> > day telling me my

> > > son's case " had to be reviewed by a superior. "

> > >

> > > A person who never saw my son took over 2 weeks to get back to me

> > to tell me...to get a

> > > second opinion with the same technician I originally had a 2nd

> > opinion appointment with.

> > > I then called but they had no appointments available until almost

> > 2 weeks later. Now a

> > > month went by and the band really was too small. When we finally

> > got in, the 2nd tech

> > > recommended another band. By now the exit scan we did (which had

> > put my son in

> > > hysterics) was too old. I said great let's get the band, let's set

> > up a scan appointment. They

> > > wouldn't let me set up a scanning appointment until the paperwork

> > was taken care of. It

> > > took them until January to get insurance and Dr's scripts together

> > (even though with the

> > > first band it took 2 days). To top it off my new insurance won't

> > pay a penny.

> > >

> > > The 2nd band will be ready 1/23. I am really upset that we lost

> > that time between his 7th

> > > and 9th month. We'll never get that head growth back and I'm

> > concerned we won't see the

> > > level of correction we could have if he had spent more time in the

> > first band or went

> > > straight into the 2nd. I have no idea why they were so

> > uncooperative. They were so helpful

> > > in the beginning. I don't know if they were trying to cover up a

> > mistake in the

> > > manufacture of the first band (it didn't correct the brachy and he

> > had to be taken out of

> > > even though it wasn't snug and very little foam had been shaved

> > out) or they just didn't

> > > want to go against the first tech's opinion. I had kid with

> > significant brachy, a pediatrician

> > > on board with banding, and was willing to pay out of pocket...what

> > went wrong?

> > > Should I complain? I'm worried that if I do they might not treat

> > my son well.

> > >

> >

>