Guest guest Posted February 1, 2002 Report Share Posted February 1, 2002 --- sunny lee wrote: <HR> <html> <div style='background-color:'><DIV> <P>Hi Sharon,</P> <P>I'm so sorry I took such a long time to reply to you but I was away for a while. & nbsp; I've been laid off for five months now and I went to visit a & nbsp;friend in & nbsp;Los Angeles & nbsp;( I live in New York City) & nbsp; to look for a job there however I realized I didn't & nbsp;have a desire to live there. & nbsp; & nbsp;Anyway, my & nbsp;remicade experience was highly successful because it worked instantly & nbsp;after the first infusion. & nbsp; This was apparent when I was able to taper down my steroid use without a hitch which I was not able to do on Methotrexate alone. & nbsp; I do not know the dosage I am on but I assume they use the guideline for Rhumatoid Arthitis patients. & nbsp; & nbsp;As far as increasing dosage, I think I've received the same & nbsp;dose but the & nbsp;fusion was administered in a shorter period of time & nbsp;as my body adjusted to it. & nbsp; I can give you more definitive answers & nbsp;later because I am & nbsp;scheduled for an appointment tomorrow.</P> <P>Sunny & nbsp; & nbsp; & nbsp;<BR><BR></P></DIV> Wow! Don't know what all this weird formatting is about. Your letter was perfect, but when I go to " reply " this is what comes up. Anyway, thanks for the information, Sunny. It seems as if you are having great success on Remicade. That is encouraging, even though my saga seems to be different. My rheumy wants me to keep trying it, but at an increased dosage, and with only 4 weeks between infusions. So, I'll try,(if our HMO will keep approving it) and hope for the best. So glad it is helping you so much. I'll bet it is good to be home. Hope you find the perfect job! Love, Sharon <DIV></DIV> & gt; Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2002 Report Share Posted February 3, 2002 Hey there Sharon, I just wanted to update you on the dose I am on. I started out on 160/kg and been on 165/kg ever since. I don't know if that helps you out in anyway. I hope Remicade works out for you. I will keep you in my prayers. Always, Sunny >From: Sharon King >Reply-To: Rpolychondritis >To: Rpolychondritis >Subject: Re: Remicade/Sunny >Date: Fri, 1 Feb 2002 15:47:25 -0800 (PST) > > >--- sunny lee wrote: > > > > > > Hi Sharon,> I'm so sorry I took such a long time to reply to >you but I was away for a while. I've been laid >off for five months now and I went to visit >a friend in Los Angeles ( I live in New >York City) to look for a job there however I >realized I didn't have a desire to live >there. Anyway, my remicade experience >was highly successful because it worked >instantly after the first infusion. This >was apparent when I was able to taper down my steroid >use without a hitch which I was not able to do on >Methotrexate alone. I do not know the dosage I >am on but I assume they use the guideline for >Rhumatoid Arthitis patients. As far as >increasing dosage, I think I've received the >same dose but the fusion was administered in >a shorter period of time as my body adjusted to >it. I can give you more definitive >answers later because I am scheduled for an >appointment tomorrow. > Sunny > >Wow! Don't know what all this weird formatting is >about. Your letter was perfect, but when I go to >"reply" this is what comes up. > >Anyway, thanks for the information, Sunny. It seems >as if you are having great success on Remicade. That >is encouraging, even though my saga seems to be >different. My rheumy wants me to keep trying it, but >at an increased dosage, and with only 4 weeks between >infusions. So, I'll try,(if our HMO will keep >approving it) and hope for the best. > >So glad it is helping you so much. > >I'll bet it is good to be home. Hope you find the >perfect job! > >Love, Sharon > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2002 Report Share Posted February 4, 2002 --- sunny lee wrote: <HR> <html> <div style='background-color:'><DIV> <P>Hey there Sharon,</P> <P>I just wanted to update you on the dose I am on. & nbsp; I started out on 160/kg and been on 165/kg ever since. & nbsp; I don't know if that helps you out in anyway. & nbsp; & nbsp;I hope Remicade works out for you.</P> <P>I will keep you in my & nbsp;prayers Hi Sunny and thanks for the information. My rheumy started me on 200 mg. He said that was a bit much, but since it comes in 100 mg vials he just rounded up a bit. Next time I have an infusion it is going up to 300 mg. I will also have my infusions every four weeks instead of every eight. He said that some people just produce a lot more TNF than others and he thinks that is the case with me. So, I am still hoping for the best. My next infusion is the 15th. Thanks again for sharing your information with me. Hope that you are having a wonderful day today! Are you job hunting? (YUCK!) Love, Sharon <PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU</tt> <br> <br> <tt> Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.