Guest guest Posted January 27, 2002 Report Share Posted January 27, 2002 G. and others, I have been taking Xanax (the lowest dose) morning and night. It's a mild sedative prescribed to help calm down the little muscle in my throat that makes me want to cough incessantly and that leads to respiratory distress due to my floppy, collapsing airways. I don't feel sedated or drowsy, but it may be just enough to take the edge off of any anxiety I was beginning to feel due to having two of the weirdest diseases at the same time. My pulmonologist is Korean and doesn't prescribe Eastern medicine, but we do discuss my interest in alternative treatments. He got me started on Yoga and Power Yoga and other body-mind techniques from which I find great benefits. He even provided me with a documented prescription for our hot tub due to my " serious pulmonary disease and anxiety " , and we're going to file for a medical deduction on our taxes for 2001. Now we just have to wait and see what the IRS says! Seems like there are five aspects involved in dealing with a chronic disease for which there is no cure: medical, physical, nutritional, emotional and spiritual. Most of my doctors seem to pay attention to the medical needs only. I think that's so sad. But the other four are important enough to me that I try not to let them get out of focus. Stress takes so much energy. And energy is something I don't have too much of and must conserve wisely. I'm sure you all know exactly what I mean. It just so nice to get a lot of my emotional and spiritual needs met from this group of fantastic people. Thank you all so much. My emotional and spiritual bank accounts are full with the wisdom, encouragement and kindness that each of you spend on me. Please know that I feel blessed to be a part of this support group. stress & depression > to Susiecue and others -- I'm surprised that so one seems to > mention psychotherapy as a help with this miserable disease. I found > that one-on-one therapy on dealing with chronic illness has been very > helpful. I also did some biofeedback and that got rid of > a lot of the pain. At my doctor's insistence I signed on to a > therapy group on chronic illness. I ended up so depressed because > people were whining about their bad medical news! So I left that > after three sessions but others may find such an approach helpful. > The doctor also prescribed a tiny dose of antidepressant and anti- > anxiety medication [can't take larger doses because of side effects]. > Hope this helps... > G > > > > DISCLAIMER!! > WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2002 Report Share Posted January 28, 2002 In a message dated 1/27/02 7:05:14 PM Pacific Standard Time, Bostonlizz@... writes: << Susiecue and others -- I'm surprised that so one seems to mention psychotherapy as a help with this miserable disease. I found that one-on-one therapy on dealing with chronic illness has been very helpful. I also did some biofeedback and that got rid of a lot of the pain. >> , thank you for the suggestions. Yes I too believe that it helps to talk one on one with a professional. Thanks for the suggestions that is one we might not have thought about. hugs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2002 Report Share Posted January 28, 2002 In a message dated 1/27/02 7:42:33 PM Pacific Standard Time, katdavis@... writes: << I have been taking Xanax >> , I take Xanax too and have great results. It does not effect me in any way and helps alot. I started taking Tai Chi and it has helped too. We do need some kind of energy to keep these muscles going. I have to go at a slow pace, but it does wonders for the stress. I couldn't agree more about this wonderful group filling my emotional and spirtual needs. There have been days when I don't know what I would have done without you all. And we just keep growing and growing. Thanks to you all. hugs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2002 Report Share Posted February 1, 2002 I have to write this and hope you understand. Xanax is a Bad Drug!!!!! It is very addicting and if you ever go off it you have to wean off it slowly as you can have convulsions otherwise. My mother was so addicted to it and her personality changed alot from being on it. She also slept alot. Thats all she really wanted to do when she was on that. She finally got off it and I couldnt believe the difference in her. She was My old Mom again. She since has died but Whenever I hear that drug Xanax I just have to inform people incase they are unaware of this. If you are taking it please be careful. Carol --- RCColloran@... wrote: > In a message dated 1/27/02 7:42:33 PM Pacific > Standard Time, > katdavis@... writes: > > << I have been taking Xanax >> > > , I take Xanax too and have great results. > It does not effect me in > any way and helps alot. I started taking Tai Chi > and it has helped too. We > do need some kind of energy to keep these muscles > going. I have to go at a > slow pace, but it does wonders for the stress. > > I couldn't agree more about this wonderful group > filling my emotional and > spirtual needs. There have been days when I don't > know what I would have > done without you all. And we just keep growing and > growing. Thanks to you > all. > > hugs > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2002 Report Share Posted February 1, 2002 Carol, I certainly share your concern about Xanax. Many, many years ago my mother was given Valium while going through menopause. (Xanax is part of that family). It sedated her so that she sometimes acted inebriated. When I was hospitalized last July for respiratory distress due to stirred-up inflammation from a bronchoscopy, the doctors were giving me Xanax and Ativan plus a pretty strong cough syrup cocktail! I slept for about 9 days! After my release, I told the doctors " No thanks " to their sedatives. They assured me that they were the lowest dose and were now being given to emphysema patients to calm down the little muscle that makes you cough. I now take Xanax only when I get too busy, excited or so active that I start breathing so fast that I can't get my breathing under control. (Thank goodness for pursed-lipped breathing!) But it was almost like the doctors were saying, " Go ahead, take all you want. We understand what you're going through. " I, however, took this to mean that they didn't have any faith in my ability to get better. So, I just take them if/when I need them. It's really disappointing when I am so motivated to get better that I walk 3 miles a day, lift weights, do power yoga, etc.and some doctors show such a lack of faith...maybe it's too much compassion. But I switched doctors because of it and will again. All I ask is that the doctors try to help me get better and have some faith in me. Thanks for sharing your concern. I don't want to go there! Re: stress & depression > I have to write this and hope you understand. > Xanax is a Bad Drug!!!!! > It is very addicting and if you ever go off it you > have to wean off it slowly as you can have convulsions > otherwise. > My mother was so addicted to it and her personality > changed alot from being on it. She also slept alot. > Thats all she really wanted to do when she was on > that. > She finally got off it and I couldnt believe the > difference in her. She was My old Mom again. > She since has died but Whenever I hear that drug Xanax > I just have to inform people incase they are unaware > of this. > If you are taking it please be careful. > Carol > --- RCColloran@... wrote: > > In a message dated 1/27/02 7:42:33 PM Pacific > > Standard Time, > > katdavis@... writes: > > > > << I have been taking Xanax >> > > > > , I take Xanax too and have great results. > > It does not effect me in > > any way and helps alot. I started taking Tai Chi > > and it has helped too. We > > do need some kind of energy to keep these muscles > > going. I have to go at a > > slow pace, but it does wonders for the stress. > > > > I couldn't agree more about this wonderful group > > filling my emotional and > > spirtual needs. There have been days when I don't > > know what I would have > > done without you all. And we just keep growing and > > growing. Thanks to you > > all. > > > > hugs > > > > > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 2002 Report Share Posted February 2, 2002 Carol thanks for the info on the xanax. I know it is addicting from experience. I have taken it at bedtime for over 9 years. I have never increased the dose. I can't sleep at all without it. My dr wanted me to try Ambien. So I went directly from xanax to Ambien. No one told me to wean off the xanax. BOY. did I ever have withdrawls. I called and told the dr and he put me back on it and weaned me off slowly. The bad news was I was back to not sleeping at all. No other medicine (and I've tried them all) works to let me sleep. I have an unknown sleep disorder. So......Xanax gives me at least 3 hours sleep a night and for that I am thankful. But Drs. are so unaware of how the change your meds. I usually ask, but didn't that time. You can believe me, I will always ask NOW about going on or off a drug. Thanks Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.