Guest guest Posted February 4, 2002 Report Share Posted February 4, 2002 Hi Gail, I missed you and am glad to see you back. Hoping to be at chat on Friday if my computer and Yahoo cooperate. I'm doing okay, I'm on 150mg of Cytoxan now and not flaring quite as much. Love Ya, Sandy Hi Sandy how have you been doing. Miss talking with you but I'm back now and waiting to talk to you all on the next nightly chat. Love Gail DISCLAIMER!!WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2002 Report Share Posted March 14, 2002 This is exactly what I was wondering about! I'll talk to my rheumy about it. It's just weird tho' cause it does not hurt like a flare or one of the lesions I usually get. Thanks for the response. Love, Sharon --- Sandy Catalusci wrote: > Good Morning Sharon, > > I have the same thing accross the top of my right > ear. It is always painful to the touch and sloughs > off dead skin. I was told the ear has permanent > damage. One Rheumy told me to use Zinc oinment on > the skin to protect it but that did not work, so I > just live with it. > > Sandy > > > > I have a question. I think most of you know that > my > ears are a mess. Since my third Remicade last > month, > I have not had much of a problem, and nothing I > would > term a flare. However, there is one spot (where I > have had multiple lesions) that is now just > hyperpigmented and almost continually sloughing > off > skin. It is not bleeding, or sore at all though. > I > don't understand this. Has anyone had anything > like > thisThanks, Sharon > > ===== > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2002 Report Share Posted April 9, 2002 In a message dated 4/9/02 3:55:26 PM Pacific Daylight Time, biglou5685@... writes: << I tried to send a post to Carmella but it came back undeliverable. Did your sister end up having the biopsy? Was your Mom's treatment a success? And thanks for the hugs.... >> Sandy, I sent Carmela a post and hopefully she will get it. I asked her to contact you. If my post is returned, then we will contact Heidi...she will get a hold of Carmela. LOl She can find anyone. My sisters biopsy is tomorrow and I won't be able to be there. I still have this bug and she doesn't want me there sick and doesn't want me hanging out in a hospital for 4 hours. So, i'm a little disappointed. Said it would be 3-5 days before she found out anything. My mom's biopsy was inconclusive, but they had problems getting one because she had 2 surgeries for TMJ and there was scar tissue and nerve damage from these surgeries. Not much help huh? Sorry. Know your in my prayers and I think of you all the time. Hey, maybe your drs are stitting in the corner eating Peanut Butter with Sharons. LOL hugs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2004 Report Share Posted January 1, 2004 Had to reply to this one through the post also. made a mistake asking if my husband beat me. She meant to ask did my mom's husband beat me when I left home when I was 16. Sandy/California wrote: >I'm so impressed that you were able to pack up and just go. How did >you do that? Did your husband beat you when you tried to leave? I >congratulate you on your inner strength, hearing your words gives me >little doubt that ya'll will do well. As long as you believe in >yourself. > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2004 Report Share Posted February 5, 2004 Sandy wrote: have chosen to forego using stronger drugs because my hubby and I are trying to have another baby. Dear Sandy, I just wanted to send my best wishes. I hope you get pregnant soon ( & have lots of fun in the process) & you can have a pregnancy free of pain. I just found out my sis is pregnant...she has a 4 yr. old 9 month old twins. This one was an oops. The protection didn't do the needed protecting. She had a high risk preganancy the last time & has been having a hard time being happy about it. Hugs, Deanna Tubb New Mexico PAI Rep Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2004 Report Share Posted February 21, 2004 Hi Sandy, Not too sure how you can avoid a fullblown attack, but just wanted to say i'm really sorry to hear about your mom. Take care. Sue (UK) > Message date : Feb 21 2004, 05:53 PM > From : " tazlady_sandy " > To : pancreatitis > Copy to : > Subject : need advice > Morning all, > > I need a little advice from you. I feel the beginnings of a flare up > from my pancreas. Having all the signs, symptoms and pain, nausea, > waking in the middle of the night with bad back pain. I am trying to > avoid a full blown attack sending me to the hospital. I am trying not > to be stressed out but it's a little hard because my mom passed away > last night. Does anyone have any advice as how I can possibly avoid > an attack? Would being medicated most of the time help? I know to > avoid foods right now and stick with liguids. Is there any other > advice anyone has? > > Thank you > Sandy/California > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2004 Report Share Posted March 15, 2004 I dont know if that is just a coincidence or not but funny thing to have bother us huh, the left elbow..lol. > > >Looking back over some post, Isaw that you had asked if any body had > >joint pain. My left elbow bothers me quite often. I had thought I > >banged it or something, but dont recall having done so and it > >doesn't seem to want to heal. I guessed it was my achilles elbow. > > > >This afternoon 2 of my oldest girlfriends took the long ride up to > >see me. We sat in the yard and talked and laughed and I filled > >them in. I even had some very good cake to share. It was such a > >nice day out too. We have been friends since we were 12 or so and > >the first thing they wanted to see was the peg tube in my belly. > >How's that for a funny pair. There was a gang of 7 of us and most > >of us still live in the near vacinity of one and other. We had all > >gotten together last sept. and dont see each other all that often. > >Even though we may go months with out talking when we do get > >together we can finish each other's sentences and know exactly what > >the other feels. These are my true sisters with unconditional love > >and genuine concern. And they couldn't care less that I had dishes > >in my sink and laundry in the baskets. And they loved my cake!! > >What a wonderful day i had today! I just had to tell some one. > >Chrissy > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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