Question about PICC lines and bronchospcopies

[Guest guest]

Hi all,

I have not posted to this list in a long, long time, but I have a couple of

questions now. One of my four year old identical twin sons (both of whom have

CF) was hospitalized last Tuesday for a " tune-up. " He has never been in

before, and they had to sedate him to get a PICC line in. Does anyone know if

these hurt coming out. I am so scared for him because he is so scared of being

" poked. " I was also wondering how you all felt about bronchoscopies. His twin

brother had two of them done when he was four months old because he was not

getting better while on his antibiotics. His turned out to be only staph. They

kind of tried to pressure me into getting the scope for , but I did not

feel it was necessary as they were treating him already for pseudamonas,

staph, etc. and would only be able to be 50% certain after the bronch that what

was

cultured was actually there because they had already started his antibiotics.

I was also worried about the possibilty of colonization with pseudamonas

from the bronch after reading about the problems at s Hopkins a while back.

I hope I made the right decision to not let them do it. Do you all think I

did?

Thanks,

Peggy

mom of Jonah and (4 1/2 wcf)