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Angel wrote:My question is can the pain be coming

from my pancreas even though my amylase and lipase are low?

Dear Angel,

Absolutely. If there's enough damage to the pancreas, it can't

produce the enzymes in the higher amounts it used to. It's often

called " burn out. " In my past, many docs have made the mistake of

using enzyme levels to diagnose. I've gone through a lot of

unnecesary suffering b/c of that.

I don't know where you live, but maybe someone here lives close & can

recommend a good GI doc. Having had this miserable illness for about

10 years has put me in countless situations of not being treated,

assumed to be a drug addict & /or alcoholic. In my own life, I've

found that no matter how hard I try to make someone understand how I

feel, they can't. I've said this before...it's like trying to

describe what an orgasm feels like to someone who's never experienced

one. That's why I love this group of people so much. I don't have

to put into words what I'm feeling...they've all been there. I know

it's frightening & I wish we had some magic answers. Sometimes it

seems like we've been dealt such an unfair hand. And at times, the

fear causes enough anxiety to actually make you even more ill. A lot

of the time I feel like I'm being punished b/c I'm sick. But we're

here for you so don't ever apologize for venting. Sometimes, that's

all we can do.

Please let me know what you find out & how you're doing. If there's

anything I can do (research, listen, cry with you), please don't

hesitate to ask.

With big hugs,

Deanna Tubb

New Mexico PAI Rep

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