Guest guest Posted August 7, 2003 Report Share Posted August 7, 2003 I was feeling pretty down today, I just got home from work and read this, it made me feel better. Thanks for sharing. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2003 Report Share Posted August 7, 2003 How very beautiful you are both out & especially IN. I am so pleased to know you here in cyber world- You have given us all a new pair of eyes with that lovely reflective post. Thank you sooooooo much for sharing. It helps us all during our stress in caring and loving those with CF & those who care for them, regardless of ages. LOVE is so pure & you have reminded us all about that.......... Thank you & have a wonderful day-week,I do hope he is feeling well & will even feel better :) LOVE & HUGS, grandmomBEv Thankful I have just gone to Liams bed while hes having an afternoon nap and he is so beautiful, sleeping spread out like a frog. I am so thankful for my son, at that moment I was able to forget everything about CF and the stress of it and just look at him as a beautiful pure baby. I thank God that he is in my life, I am so thankful that he is my son even if he has CF. I dont often have these times when I just can look at him for what he is, my mind is always racing and trying to think of what I can do for him or give him to make him live longer and be more healthy. I am slowly learning to Love my son out of love and not out of fear. Just wanted to share this moment of reflection. Thank you to all of you out there as well who are all searching for more for our precious children. I am so glad that Liam is able to walk, see, hear and basically do anything he wants to achieve in life, i am glad he is born in this era of time where much is avaliable to him. Its really important to look at what is good and what is well in life rather than constantly looking at what is not. proud mum to my baby boy 11 months old wcf. Also mum to my beautiful girl Lily in heaven, I am also thankful but sad that we had Lily, it was a short 8 days but very special. She was sent for reasons beyond my minds eye. EVERYTHING IN LIFE HAPPENS FOR A REASON HAPPY OR SAD I have these moments where I just get mussy and reflective, bear with me. LOL Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2003 Report Share Posted August 7, 2003 , That was beautiful!!! Sometimes everyone needs to be reminded to just enjoy our wonderful children and not always think of CF! Thank you for sharing it with us, I know I appreciated it!!! Vicki Thankful > > > I have just gone to Liams bed while hes having an afternoon nap and he is so beautiful, sleeping spread out like a frog. I am so thankful for my son, at that moment I was able to forget everything about CF and the stress of it and just look at him as a beautiful pure baby. I thank God that he is in my life, I am so thankful that he is my son even if he has CF. I dont often have these times when I just can look at him for what he is, my mind is always racing and trying to think of what I can do for him or give him to make him live longer and be more healthy. I am slowly learning to Love my son out of love and not out of fear. Just wanted to share this moment of reflection. > Thank you to all of you out there as well who are all searching for more for our precious children. > I am so glad that Liam is able to walk, see, hear and basically do anything he wants to achieve in life, i am glad he is born in this era of time where much is avaliable to him. > Its really important to look at what is good and what is well in life rather than constantly looking at what is not. > > proud mum to my baby boy 11 months old wcf. Also mum to my beautiful girl Lily in heaven, I am also thankful but sad that we had Lily, it was a short 8 days but very special. She was sent for reasons beyond my minds eye. > > EVERYTHING IN LIFE HAPPENS FOR A REASON HAPPY OR SAD > > I have these moments where I just get mussy and reflective, bear with me. LOL > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2003 Report Share Posted August 7, 2003 Oh , reading your post, specially the end brought tears to my eyes, life is indeed strange but yet so precious. Remember the movie Forest Gump, where he says life is like a box of chocolates, you never know what you are going to get. For me things happened backwards than for you, a was born so healthy, so we thought, so we loved her out of pure love, last year when she was diagnosed that feeling changed to love out of great fear, I think now we are back to our love out of pure love. Love to you and Liam, mom of a 10 wcf, Venanzio 7 nocf, Pepe 3 nocf > > > I have just gone to Liams bed while hes having an afternoon nap and he is so beautiful, sleeping spread out like a frog. I am so thankful for my son, at that moment I was able to forget everything about CF and the stress of it and just look at him as a beautiful pure baby. I thank God that he is in my life, I am so thankful that he is my son even if he has CF. I dont often have these times when I just can look at him for what he is, my mind is always racing and trying to think of what I can do for him or give him to make him live longer and be more healthy. I am slowly learning to Love my son out of love and not out of fear. Just wanted to share this moment of reflection. > Thank you to all of you out there as well who are all searching for more for our precious children. > I am so glad that Liam is able to walk, see, hear and basically do anything he wants to achieve in life, i am glad he is born in this era of time where much is avaliable to him. > Its really important to look at what is good and what is well in life rather than constantly looking at what is not. > > proud mum to my baby boy 11 months old wcf. Also mum to my beautiful girl Lily in heaven, I am also thankful but sad that we had Lily, it was a short 8 days but very special. She was sent for reasons beyond my minds eye. > > EVERYTHING IN LIFE HAPPENS FOR A REASON HAPPY OR SAD > > I have these moments where I just get mussy and reflective, bear with me. LOL > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2003 Report Share Posted August 7, 2003 I think that we all need these little moments in our days. Well like for you they only come once in a blue moon, but the important thing is that we still have them ( rare as they may be ) I lost 2 after my first son was born. I was pregnant so I am sure the magnitude of loss was not as severe but definately there. One was at 12 weeks and one at 16 weeks. Then my son Colgan who even with this I would not trade for the world. Thanks for sharing your moment with us Ashauna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2003 Report Share Posted August 7, 2003 i also had misscarriges, 3. first one was twins. then after my first son was born, i fopund out i have graves disease, which is hyperthyroid. the doctor told me, thyroid disease may have been the cause of my miscarriges. i tend to think he was right. hope all is well maureen mom of 3,, 2 with cf,, Noelle forever 20! Maureen----->-@ >From: Ashauna_and_@... >Reply-To: cfparents >To: cfparents >Subject: Re: Thankful >Date: Thu, 7 Aug 2003 23:07:16 -0500 (CDT) > >I think that we all need these little moments in our days. Well like >for you they only come once in a blue moon, but the important thing is >that we still have them ( rare as they may be ) > I lost 2 after my first son was born. I was pregnant so I am >sure the magnitude of loss was not as severe but definately there. One >was at 12 weeks and one at 16 weeks. Then my son Colgan who even with >this I would not trade for the world. > >Thanks for sharing your moment with us >Ashauna > > > >------------------------------------------- >The opinions and information exchanged on this list should IN NO WAY >be construed as medical advice. > >PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR >TREATMENTS. > >------------------------------------ > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2003 Report Share Posted August 7, 2003 Yes I remember the movie! It is really important to love them like they have not got an illness and I find it hard. Because I am a herbalist I find that drawing the line between work and Liams life is very hard, when I read papers and information my mind always goes back to CF and Liam, i feel like I am switched on all the time. My husband keeps telling me to switch off but its hard when i see Liam all day I often see CF. I am getting much better though, my hubby is brilliant at getting me to talk it out, about my fears of him dying and things like that. I dont want this disease to eat me up and consume me so I am trying to remind myself all the time that he is my strong little boy who just wants to learn and love and live life every day even if he has CF, he isnt sick he just has something more to live with than others. I was reading a site last night on the web and I just thought I am so gald Liam dosent have cancer or leukemia or brain tumours etc. Some of these poor children and their families. I am so blessed. I am sure that we shape our children by our belief systems, our emotions of fear or faith, our words of love or hate, our attitude of accepting CF=death or not believing this and pushing away the fears that bind us and make us accept the statitisics. I really believe that words are powerful, I tell Liam every night real positive stuff for his life, so he grows up knowing he is strong not weak, healthy and not sick. Well thats all from me I have to go and cook dinner mum to baby Liam 11 months old with a zest for life Re: Thankful > Oh , reading your post, specially the end brought tears to my > eyes, life is indeed strange but yet so precious. Remember the movie > Forest Gump, where he says life is like a box of chocolates, you > never know what you are going to get. > For me things happened backwards than for you, a was born so > healthy, so we thought, so we loved her out of pure love, last year > when she was diagnosed that feeling changed to love out of great > fear, I think now we are back to our love out of pure love. > > Love to you and Liam, > > mom of a 10 wcf, Venanzio 7 nocf, Pepe 3 nocf > > > > > > > > > > > > > I have just gone to Liams bed while hes having an afternoon nap and > he is so beautiful, sleeping spread out like a frog. I am so > thankful for my son, at that moment I was able to forget everything > about CF and the stress of it and just look at him as a beautiful > pure baby. I thank God that he is in my life, I am so thankful that > he is my son even if he has CF. I dont often have these times when I > just can look at him for what he is, my mind is always racing and > trying to think of what I can do for him or give him to make him live > longer and be more healthy. I am slowly learning to Love my son out > of love and not out of fear. Just wanted to share this moment of > reflection. > > Thank you to all of you out there as well who are all searching for > more for our precious children. > > I am so glad that Liam is able to walk, see, hear and basically do > anything he wants to achieve in life, i am glad he is born in this > era of time where much is avaliable to him. > > Its really important to look at what is good and what is well in > life rather than constantly looking at what is not. > > > > proud mum to my baby boy 11 months old wcf. Also mum to my > beautiful girl Lily in heaven, I am also thankful but sad that we had > Lily, it was a short 8 days but very special. She was sent for > reasons beyond my minds eye. > > > > EVERYTHING IN LIFE HAPPENS FOR A REASON HAPPY OR SAD > > > > I have these moments where I just get mussy and reflective, bear > with me. LOL > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2003 Report Share Posted August 8, 2003 , I agree that what we think and what we say is very powerful. One of the techniques that I use when I say my special thoughts is to see whoever I am thinking about very healthy and full of life. Liam will grow up believing that he can do anything he is set out to do. Love and good vibes your way!! mom of a 10 wcf, Venanzio 7 nocf, Pepe 3 nocf > > > > > > > > > I have just gone to Liams bed while hes having an afternoon nap and > > he is so beautiful, sleeping spread out like a frog. I am so > > thankful for my son, at that moment I was able to forget everything > > about CF and the stress of it and just look at him as a beautiful > > pure baby. I thank God that he is in my life, I am so thankful that > > he is my son even if he has CF. I dont often have these times when I > > just can look at him for what he is, my mind is always racing and > > trying to think of what I can do for him or give him to make him live > > longer and be more healthy. I am slowly learning to Love my son out > > of love and not out of fear. Just wanted to share this moment of > > reflection. > > > Thank you to all of you out there as well who are all searching for > > more for our precious children. > > > I am so glad that Liam is able to walk, see, hear and basically do > > anything he wants to achieve in life, i am glad he is born in this > > era of time where much is avaliable to him. > > > Its really important to look at what is good and what is well in > > life rather than constantly looking at what is not. > > > > > > proud mum to my baby boy 11 months old wcf. Also mum to my > > beautiful girl Lily in heaven, I am also thankful but sad that we had > > Lily, it was a short 8 days but very special. She was sent for > > reasons beyond my minds eye. > > > > > > EVERYTHING IN LIFE HAPPENS FOR A REASON HAPPY OR SAD > > > > > > I have these moments where I just get mussy and reflective, bear > > with me. LOL > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2003 Report Share Posted August 8, 2003 That was a beautiful e-mail..Reminded me of Dorothy in the Wizard of Oz at the end when she awakens after the storm........ I think for many of us thats the problem - we awoke after the storm and know whats impt. and whats not...but most people don't so its a difficult world to live in. The knowledge and wisdom I have achieved cannot be taught, bought or learned. I wouldn't wish it on anybody yet I am a better person...albeit a sad, tired and cranky one! I am stepping down from my pulpit for tonight..........LOL LOL....my luck I would trip and break my good arm........ Rosemary in NY with 3 children (13, 10.6 and 6.6) with CF. I have a dog named TOBI and have coined the phrase " BREATHE DAMMIT " Quote Link to comment Share on other sites More sharing options...
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