Re: Ashauna/test for reflux

[Guest guest]

There is also the PH probe to test for reflux. had this. The probe goes

up the nose and down the throat like an ng tube. it sits above the valve at the

end of the esophagus and measures how high up the acids are coming or if they

are coming at all. It doesn't interfere with eating or breathing. There is

also a milk scan but if you have a picky eater then this probably won't work

because they have to drink a really thick, nasty concoction- then they are put

under this x-ray like device that shows the stomach and how fast it is emptying

and if the stuff is coming back up. We tried this with but it didn't

work well because she was spitting and spraying the stuff out all over me, the

nurses, the other people in the room as well as the equipment - she was like a

little fountain of thick stinky stuff (lol).

Also, apple juice can cause gas. pear juice doesn't though- I used the Gerber

pear juice when was little because with her delicate digestive system,

the apple juice bothered her (even though she loved it)

Re: introduction and comments on diet in cf

> Questions>>>>

>

> When did you start feeding Emma adult table foods? My son wants

> everything that I eat but I am scared to give it to him. I am afraid

> because he was born with meconium peritinitis and had to have an

> operation. Perhaps you have talked with doc's about reactions with

> digestion.

> Colgan will eat sometimes but very little and with huge fight

> usually. I cry sometimes because I wonder if it is hurting him and this

> is the way he lets me know.

> He also vomits very easily if he eats even one bite to much. I

> have been giving him 4 oz bottles now since he was 2 months old and that

> is all that he can handle. Only in the morning and right before bed

> will he take 5 1/2 ounces. There definitely is a real science to all of

> these babies and their eating habits.

> You said you use the blender. I have tried that and for some

> reason it is really not getting it soft enough. Perhaps my blender is

> not working well enough. Did you encounter this?

> Also was your daughter tested for reflux and does she take meds at all?

> My son has not been tested yet, but they just keep saying that he has it

> and have him on the meds for this.

> Somedays I really just want to scream. I am so weary from fighting what

> has so far been a loosing battle.

> I am also scared that they will put him on tube feedings. I

> know that my doc is getting concerned. I asked him to give me a little

> more time to work with him before we did this but I just don't know if I

> am doing him more harm. Was this a difficult step for you and Emma?

> Well. I am sure that I have drained you for the evening. Thank you for

> everything

>

> Ashauna mother of 2 ( 5 yr old w/ocf and 7 month old w/cf

>

>

>

> -------------------------------------------

> The opinions and information exchanged on this list should IN NO WAY

> be construed as medical advice.

>

> PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

TREATMENTS.

>

> ------------------------------------

>

>

>

[Guest guest]

,

Is this the test where they are in hospital for duration? I believe

this is the one they would like to try with Colgan. Boy I have got to

get more technical. At times I feel like a babbeling idiot. I am sure

it will come with time.

I don't imagine mine would do to hot with the concoction either.

I do give pear juice as well. I have noticed the same with Colgan. he

has a lot of bowel mov. after apple.

Thanks

Ashauna

[Guest guest]

Ashauna,

We did the ph probe as an inpatient because was already in the

hospital for an infection. I was told that they could do it inpatient or

outpatient. but that would really be a pain to go in 2 days in a row-also the

probe thing is hooked up to a little monitor that is about the size of a little

transistor radio and I'm sure it must be costly. Some hospitals may only do it

inpatient. The milk scan was done outpatient. they tried this one first, before

she had the ph probe.

My mom tried to give every one of her children (4 of us) apple juice as little

ones and we all got terrible gas from it too. I tried it with and after

she would drink it she would start with gas pains. pulling those skinny little

legs up so tight and screaming. I gave it up after the first few tries. Even

now I notice more gas after she drinks it- though not as painful. She really

loves it though. I don't see as much of a problem when it is mixed with other

juices.

Re: Ashauna/test for reflux

,

Is this the test where they are in hospital for duration? I believe

this is the one they would like to try with Colgan. Boy I have got to

get more technical. At times I feel like a babbeling idiot. I am sure

it will come with time.

I don't imagine mine would do to hot with the concoction either.

I do give pear juice as well. I have noticed the same with Colgan. he

has a lot of bowel mov. after apple.

Thanks

Ashauna

[Guest guest]

,

The first one that you described is the one that I have a friend

here in Florida who her son is just a little one as well. Not cf but

have not found positve DX of anything. Anyways that is what she

expained to me happened to her son. We actually see the same GI doc.

May have to stay inpatient though. He is very old fashioned hard headed

and thinks he is right about everything so you just can't argue. He

feels that hospital is the only place anyone needs to be treated. Some

times I think I might hall off and slug him. No just kidding but man

for such a smart man he is horrible with people.

Hope that you and yours are doing well tonight

Ashauna