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Re: Happy Valentines Day

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Happy Valentines Day to all,

I wanted to get a note off to everyone and hope they all had as good a day as

possible. I am a few days out of an attack and feeling much better. And,

thank goodness, because dear Tull is down with a Deep Vein Thrombosis, which is

a

blood clot in his upper leg...OUCH. He is taking Lovonox Injections and

Coumadin. He is in a lot of pain but gradually getting better. I kept telling

him to

quit taking marathon road trips and to stop every hour and walk around to

maintain his circulation! He should be better in a few days.

I am delighted to see so many new subscribers. Many may not be aware of how

many members there are everyday, as most of them are simply " lurking " reading

posts and trying to figure out what in the world happened to them since their

doctor told them they have Pancreatitis. I really appreciate the number of you

that have volunteered to answer inquiries and do community outreach projects.

God bless you all.

Well, my mailbox is beginning to run over with requests for information

regarding the 2004 5th Annual Symposium on Pancreatitis! As every year has

developed into great events, I have no doubt that you all will be find this

year's

Symposium one of tremendous clinical information, but also an increased

opportunity for networking, sharing your story, and social activities. With the

tremendous amounts of topics for speakers at a Symposium on Pancreatitis, we

could

easily meet nonstop for a semester. We only have two days, however, and making

decisions on what would benefit the participants the most is a challenge. I

know from the past four years that I have left with a need to spend more time

with the people who make up this organization, so some of the slots for speakers

have been delegated to you. As soon as the dates are secured, I will post them.

Don't forget to go visit the PAI Memorial to honor those who have passed in

their journey with this disease. I spent a long time talking to Bob's wife in

the UK the other day. Many of you may know that Bob recently died from

complications received during a procedure. She will be attending the symposium

and

telling his story. I commend her bravery in taking on the system, and making a

decision to dedicate her days as an advocate for persons with Pancreatitis. It

is sometimes difficult for me to work with families who have lost loved ones to

Pancreatitis because I am so close to the situation. For all it matters, I

could have been the one who died. I choose to help in their bereavement, as I am

grateful to have the opportunity to do so. After my friend Laurie died from

Pancreatitis, which was actually before I was ever diagnosed, I saw her suffer

so much, primarily the toll loneliness took on her soul. This is really the

basis for the PAI, that no one who is challenged with Pancreatitis should do so

alone. It is too hard. It just isn't right.

I am in awe to see how a little compassion can go tenfold, around the globe

and back. One person helping another person in an attempt to find some

semblance of quality of life. And, each and every one of you, are doing this.

That

means so much to me. Thank you.

Peace, love, light,

Karyn E. , RN

Executive Director, PAI

http://www.pancassociation.org

Pancreatitis Association International

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Karyn,

We would not be here if it was not for you and your courage to make an impact

on the life of others. We, your voices, thank you,,,,,

Lily

Re: Happy Valentines Day

Happy Valentines Day to all,

I wanted to get a note off to everyone and hope they all had as good a day as

possible. I am a few days out of an attack and feeling much better. And,

thank goodness, because dear Tull is down with a Deep Vein Thrombosis, which

is a

blood clot in his upper leg...OUCH. He is taking Lovonox Injections and

Coumadin. He is in a lot of pain but gradually getting better. I kept telling

him to

quit taking marathon road trips and to stop every hour and walk around to

maintain his circulation! He should be better in a few days.

I am delighted to see so many new subscribers. Many may not be aware of how

many members there are everyday, as most of them are simply " lurking " reading

posts and trying to figure out what in the world happened to them since their

doctor told them they have Pancreatitis. I really appreciate the number of you

that have volunteered to answer inquiries and do community outreach projects.

God bless you all.

Well, my mailbox is beginning to run over with requests for information

regarding the 2004 5th Annual Symposium on Pancreatitis! As every year has

developed into great events, I have no doubt that you all will be find this

year's

Symposium one of tremendous clinical information, but also an increased

opportunity for networking, sharing your story, and social activities. With

the

tremendous amounts of topics for speakers at a Symposium on Pancreatitis, we

could

easily meet nonstop for a semester. We only have two days, however, and making

decisions on what would benefit the participants the most is a challenge. I

know from the past four years that I have left with a need to spend more time

with the people who make up this organization, so some of the slots for

speakers

have been delegated to you. As soon as the dates are secured, I will post

them.

Don't forget to go visit the PAI Memorial to honor those who have passed in

their journey with this disease. I spent a long time talking to Bob's wife in

the UK the other day. Many of you may know that Bob recently died from

complications received during a procedure. She will be attending the symposium

and

telling his story. I commend her bravery in taking on the system, and making a

decision to dedicate her days as an advocate for persons with Pancreatitis. It

is sometimes difficult for me to work with families who have lost loved ones

to

Pancreatitis because I am so close to the situation. For all it matters, I

could have been the one who died. I choose to help in their bereavement, as I

am

grateful to have the opportunity to do so. After my friend Laurie died from

Pancreatitis, which was actually before I was ever diagnosed, I saw her suffer

so much, primarily the toll loneliness took on her soul. This is really the

basis for the PAI, that no one who is challenged with Pancreatitis should do

so

alone. It is too hard. It just isn't right.

I am in awe to see how a little compassion can go tenfold, around the globe

and back. One person helping another person in an attempt to find some

semblance of quality of life. And, each and every one of you, are doing this.

That

means so much to me. Thank you.

Peace, love, light,

Karyn E. , RN

Executive Director, PAI

http://www.pancassociation.org

Pancreatitis Association International

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