Guest guest Posted February 14, 2004 Report Share Posted February 14, 2004 Happy Valentines Day to all, I wanted to get a note off to everyone and hope they all had as good a day as possible. I am a few days out of an attack and feeling much better. And, thank goodness, because dear Tull is down with a Deep Vein Thrombosis, which is a blood clot in his upper leg...OUCH. He is taking Lovonox Injections and Coumadin. He is in a lot of pain but gradually getting better. I kept telling him to quit taking marathon road trips and to stop every hour and walk around to maintain his circulation! He should be better in a few days. I am delighted to see so many new subscribers. Many may not be aware of how many members there are everyday, as most of them are simply " lurking " reading posts and trying to figure out what in the world happened to them since their doctor told them they have Pancreatitis. I really appreciate the number of you that have volunteered to answer inquiries and do community outreach projects. God bless you all. Well, my mailbox is beginning to run over with requests for information regarding the 2004 5th Annual Symposium on Pancreatitis! As every year has developed into great events, I have no doubt that you all will be find this year's Symposium one of tremendous clinical information, but also an increased opportunity for networking, sharing your story, and social activities. With the tremendous amounts of topics for speakers at a Symposium on Pancreatitis, we could easily meet nonstop for a semester. We only have two days, however, and making decisions on what would benefit the participants the most is a challenge. I know from the past four years that I have left with a need to spend more time with the people who make up this organization, so some of the slots for speakers have been delegated to you. As soon as the dates are secured, I will post them. Don't forget to go visit the PAI Memorial to honor those who have passed in their journey with this disease. I spent a long time talking to Bob's wife in the UK the other day. Many of you may know that Bob recently died from complications received during a procedure. She will be attending the symposium and telling his story. I commend her bravery in taking on the system, and making a decision to dedicate her days as an advocate for persons with Pancreatitis. It is sometimes difficult for me to work with families who have lost loved ones to Pancreatitis because I am so close to the situation. For all it matters, I could have been the one who died. I choose to help in their bereavement, as I am grateful to have the opportunity to do so. After my friend Laurie died from Pancreatitis, which was actually before I was ever diagnosed, I saw her suffer so much, primarily the toll loneliness took on her soul. This is really the basis for the PAI, that no one who is challenged with Pancreatitis should do so alone. It is too hard. It just isn't right. I am in awe to see how a little compassion can go tenfold, around the globe and back. One person helping another person in an attempt to find some semblance of quality of life. And, each and every one of you, are doing this. That means so much to me. Thank you. Peace, love, light, Karyn E. , RN Executive Director, PAI http://www.pancassociation.org Pancreatitis Association International Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2004 Report Share Posted February 15, 2004 Karyn, We would not be here if it was not for you and your courage to make an impact on the life of others. We, your voices, thank you,,,,, Lily Re: Happy Valentines Day Happy Valentines Day to all, I wanted to get a note off to everyone and hope they all had as good a day as possible. I am a few days out of an attack and feeling much better. And, thank goodness, because dear Tull is down with a Deep Vein Thrombosis, which is a blood clot in his upper leg...OUCH. He is taking Lovonox Injections and Coumadin. He is in a lot of pain but gradually getting better. I kept telling him to quit taking marathon road trips and to stop every hour and walk around to maintain his circulation! He should be better in a few days. I am delighted to see so many new subscribers. Many may not be aware of how many members there are everyday, as most of them are simply " lurking " reading posts and trying to figure out what in the world happened to them since their doctor told them they have Pancreatitis. I really appreciate the number of you that have volunteered to answer inquiries and do community outreach projects. God bless you all. Well, my mailbox is beginning to run over with requests for information regarding the 2004 5th Annual Symposium on Pancreatitis! As every year has developed into great events, I have no doubt that you all will be find this year's Symposium one of tremendous clinical information, but also an increased opportunity for networking, sharing your story, and social activities. With the tremendous amounts of topics for speakers at a Symposium on Pancreatitis, we could easily meet nonstop for a semester. We only have two days, however, and making decisions on what would benefit the participants the most is a challenge. I know from the past four years that I have left with a need to spend more time with the people who make up this organization, so some of the slots for speakers have been delegated to you. As soon as the dates are secured, I will post them. Don't forget to go visit the PAI Memorial to honor those who have passed in their journey with this disease. I spent a long time talking to Bob's wife in the UK the other day. Many of you may know that Bob recently died from complications received during a procedure. She will be attending the symposium and telling his story. I commend her bravery in taking on the system, and making a decision to dedicate her days as an advocate for persons with Pancreatitis. It is sometimes difficult for me to work with families who have lost loved ones to Pancreatitis because I am so close to the situation. For all it matters, I could have been the one who died. I choose to help in their bereavement, as I am grateful to have the opportunity to do so. After my friend Laurie died from Pancreatitis, which was actually before I was ever diagnosed, I saw her suffer so much, primarily the toll loneliness took on her soul. This is really the basis for the PAI, that no one who is challenged with Pancreatitis should do so alone. It is too hard. It just isn't right. I am in awe to see how a little compassion can go tenfold, around the globe and back. One person helping another person in an attempt to find some semblance of quality of life. And, each and every one of you, are doing this. That means so much to me. Thank you. Peace, love, light, Karyn E. , RN Executive Director, PAI http://www.pancassociation.org Pancreatitis Association International Quote Link to comment Share on other sites More sharing options...
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