Guest guest Posted August 10, 2003 Report Share Posted August 10, 2003 speak up and tell the doctors what you want for your child. thats what they are for as well as guiding you along the way monique Re: GALE HARRIS > > > > I live in , which is just north of Columbus. Do you use the > > Columbus CF Care Center? > > > > Gale > > > > > Hello i am from Ohio also. I live about 30 min form Boardman and 40 > > > min ffrom Youngstown. Do you know where those place are.? > > > > > > > > ------------------------------------------- > > The opinions and information exchanged on this list should IN NO WAY > > be construed as medical advice. > > > > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR > TREATMENTS. > > > > ------------------------------------ > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2003 Report Share Posted August 10, 2003 Best wishes to her with the testing. I am a grandmom too . I don't go to many visits. She doesn't have too many anymore, but when she was a wee one, I only went if I was in town. I live in different state. I am sure you get the reports too . best you for staying involved They need all the support from all the family members. Best wishes to you LOVE & HUGS, grandmoMBEV Re: Re: GALE HARRIS 19 months Re: GALE HARRIS > I don't usually go with Abby. I am Abby's grandma. Abby has a > swallow test tomorrow. Abby's primary CF doctor is also Dr. Schell. > > How old is Henry? > > Gale > > > > > > Hello i am from Ohio also. I live about 30 min form Boardman > and 40 > > > > min ffrom Youngstown. Do you know where those place are.? > > > > > > > > > > > > ------------------------------------------- > > > The opinions and information exchanged on this list should IN NO > WAY > > > be construed as medical advice. > > > > > > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR > > TREATMENTS. > > > > > > ------------------------------------ > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2003 Report Share Posted August 10, 2003 We take Henry to the CF Clinic in Columbus, OH at Children's Hospital. This summer they have seemed slow to get to us and rushed during our appointments. Also, we used to see Dr. Schell and Dr. fairly regularly. We have been only been seeing Dr. Sheikh ? sp? Last visit, for example, he didn't listen to Henry's lungs. I think he got distracted because he had to do the throat culture and forgot. And he was the only one we saw. No nurse, no dietician. What have your experiences been? Robbins rrobbins9058@... Re: GALE HARRIS > I live in , which is just north of Columbus. Do you use the > Columbus CF Care Center? > > Gale > > > Hello i am from Ohio also. I live about 30 min form Boardman and 40 > > min ffrom Youngstown. Do you know where those place are.? > > > > ------------------------------------------- > The opinions and information exchanged on this list should IN NO WAY > be construed as medical advice. > > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. > > ------------------------------------ > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2003 Report Share Posted August 10, 2003 If ANY doc has a cruddy bedside manner say so to another doc (preferably one who is more senior) or to every doc. I have had this experience and am glad that I told those who could do something about it. The Cruddy bedside manner doc that I dealt with is now very good with the parents AND the kids! Even if you never have to deal with this guy again, you are helping another patient's parents by saying something. Just my 2 cents. Re: GALE HARRIS I believe that you can request which doctor you want to see, but they work as a team. They meet once a week to discuss thier patients. Dr. Sheik (sp?) doesn't have a very good " bed side manor " . He was the doctor the told us that Abby would need to have part of her lung removed. He said it very bluntly and we had no idea that it was coming. The other doctors are a little more careful not to upset the parents. I'm glad that the doctors work as a team. Gale > > > > > Hello i am from Ohio also. I live about 30 min form Boardman and 40 > > > > > min ffrom Youngstown. Do you know where those place are.? > > > > > > > > > > > > > > > > ------------------------------------------- > > > > The opinions and information exchanged on this list should IN NO WAY > > > > be construed as medical advice. > > > > > > > > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR > > > TREATMENTS. > > > > > > > > ------------------------------------ > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2003 Report Share Posted August 10, 2003 19 months Re: GALE HARRIS > I don't usually go with Abby. I am Abby's grandma. Abby has a > swallow test tomorrow. Abby's primary CF doctor is also Dr. Schell. > > How old is Henry? > > Gale > > > > > > Hello i am from Ohio also. I live about 30 min form Boardman > and 40 > > > > min ffrom Youngstown. Do you know where those place are.? > > > > > > > > > > > > ------------------------------------------- > > > The opinions and information exchanged on this list should IN NO > WAY > > > be construed as medical advice. > > > > > > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR > > TREATMENTS. > > > > > > ------------------------------------ > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2003 Report Share Posted August 10, 2003 Thanks for the encouragement. If you knew how great the clinics have been, (are) I am mostly commenting that it is odd. I don't know what is happening. Maybe they are understaffed? for summer? We didn't attend last summer till the end, that was when Henry was diagnosed. But you are right, we should speak up. We may see if we can request the doctor. Re: GALE HARRIS > > > > > > > I live in , which is just north of Columbus. Do you use the > > > Columbus CF Care Center? > > > > > > Gale > > > > > > > Hello i am from Ohio also. I live about 30 min form Boardman and 40 > > > > min ffrom Youngstown. Do you know where those place are.? > > > > > > > > > > > > ------------------------------------------- > > > The opinions and information exchanged on this list should IN NO WAY > > > be construed as medical advice. > > > > > > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR > > TREATMENTS. > > > > > > ------------------------------------ > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2003 Report Share Posted August 11, 2003 I FEEL THE SAME WAY ABOUT MY NURTITIONIST, I ALWAYS FEEL LIKE THIS PERSON IS BELITTLING ME. HOWEVER I THINK SHE IS THE ONLY ONE. KAREN CODY 16 MONTHS W/CF Re: GALE HARRIS I believe that you can request which doctor you want to see, but they work as a team. They meet once a week to discuss thier patients. Dr. Sheik (sp?) doesn't have a very good " bed side manor " . He was the doctor the told us that Abby would need to have part of her lung removed. He said it very bluntly and we had no idea that it was coming. The other doctors are a little more careful not to upset the parents. I'm glad that the doctors work as a team. Gale > > > > > Hello i am from Ohio also. I live about 30 min form Boardman and 40 > > > > > min ffrom Youngstown. Do you know where those place are.? > > > > > > > > > > > > > > > > ------------------------------------------- > > > > The opinions and information exchanged on this list should IN NO WAY > > > > be construed as medical advice. > > > > > > > > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR > > > TREATMENTS. > > > > > > > > ------------------------------------ > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2003 Report Share Posted August 12, 2003 If there is another nutritionist ask to have that person instead! and tell the doc how you are being spoken to-they don't want you to be treated badly. Re: GALE HARRIS I believe that you can request which doctor you want to see, but they work as a team. They meet once a week to discuss thier patients. Dr. Sheik (sp?) doesn't have a very good " bed side manor " . He was the doctor the told us that Abby would need to have part of her lung removed. He said it very bluntly and we had no idea that it was coming. The other doctors are a little more careful not to upset the parents. I'm glad that the doctors work as a team. Gale > > > > > Hello i am from Ohio also. I live about 30 min form Boardman and 40 > > > > > min ffrom Youngstown. Do you know where those place are.? > > > > > > > > > > > > > > > > ------------------------------------------- > > > > The opinions and information exchanged on this list should IN NO WAY > > > > be construed as medical advice. > > > > > > > > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR > > > TREATMENTS. > > > > > > > > ------------------------------------ > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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