Guest guest Posted August 8, 2003 Report Share Posted August 8, 2003 Have you actually done any research on glutathione? I researched it for 4 months before deciding to start my son on oral glutathione. I never found any information indicating this natural substance could cause any harm to my child. Glutathione is not a drug. It is a substance that is produced within cells in the body, but gets trapped inside the cells when you have CF. I am a very conservative person, and not one to hastily make a decision about anything. After exhaustively researching this subject, and even praying about it, I felt with every fiber of my being that this was the right thing to do for my child. My son is 5 and I cautiously started him on low doses of oral glutathione 6 weeks ago. I purposefully said nothing about the glutathione to his preschool teacher. She is very good about communicating with me about how my son is doing, so I knew if anything changed(good or bad), she would tell me. Two weeks after starting glutathione, she made a comment to me that was doing " so-o-o good " . She said he had started cleaning his plate at lunch and he just seemed to be feeling really good. He was participating more in classroom activities and just seemed more outgoing. My child can sometimes be rather sullen and withdrawn, but not anymore. He smiles more, he has a better appetite, he has more color in his cheeks, and he just flat out looks better. Those dark circles under his eyes are gone. I feel glutathione is by far safer than some of the powerful antibiotics my son has been on like Cipro and TOBI. I am sure you have read the full prescribing information for antibiotics like these. Possible side effects: permanent hearing loss, kidney damage, liver damage, tendon damage, seizures, severe allergic reactions, etc… Not to mention eventually developing drug resistant strains of bacteria. That to me is really scary. I am certain my son will need fewer antibiotics thanks to glutathione. His cough is gone completely. GLUTATHIONE = YES WAY!! (mom to 5wcf & Ross 9nocf) > There is no way I would give this to my son. Part of the FDA > approval process for drugs includes dosages, side effcts, long term > exposure, and so on. The tests run in Salt Lake City came no where > near meeting my requirements for an approved drug treatment. ALWAYS > CONSULT WITH YOUR DOCTOR BEFORE CHANGING YOUR MEDICINES AND HEALTH > CARE. > Dan (dad of 17cf, 14nocf, hubby to Kathy) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2003 Report Share Posted August 9, 2003 Hi , sounds reasonable to me. Arguing that something that isn't FDA approved isn't safe is ridiculous. Logically you would have to avoid all kind of food then, since none of that has FDA approval. On the other hand the lungs of our kids are fragile and scientists know close to nothing about the biochemistry in the CF lung. So one has to be very careful. If something goes wrong while using alternative medicine you have an awfully bad hand of cards :-(( You seem to know that. That's great that your son is doing so well with GSH! Peace Torsten, dad of Fiona wcf and Sebastian wocf, all of us suffering from the most extreme heatwave since 1976 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2003 Report Share Posted August 9, 2003 Hi Bev! The thing that really bothers our doctor is the source of the GSH. He says supplements in the USA are not regulated, there is no really FDA control. So manufactures can just about mix them with anything they want to, so purity and safety issues are a big concern. mom of a 10 wcf, Venanzio 7 nocf, Pepe 3 nocf > > That is true according to the results in some of the studies. There have > been many other folks who have done their study of their own & recorded > stats. They also shared them with other folks . So they do have allot of > actually info from folks....Dr Bishop was really very clear on the study > results that did. He is going to be presenting at the No Amer. CF Conf this > October in CA. It should be VERY interesting. AND I actually understood him > :) > I also think that there are several univ./researchers who are extremely > interested in this. ---YEAH. Natural supplements? :):0 > LOVE & HUGS > grandmomBEV > > Re: Re: Glutathione = NO WAY > > > Hi, > When I e-mailed Hudson about this she said that the oral GSH could > help with digestive issues. Her kids are on both the oral and inhaled GSH > and they have been able to reduce enzyme use from the max to just one or two > caps. I think the oral could help to unblock the pancreas thus the > reduction in enzymes. It would seem that it would be plausible anyway. > > Re: Re: Glutathione = NO WAY > > > I discussed this particular type of therapy with our doctor just last week > at > our regular clinic visit. He is very open minded. He told me that the > only > way you could get the desired results that Hudson is getting with > her > children is to get this in aerosol form. You cannot purchase aerosol form > of > this drug, but you can buy the tablet form. He said that in tablet form > the > necessary ingredients break down too early in the body to be effective. > He did > go on to say that he did not know of any harmful side effects of taking > this > particular medicine in pill form, but he also did not know of any way it > could > be beneficial. He said we could try it if we wanted and see what > happened. > Does anyone have any thoughts on this? Just wondering. > > Sue Pettit > mom to (16 wocf), (12 wocf), and (11 wcf) diagnosed > at > 8 days of age at LeBonheur Childrens Medical Center in Memphis, Tennessee > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2003 Report Share Posted August 9, 2003 Torsten, I saw on the paper where it is hotter in Europe than here in Memphis, usually we are in the high 90's at this time of the year, very humid, too, but is barely 85 today. This coming week is Elvis week so we get a lot of people from all over the world, specialy Europe, great timing. Hope you get some cool relief!! mom of a 10 wcf, Venanzio 7 nocf, Pepe 3 nocf > Hi , > > sounds reasonable to me. > > Arguing that something that isn't FDA approved isn't safe is > ridiculous. Logically you would have to avoid all kind of food then, > since none of that has FDA approval. On the other hand the lungs of > our kids are fragile and scientists know close to nothing about the > biochemistry in the CF lung. So one has to be very careful. If > something goes wrong while using alternative medicine you have an > awfully bad hand of cards :-(( You seem to know that. > > That's great that your son is doing so well with GSH! > > Peace > Torsten, dad of Fiona wcf and Sebastian wocf, all of us suffering > from the most extreme heatwave since 1976 Quote Link to comment Share on other sites More sharing options...
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