Guest guest Posted May 4, 2008 Report Share Posted May 4, 2008 My daughter (who is now 4) had torticollis and plagiocephaly and required a helmet. She is fine now, but I just had another child who has a slight case of torticolllis and prefers 1 side when she sleeps and her head is already misshaped. SHe is only 10 weeks old and I want to do everything to avoid the helmet again. I have tried propping her on her side with a positioner and she always ends up in the same position. Any advice? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2008 Report Share Posted May 4, 2008 The best idea I have heard is a rolled up blanket or small that is actually sewn to the back of pajamas so they can’t roll off of it, and then it couldn’t be a sids risk either. From: Plagiocephaly [mailto:Plagiocephaly ] On Behalf Of s Sent: Tuesday, May 06, 2008 11:15 AM Plagiocephaly Subject: Re: What should I do? Perhaps try a rolled up blanket under her back under the sheet. That was a suggestion my Orthosist gave us when we were try to reposition. Good Luck. What should I do? My daughter (who is now 4) had torticollis and plagiocephaly and required a helmet. She is fine now, but I just had another child who has a slight case of torticolllis and prefers 1 side when she sleeps and her head is already misshaped. SHe is only 10 weeks old and I want to do everything to avoid the helmet again. I have tried propping her on her side with a positioner and she always ends up in the same position. Any advice? size=2 width="100%" align=center> No virus found in this incoming message. Checked by AVG. Version: 7.5.524 / Virus Database: 269.23.8/1413 - Release Date: 5/3/2008 11:22 AM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2008 Report Share Posted May 16, 2008 Our daughter is 16 weeks old and she has been going to PT for two months for her torticollis. It has helped GREATLY in getting her comfortable with her left side. I would highly recommend it! Your pediatrician can refer you most likely. > > The best idea I have heard is a rolled up blanket or small that is actually > sewn to the back of pajamas so they can't roll off of it, and then it > couldn't be a sids risk either. > > > > _____ > > From: Plagiocephaly [mailto:Plagiocephaly ] > On Behalf Of s > Sent: Tuesday, May 06, 2008 11:15 AM > Plagiocephaly > Subject: Re: What should I do? > > > > Perhaps try a rolled up blanket under her back under the sheet. That was a > suggestion my Orthosist gave us when we were try to reposition. Good Luck. > > What should I do? > > > > My daughter (who is now 4) had torticollis and plagiocephaly and > required a helmet. She is fine now, but I just had another child who > has a slight case of torticolllis and prefers 1 side when she sleeps > and her head is already misshaped. SHe is only 10 weeks old and I want > to do everything to avoid the helmet again. I have tried propping her > on her side with a positioner and she always ends up in the same > position. Any advice? > > > _____ > > size=2 width= " 100% " align=center> > > No virus found in this incoming message. > Checked by AVG. > Version: 7.5.524 / Virus Database: 269.23.8/1413 - Release Date: 5/3/2008 > 11:22 AM > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2009 Report Share Posted July 17, 2009 Welcome to the group! I looked at the photos and do agree that it's not severe, however I do see the flat area, and I would say that it's similar to my son's head shape now. He will turn 3 in September and did wear two bands but we didn't treat him until he was 17 months old, so although we did get good correction for his age, he still has a flat spot (measured around 5mm at graduation) and there has been no natural rounding out since then. I think you're statement about not being happy with his head shape if it stayed this way, is your answer as far as banding goes. But as far as when, it just depends on when you're ready. Right now at 5 months, would be an really ideal time to band. At the same time, waiting another month really won't matter much. I would first start checking into your insurance situation, some policies need preauthorization and want you to jump through 5 hoops before he can be treated, which could take a month or more, so if that's the case, I would start now so that it doesn't take even longer to get a band on his head (if that's what you decide). My latest opinion (across the board) is that boys should be banded even in mild plagio cases. Girls really do have the benefit of hair to cover up any mild flatness (me included, I have a palm size flat spot on the crown of my head but you can't tell at all). I just got my son's hair cut today REALLY short and the remaining flat spot and forehead bossing are visible to me. He is blessed with curly red hair and I usually let it get pretty long before I cut it off and start over, so we do have the option of covering up the flatness and forehead, for now anyway, while I can control how his hair looks. But as he gets older and wants to do his own thing, he might not like the curls and will want to keep it short. Will it still be visible in his teens? I don't know yet. But I wish I could have taken that possibility away completely by banding him when he was 6 months old, instead of waiting so long to do it. Anyway, that's my perspective. Hope it helps some. Good luck! Jake-2.5 (DOCBand Grad 9/08) Jordan-5 > > My child is almost 5 months now with a medium plagiocephaly on his back right side (the direction he likes to turn his head). I started noticing it at 2 months and have been doing positional therapy and neck streching for a month and a half now. I'm not sure that I'm seeing improvments. > > A month ago we went into get his head measurements and they said he was 8 mm asymmetrical, with the ear 5 mm off. I know that is definitely not severe, but it also isn't normal (which is 2-3 mm I think). THe front of his face looks fine, but I noticed one cheek a little bigger. They recommended treatment, but maybe they just want my money...and I don't know of any other places to get an expert opinion. > > I have no idea if it'll get better on it's own, or if I should get a helmet. It's driving me CRAZY and all I can ever think about. If his head were to NOT improve, I would NOT be happy with it. > > Should I wait it own a few more months to see if it rounds out, or get a helmet now since earlier is better? > > *I am new on here, can I post a picture in photos to show you his head? > Quote Link to comment Share on other sites More sharing options...
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