Re: Sorry, this was for you Ashauna, GHS= Glutathione

[Guest guest]

,

Is this supposed to help with what part of cf. Aerosol or oral? I

hope they do more study with it and perhaps it will benefit our kids

well if it is not already with those who are trying.

Thanks for the info. I will have to look into it more. I am so

retarded sometimes those scientific research papers make no sense to me

at all.

I know one thing I find myself actually using parts of my brain that I

didn't even know that I had trying to figure out all of this stuff for

my family. Just kidding !!!!!!! kind of!!!!!!

Ashauna

[Guest guest]

Ashauna,

Believe me you are not retarded, I have to read this papers 6 and 7

times and still nothing :-)!!

mom of a 10 wcf, Venanzio 7 nocf, Pepe 3 nocf

> ,

> Is this supposed to help with what part of cf. Aerosol or

oral? I

> hope they do more study with it and perhaps it will benefit our kids

> well if it is not already with those who are trying.

>

> Thanks for the info. I will have to look into it more. I am so

> retarded sometimes those scientific research papers make no sense

to me

> at all.

>

> I know one thing I find myself actually using parts of my brain

that I

> didn't even know that I had trying to figure out all of this stuff

for

> my family. Just kidding !!!!!!! kind of!!!!!!

> Ashauna

[Guest guest]

,

If only they made a book ( medical papers for dummies ) I would

do well with them then. I do not know if you have ever read a book

Cystic Fibrosis ( A guide for patient and family second edition )

Written by M. Orenstein. I read the entire thing and you know I

understood all of it. I think somewhere in there he even says it will

give you " clear explanations " It really did I was surprised. If you

have not read it really has a ton of info in it.

your friend,

Ashauna

[Guest guest]

Ashauna,

I did, actually, when a was diagnosed, May 2002, our doctor

recommended Dr. Orenstein's book. We found it to be very

informative, and easy to comprehend.

You are right, the dummy series, needs to get the medical one out, I

would be one that would buy it, :-).

Actually, I am very lucky, in my circle of very close girlfriends 5

are doctors, one my children's ped, so whenever I read one of those

medical papers and I land in Jupiter, one of them usually helps me

make my way to earth, lol!

Love to you and your little angels,

mom of a 10 wcf, Venanzio 7 nocf, Pepe 3 nocf

> ,

> If only they made a book ( medical papers for dummies ) I

would

> do well with them then. I do not know if you have ever read a book

>

> Cystic Fibrosis ( A guide for patient and family second edition )

> Written by M. Orenstein. I read the entire thing and you

know I

> understood all of it. I think somewhere in there he even says it

will

> give you " clear explanations " It really did I was surprised. If

you

> have not read it really has a ton of info in it.

>

> your friend,

> Ashauna

[Guest guest]

,

How lucky you are. The only doc that I have that seems some

what interested in personal relationships is my sons pediatrition. He

has a huge crush and always makes little remarks about if I ever need

anything just call him ( not his office HIM. ) It just makes me laugh

though because he knows that I am happily married. I can't complain

about it though because he is the only one who is willing to help me

with my son. We are military and have had so many issues with doctors.

Actually he is not a ped doc. I miss spoke. He is my doctor.

When he found out about all of the crap that the pediatric clinc

was putting me through he was completely discusted and offered his

service to my son. At one point I thought that I was at a breaking

point but with his help and advice I made it through those times for now

anyways. I am sure that I will get there again. Although I hope not

for my families sake. BOY WAS I A MESS!!!!!!!

Anyways, i think more that anything we just have a great

relationship going. He just thinks I'm cute. Oh well. who doesn't

like the compliment.

I am so limited with my choices on base as far as who I

can see this doctor does not know anything about cf, but has taken it

upon himself to have regular conferences with my clinic doc. How

dedicated is that. I take the good with the bad.

Ashauna I hope your little Louisa is great.

[Guest guest]

You did really well. I had to read the first few chapters several

times.

Gale

> ,

> If only they made a book ( medical papers for dummies ) I

would

> do well with them then. I do not know if you have ever read a book

>

> Cystic Fibrosis ( A guide for patient and family second edition )

> Written by M. Orenstein. I read the entire thing and you

know I

> understood all of it. I think somewhere in there he even says it

will

> give you " clear explanations " It really did I was surprised. If

you

> have not read it really has a ton of info in it.

>

> your friend,

> Ashauna

[Guest guest]

Gale,

I find myself having to read it over again at times. A topic will

come up that Colgan is going through so I will pick it up and read all

that I can about it.

I hope you had a great day.

Ashauna