Rhonda

[Guest guest]

Hi! I just wondered where you lived in Oregon. I

live in Eugene and have for over 35 years. We love it

here. Take care, and keep posting. Love, squeek

--- annasgranma wrote:

> Hello, I am writing from Bakersfield, Ca. We have a

> very hot climate

> but we live in The Central Valley and allergies

> affect our whole

> family. Our Dr. said if my husband went to the beach

> to cover his

> ears and also keep them moist with cold cream at

> night. When he lived

> in Oregon and Florida my husband never had a flair

> up. He started

> showing signs of R.P. when he moved to Calif. I was

> just wondering if

> anyone has any information about how the weather

> affects R.P.

> suffers. Thank You, Rhonda

>

>

=====

__________________________________________________

[Guest guest]

Hi Robin,

No, I'm not sorry you asked. I responded to your vent before...but

here it is again...they have to put themselves in our shoes, just as

we have to put ourselves in theirs...

it's not always easy...but as long as your committed, you can make it

through...together!

Rhonda

[Guest guest]

Deanna,

Thank you so much. You have no idea how much that helped. Yes, you

did make me smile. I keep trying to remind myself that there is

always someone worse than we are, it just gets hard sometimes. I hate

this disease so bad. It's taking it's toll on my boyfriend. He's so

stressed and worried, and I don't know how to make it better. I feel

so guilty for making him, my son, and everyone else around me suffer

so. I think that is the worst feeling of all. I try so hard to

pretend that I'm okay, but when it's this bad, there's no pretending.

I'm sure you can relate to that also. Sounds like you have a

wonderful son. That makes a big difference, I know. They make life

worth living, even through the toughest days.

Take care. I am praying for you also.

hugs,

Rhonda

[Guest guest]

Deanna,

You are absolutely right!. IT CAN GET BETTER! It certainly has for me. I

don't know why or how, but I thank God for its alleviation.

Jerry/NC

*******************************************

Rhonda

> Then I got the stomach flu & it sent the pancreas into a fury. I want

you to know that it can get better. My prognosis

> wasn't all that great, & my docs have been scratching their heads this

past year. I may be really sick again, but I know it can > get better. ...

> Anyway, never give up, ok?

> Hugs,

> Deanna Tubb

> New Mexico PAI Rep

[Guest guest]

And when you have those good days, really enjoy them!

> Deanna,

>

> You are absolutely right!. IT CAN GET BETTER! It certainly has for

me. I

> don't know why or how, but I thank God for its alleviation.

>

> Jerry/NC

> *******************************************

> Rhonda

>

>

> > Then I got the stomach flu & it sent the pancreas into a fury.

I want

> you to know that it can get better. My prognosis

> > wasn't all that great, & my docs have been scratching their heads

this

> past year. I may be really sick again, but I know it can > get

better. ...

>

> > Anyway, never give up, ok?

>

> > Hugs,

> > Deanna Tubb

> > New Mexico PAI Rep

[Guest guest]

I haven't heard anything of a gtt but that does make perfect sense.

I would rather do that then 4x a day finger sticks. Did they give

you a date for your surgery? How long have you had cp?

> Hi ! I'm so happy for you too. Fingers crossed for you. I

> have to have a gluclose tolerance test before the surgery and one

> every so often afterwards just to make sure the islets are working

> properly. Keep me posted!!

> Rhonda

[Guest guest]

Have ya'll picked a date and place for the wedding? Will it be bigm

small, intimate wedding. I think thats really fantastic, you have a

great guy. He's prpbably good looking too. I have always preferred

more intimate type. Just a few close friends or family.

When did the docs say they will let you know the date? that would

drive me nuts. I saw my doctor today and he sent me for an exray to

see if the stent is still in there. If it is, it will have to be

pulled. I dont think so, just let it stay, I dont know why it would

have to be pulled anyway. Maybe I'll get lucky and it's gone. They

put in a g-j tube when I was in the hospital are you getting tube

feedings as well.

I guess I as diagnosed about a year ago, actual diagnosis. Went the

run around for a few years prior to that. It has been a steady

decline in health since my gallbladder out 2 years ago. But then on

the first ercp they saw that I had sod and ductal tortuosity. So

that was february of last year, sod and ductal tortuosity. A year

later and there is fibrosis, stenosis, dilations, & clubbing from

the head to the tail. Last august ercp it was still just in the

head of the panc. I dont know how it could have gotten so much

worse in less then 6 months. I thinked it surprised them also.

Did they tell you if you were going to be in an ICU? How long will

you have to be in the hospital? What kind of incision will they

do? While you there you may want to swipe one or 2 of those

georgous " Seymour Hinee' " designer gowns that inspired him with so

mych passion he had to ask for your hand. Just stick one in the

back of your closet so that in a few years, slip that baby

out....LOL.

Chrissy

[Guest guest]

that is fantastic news. So many good things are coming your way I

know the surgery will be a success. Your family has ralleyed around

you and everything has fallen into place perfectly. I am so happy

for you.

I know how you feel about your son seeing you so unwell. I have

three kids and they have seen me go through a lot. It's so strange

though, kids have so much more strength then we do. They are so

resilient and when you look back in a few years and you think all he

would remember are the worse times. Thats not so, in a few years

he'll remember when you laughed with jello in your mouth and it

glopped out, or the day you wore a black sock with a blue sock.

With even more fond memories to come.

Warmly,

[Guest guest]

Hi Rhonda,

Best wishes for a lovely wedding day. May you have a long and happy life

together.

I'll be thinking about you on 9th March. Hope all goes well, and than you are

soon back home with your son. I had a TP in August, 2000, and it was the best

thing i ever did. I have felt so much better since.

Good luck with everything.

Sue (UK)

> Message date : Feb 27 2004, 02:49 AM

> From : " Rhonda "

> To : pancreatitis

> Copy to :

> Subject : Re: Chrissy & Everyone!

> I have some WONDERFUL NEWS!!! My surgery is scheduled for March 9!!

> Just got the call today!! 12 days. shew....lots to do between now and

> then! We are going to just go to the JP and get married quick next

> week (we both feel it's important for us to be married before the

> surgery). We have to go tomorrow and get our marriage license. Right

> now we have an appointment for Thursday to get married, but that

> depends on when we have to go down for our pre-op tests. I had to

> make arrangements for our son, our dogs & cats and of course the

> marriage! what a hectic day....and it's not over..but it's well worth

> it. I am very, very nervous! It really hit me today. I had

> actually figured something would go wrong and they wouldn't do the

> surgery. Kev says I was being pesimistic, but I was just going by the

> history of this disease. I have gone through hell trying to get

> someone to really help me and do something about this other than give

> me drugs. Finally! I am truly amazed by the amount of support that we

> have. Makes a huge difference. Even my sons father and his family are

> being supportive. My sons grandma will be taking care of him and she

> plans to bring him down for a visit at least once (and her other

> son's wife and her husband want to come along). The worst part of

> this whole thing is going to be being away from my son for (at least)

> two weeks. I can't stand even the thought of it. Since it's so far

> away, it's not like they can just come and see me every day, but she

> said they would definitely come down at least one day. I know she'll

> take good care of him, I just know this will be a difficult time for

> him and I won't be there to make him feel better and tell him

> everything will be okay.

> okay, enough of that...I'm rambling again. lol

> The surgery.....

> They are going to cut me from my rib cage to below my belly button.

> They are going to definitely remove the pancreas and part of the

> intestines and most likely the splean. The surgery will last

> approximately 14 hours and I will have at least a two week stay in

> the hospital. I am going to have my mother update you when she gets

> home, or maybe my sister. Whichever, someone will. They had me on

> vein feedings for a while, but not the stomach tube. They want to,

> but I keep refusing. This is ridiculous, but my son goes through hell

> watching me suffer like I do, and for him to have to see that too

> would just be to much. So, I force myself to eat wether I'm sick or

> not and try my best to keep as much of it down as I can. I live on

> baby food a lot, but that doesn't even stay down. I figure the more I

> get in me, the better the chance of at least a little staying down

> and giving me some nutrients.

> I'll have to see what we can do about the sexy gown! Thanks for

> the laugh. I so needed that!! I hope everyone is having a good day

> today. Take care!

> Rhonda

>

>

>

> > Have ya'll picked a date and place for the wedding? Will it be

> bigm

> > small, intimate wedding. I think thats really fantastic, you have

> a

> > great guy. He's prpbably good looking too. I have always

> preferred

> > more intimate type. Just a few close friends or family.

> >

> > When did the docs say they will let you know the date? that would

> > drive me nuts. I saw my doctor today and he sent me for an exray

> to

> > see if the stent is still in there. If it is, it will have to be

> > pulled. I dont think so, just let it stay, I dont know why it

> would

> > have to be pulled anyway. Maybe I'll get lucky and it's gone.

> They

> > put in a g-j tube when I was in the hospital are you getting tube

> > feedings as well.

> >

> > I guess I as diagnosed about a year ago, actual diagnosis. Went

> the

> > run around for a few years prior to that. It has been a steady

> > decline in health since my gallbladder out 2 years ago. But then

> on

> > the first ercp they saw that I had sod and ductal tortuosity. So

> > that was february of last year, sod and ductal tortuosity. A year

> > later and there is fibrosis, stenosis, dilations, & clubbing from

> > the head to the tail. Last august ercp it was still just in the

> > head of the panc. I dont know how it could have gotten so much

> > worse in less then 6 months. I thinked it surprised them also.

> >

> > Did they tell you if you were going to be in an ICU? How long will

> > you have to be in the hospital? What kind of incision will they

> > do? While you there you may want to swipe one or 2 of those

> > georgous " Seymour Hinee' " designer gowns that inspired him with so

> > mych passion he had to ask for your hand. Just stick one in the

> > back of your closet so that in a few years, slip that baby

> > out....LOL.

> > Chrissy

>

>

>

>

>

>

>

[Guest guest]

I cant think of a better diversion from your pain then shopping,

especially shopping for wedding rings. I will fly out early tuesday

morning for Cincy and will not be back until thursday, but I'll

check the boards as soon as I can. I am not doing so hot today,

more nausea and pain.

Good luck on monday and I look forward to hearing all about it and I

will tell mine. This is kinda fun, huh

Chrissy

[Guest guest]

They have to remove part of the colon because of the way things are

connected to it I think. Not real sure about the splean. He said that

wasn't definite, they won't know for sure till they get in there.

I'm a little out of it today. My " mother-in-law " came down yesterday

and spent the day with us. It was nice. Then we went out to dinner,

of course that didn't go so well. Was up pretty much all night.

Finally got a couple of hours of sleep around 6ish this morning. Our

son has a roller hockey game this evening, so that will be my energy

today. Kev went to the grocery store for me. He is a wonderful man,

and yes, he's very gorgeous. Definitely a 10+ in my book. Looks,

brains and feelings! Can't ask for anything more! lol

I'm really excited about the rings. They are etched on the outsides

and the center is two toned. I also have them engraved. We have

pet names for eachother, so I had them engraved inside. We are

getting married on Thursday, during his lunch break. lol We're going

to the JP. He'll leave work, meet me at the JP and back to work he

goes. We're going to pull our son out of school that day so he can be

a part of it. He really wants to be there. and I have to say we

really want him there too.

Tomorrow is the big day for all the test. yeah. nothing to eat or

drink after midnight tonight. course the eating is no big deal since

I can't eat anyway, but the drinking is another story. I have bad

veins to begin with and then of course I get dehydrated real quick

with being sick, so they are going to really have fun finding a vein

tomorrow. oh well.

how are you feeling today? hope you are having a good day. are you

ready for your trip?

hugs,

Rhonda

[Guest guest]

I dont know how much they take out at Cincy. I will find out next

week. There are 2 schools of thought that I have looked into on

that. One, take all of it to preventproblems later, leave as much

intact as possible. From one extreme to another. Why do they take

the spleen anyway? Maybe I'll put that q's to the group.

I was told when I go that I will not need any type of testing. What

test are you having done? I did pick up all my latests scans and fed

exed it to them, and I had plenty of test when I was in the hospital

in feb. I know they have all of that.

How many children do you have? How old are they. I have a daughter

almost 18; going to Auburn in the fall for pre-med, she's a great

kid, more like a friend and ddrop dead georgous, never had a date

either, go figure. My son is 13,(yuck) and must have multiple

personalities and one of them is a demon, really smart though.

Scored in the 95% percentile and will be placed in CP classes for

high school, got the letter yesterday, he is accepted at same

private HS my older daughter goes to. My younest is Lilly, 8, she

is my mother's revenge, the child is so much like me it makes me

worry.

The rings sound beautiful; I would love to know the pet names but

that is probably way too personal. What are you going to wear. My

husband nd I eloped almost 20 years ago. Got married in blue jeans

by a JP in her living room.

I hope you feel better today; and I know what you mean about M I l;

even though she knows I am ill, and cant eat, she always makes me

feel lousy if I dont try. Me not wanting to offend the hostess, I

end up feeling really lousy. I will not miss that!! I'm not doing

so hot, and it probably wont improve any time soon. I have upped my

demerol to 200mg every 3-4 hours and dont want to become an addict.

So I strecth it out as far as possible.

Talk soon and have a good day, the weather here is beautful

Chrissy

[Guest guest]

I have one child. A son. He's a dream. he's 11, going on 21. lol.

Sounds like you have a wonderful family. cherish it always (which

I'm sure you do).

I don't mind sharing the pet names. I am his Sunshine, and he is my

Teddy Bear. When I'm really sick or sometimes for no reason, he

sings my Sunshine song to me. very very sweet. We are VERY much in

love. Not sure what I'll wear. He's going to have jeans and a

sweatshirt with steel toed boots. I may have to wear stretch pants

cause I most likely won't be able to handle the jeans on my belly.

Not feeling very well at all today. Very nauseated. Was pretty sick

yesterday after the gluclose test. ugh. Don't know if that's still

hanging on or not, but I definitely don't feel well. At all.

Yesterday I had to have the gluclose tolerance test and they did a

CBC and all the stuff. That was pretty much it as far as tests. I had

to meet with the anestioligist and get my " orders " for the day before

the surgery. On Monday I have to go and have a 'Blood Type and Cross'

and also an ultrasound of my liver so they can make sure everything

is good with the liver before they cut me open and all that jazz.

Nothing major. They're leaving that for Tuesday. I hope you are

having a good flight today. I know it's going to drain you so very

much, but it will be so worth it. Just keep reminding yourself of

that. I will try my best to get on here on Thursday and see how you

are doing. I know I probably won't be able to get on here after that.

I will be so busy trying to get everything ready. My niece said she

would keep you guys updated. As soon as I get home and can get down

the stairs, I will check in with everyone. I'll miss talking to you

and will be thinking of you often. Maybe by the time I get back on

here, you'll be off having your surgery. If you want, you can call

the hospital, I would love to hear from you. Not sure if I will be

under Rhonda or Rhonda . If I can't talk, you can at

least talk to my husband . Be sure to tell him how you are doing

so he can let me know then. Take care! I'll be praying for you.

oh yeah, the weather here is also gorgeuos. There's a chance of rain

on Thursday. I told Kev not to worry, it's supposed to be good luck

to have rain on your wedding day.

hugs,

Rhonda

> I dont know how much they take out at Cincy. I will find out next

> week. There are 2 schools of thought that I have looked into on

> that. One, take all of it to preventproblems later, leave as much

> intact as possible. From one extreme to another. Why do they take

> the spleen anyway? Maybe I'll put that q's to the group.

>

> I was told when I go that I will not need any type of testing.

What

> test are you having done? I did pick up all my latests scans and

fed

> exed it to them, and I had plenty of test when I was in the

hospital

> in feb. I know they have all of that.

>

> How many children do you have? How old are they. I have a

daughter

> almost 18; going to Auburn in the fall for pre-med, she's a great

> kid, more like a friend and ddrop dead georgous, never had a date

> either, go figure. My son is 13,(yuck) and must have multiple

> personalities and one of them is a demon, really smart though.

> Scored in the 95% percentile and will be placed in CP classes for

> high school, got the letter yesterday, he is accepted at same

> private HS my older daughter goes to. My younest is Lilly, 8, she

> is my mother's revenge, the child is so much like me it makes me

> worry.

>

> The rings sound beautiful; I would love to know the pet names but

> that is probably way too personal. What are you going to wear. My

> husband nd I eloped almost 20 years ago. Got married in blue jeans

> by a JP in her living room.

>

> I hope you feel better today; and I know what you mean about M I l;

> even though she knows I am ill, and cant eat, she always makes me

> feel lousy if I dont try. Me not wanting to offend the hostess, I

> end up feeling really lousy. I will not miss that!! I'm not doing

> so hot, and it probably wont improve any time soon. I have upped

my

> demerol to 200mg every 3-4 hours and dont want to become an

addict.

> So I strecth it out as far as possible.

>

> Talk soon and have a good day, the weather here is beautful

> Chrissy