Re: Die-off or something else?

[Guest guest]

Angie,

I'm not sure what to tell you. I have never heard of anyone suffering pain to

this degree as they are beginning SCD. If you had a serious GI condition, that

was already causing you some trouble, then pain might be understandable... at

least somewhat. And, of course, one would expect GI pain... not leg pain.

Something really seems very wrong here... and I must say, I'm entirely stumped.

I know it would be a very unlikely coincidence, but I'm wondering if the pain

could possibly be caused by something unrelated to the diet, that just happened

to come on just as you began?

I am not sure the cramping you're experiencing is actually in the muscles... I

am guessing it must be??

The only other thing I would tell someone who is having muscle cramps is to make

sure they are getting enough calcium. You are taking a LOT of magnesium...are

you used to taking that much? Perhaps it needs to be balanced by calcium?

Usually, magnesium is taken in a proportion of about half the milligram dosage

as calcium. That's not SCD protocol... that's just my recollection and what I'm

familiar with.

The only other thing I would throw out there would be dehydration. I guess that

depends on how hot the weather is where you are... and how much you are

drinking. Are you getting enough salt, etc. ??

Please note... I am not a doctor and am not trying to give you medical advice. I

just don't know what else to suggest. I think if the extreme pain continues, and

you think it is caused by the diet, I would recommend stopping for a while....

until you are sure what's going on.

I'm sorry you're having such a rough time.

Patti

Die-off or something else?

My family of four went 100% SCD July 1 in support of my extreme ADHD 9 year

old son

who has malabsorption problems. Both sons (the other is 12) and my husband

are doing

okay---some weakness, some stomach upset, some irritability. I am suffering

greatly. I

am having horrendous cramping from my hips to just above my knees. It had

bothered

me Saturday night a little, but last night I awoke around 2 a.m. and have not

been back to

sleep since (it is 11 on Monday night). I cannot lay down without extreme

pain and sitting

isn't great. Walking is good after about 20 minutes, but otherwise I'm in an

extreme

amount of pain.

I've been taking epsom salt baths. I've been using a heating pad. I'm taking

1000 mg/

magnesium/day, plus Freeda vitaminis plus Vit C (1000 mg.) AND activated

charcoal.

Yes, all legal supplements and yes taking apart from the charcoal. I'm

drinking tons of

water. I'm still in agony. I spoke to my son's doctor, and she wasn't sure

what to do

either.

I understand the value of this diet, particularly for my son. My son and I

have been mostly

SCD for a couple of months, but waited to go 100% until I could learn about

it, convert the

familiy off of 18 years of vegetarianism (still learning how to cook), get the

family through

a trip to Paris and my son through a week of drama camp. I knew that when we

did it, we

wanted to do it right and that I needed total control. We've seen remarkable

improvements in my son (who is also taking enzymes, probiotics, and cod liver

oil----as

per doctor.)

As I was sobbing on the phone with the doctor today, she struggled with the

dilemma of if

this is die-off, I need this diet for reasons we didn't know, but also she

cannot tolerate me

being in this much pain. But she is new to this diet, too. (A doctor at the

lab who did my

son's CSA suggested the book to her. She has read it, as have I, but never

had a patient

on the diet before.)

But I'm in so much pain I'm beginning to question my sanity. Is there

anything we are

overlooking that we could do? I really cannot be in pain like this and

function. Please

help, if you have anything to offer.

Thanks,

Angie

For information on the Specific Carbohydrate Diet, please read the book

_Breaking the Vicious Cycle_ by Elaine Gottschall and read the following

websites:

http://www.breakingtheviciouscycle.info

and

http://www.pecanbread.com

[Guest guest]

Hi, Angie.

Welcome to the list.

I am wondering about the activated charcoal. How much are you taking? Aside

from the leg pain, are you suffering from stomach cramping, pain, etc? Is this

why you are taking it? Too much activated charcoal can cause muscle cramping.

This sounds more severe than that, however.

Are you running a fever?

I echo Patti's comments on calcium and dehydration (which I know you said that

you were drinking 'tons of water', but activated charcoal can cause

dehydration). Low potassium levels can cause leg cramping, as well. But, your

vitamin should cover the potassium levels adequately. Not sure about the

calcium.

Are you taking the enzymes/probiotics/cod liver oil that your son is taking?

Might be a good idea?

I am going to tread the poop terrain that we so often do on this list---sorry!

But, are you constipated? How are you bowel movements? Have they been normal?

Constipation can cause lower back and upper leg pain. Call your doctor if you

have constipation with a fever and intolerable pain.

Could it be a urinary tract/kidney infection? How is your urine output? The

pain can radiate to the legs.

Also, the standard SCD questions---what are you eating? Have you added yogurt?

Did you start with the Intro diet--if not, maybe going back to the intro diet

for a few days would be beneficial--you probably do not feel like eating much at

this point anyway.

I am not a medical professional. I hate to have you in so much pain. I am

hoping that if you are still at this level of pain today, that you seek medical

attention.

I will be thinking of you! Sorry it has been so rough, and I hope you find

relief soon.

Sincerely,

SCD 2 years

Mom to Dakota (8--NF, CDD, Seizures) and (6--happy, healthy, and

supportive little brother)

[Guest guest]

Hi,sorry to hear of your pain, all I am wondering is the vegetarian thing, I was

also veg. for 22 years and very recently started eating meat again, stupidly I

chose lamb and suffered immensely afterwards,( how I expected my body to

still have the enzymes to deal with meat after 22 years is beyond me !) did you

suddenly eat meat? just a thought, I'm new too, love Josie x

>

> My family of four went 100% SCD July 1 in support of my extreme ADHD 9

year old son

> who has malabsorption problems. Both sons (the other is 12) and my

husband are doing

> okay---some weakness, some stomach upset, some irritability. I am

suffering greatly. I

> am having horrendous cramping from my hips to just above my knees. It

had bothered

> me Saturday night a little, but last night I awoke around 2 a.m. and have not

been back to

> sleep since (it is 11 on Monday night). I cannot lay down without extreme

pain and sitting

> isn't great. Walking is good after about 20 minutes, but otherwise I'm in an

extreme

> amount of pain.

>

> I've been taking epsom salt baths. I've been using a heating pad. I'm taking

1000 mg/

> magnesium/day, plus Freeda vitaminis plus Vit C (1000 mg.) AND activated

charcoal.

> Yes, all legal supplements and yes taking apart from the charcoal. I'm

drinking tons of

> water. I'm still in agony. I spoke to my son's doctor, and she wasn't sure

what to do

> either.

>

> I understand the value of this diet, particularly for my son. My son and I

have been mostly

> SCD for a couple of months, but waited to go 100% until I could learn about

it, convert the

> familiy off of 18 years of vegetarianism (still learning how to cook), get the

family through

> a trip to Paris and my son through a week of drama camp. I knew that when

we did it, we

> wanted to do it right and that I needed total control. We've seen remarkable

> improvements in my son (who is also taking enzymes, probiotics, and cod

liver oil----as

> per doctor.)

>

> As I was sobbing on the phone with the doctor today, she struggled with the

dilemma of if

> this is die-off, I need this diet for reasons we didn't know, but also she

cannot tolerate me

> being in this much pain. But she is new to this diet, too. (A doctor at the

lab

who did my

> son's CSA suggested the book to her. She has read it, as have I, but never

had a patient

> on the diet before.)

>

> But I'm in so much pain I'm beginning to question my sanity. Is there

anything we are

> overlooking that we could do? I really cannot be in pain like this and

function. Please

> help, if you have anything to offer.

>

> Thanks,

>

> Angie

>

[Guest guest]

Dear Angie, I don't know what is causing your pain. I am not a

doctor either. I also only have four months on the diet too. So I

am just learning.

But wanted to share that I suffered miserably too! YOU ARE NOT

ALONE. JUST HORRIBLE PAIN!!!!! The kind that makes you think you

need an ER or doctor. I assumed it was transition. It seems that

the cramps would kill me at times. I don't know if they where gas

cramps. IBS or what! I still don't know. The doctors where not

able to help either. I didn't die though, I made it through it some

how. Sometimes used the hot tub for pain several time a day!

I truly do not know what to tell you to do for yours. The ER can't

do much if it is caused by die off, even if we go, but you may have

to! Use your commmon sense. It would be just horrible if you where

over looking something else other than a very rough transition!

But this is what I was told to do again I am not a doctor any thing

I say do at your own risk: I became so desperate I called Lucy R at

Lucy's Kitchen one day (Elaine had cured her). She told me to stop

taking the enzymes with protease for starters. She also told me to

use just ONE fleet enema to flush out possible things that could be

making my pain worse. I also used activated charcoal, Epson salt

baths (very hot for the pain), Heating Pads, Laying on my left side

with knees bent to chest, in case it was gas. Plus, I stuck to the

intro diet longer than most (10 days), I also used acidolphilus and

yogurt as mentioned to eat in the book, plus Freed Vitamins. It did

passed and I still do not know what caused it. My poops where rather

strange though! It also had a horrible smell!

If you where vegetarian before you went SCD, may be you need to

introduce meats slower? I don't know for certain if even this is

the problem. You are not insane! Trust your body and listen to

what it may be telling you. It has been believed by some who have

studied gut dysbiosis, that it may run in the mothers who have the

children with this problem. Dr. Natasha -McBride M.D. says

this in her book. IF she is right, you moe than likely need this

diet as much as your son if not more. After this first die off I

emerged a new women. I had more energy, less irritablitiy, less

depression, and continued to heal from my diagnosis of Celiac

Disease. I hope that you are feeling better soon!

Antoinette (celiac) and family of five SCD 2/06 for

(celiac/malabsorption, add, adhd, autism, depression and more)

[Guest guest]

Sorry you are hurting so badly. I was digging around and have a few

thoughts..

I take an electrolyte formula for fatiuge that is really great. It is

just electrolytes, nothing else added. This has really helped with my

fatigue and it is advertised to help with cramping. Here is a link. I

get the regular e-lyte formula:

http://www.elytesport.com/sportshealth/default.html

Is the cramping on your back wrapping around to the front and down the

back of your legs? If so it could be sciatica. This condition is

excruciating-I have never experienced it firsthand but I use to work

in a chiropractic office and saw it all the time. (I am not a doctor)

It is causes by a pinched nerve in the lumbar spine (low back).

Treatments vary but usually entails spinal adjustments,

electrostimulation therapy to increase blood flow in the muscles and

possibly acupuncture. You may have other vertabrae out of alignment

too putting pressure on the spinal cord and nerves that connect to

your stomach. I have had that problem before. Maybe this isn't it, but

I hope you find relief soon!

Mandy

> >

> > My family of four went 100% SCD July 1 in support of my extreme

ADHD 9

> year old son

> > who has malabsorption problems. Both sons (the other is 12) and my

> husband are doing

> > okay---some weakness, some stomach upset, some irritability. I am

> suffering greatly. I

> > am having horrendous cramping from my hips to just above my knees.

It

> had bothered

> > me Saturday night a little, but last night I awoke around 2 a.m.

and have not

> been back to

> > sleep since (it is 11 on Monday night). I cannot lay down without

extreme

> pain and sitting

> > isn't great. Walking is good after about 20 minutes, but

otherwise I'm in an

> extreme

> > amount of pain.

> >

> > I've been taking epsom salt baths. I've been using a heating pad.

I'm taking

> 1000 mg/

> > magnesium/day, plus Freeda vitaminis plus Vit C (1000 mg.) AND

activated

> charcoal.

> > Yes, all legal supplements and yes taking apart from the charcoal.

I'm

> drinking tons of

> > water. I'm still in agony. I spoke to my son's doctor, and she

wasn't sure

> what to do

> > either.

> >

> > I understand the value of this diet, particularly for my son. My

son and I

> have been mostly

> > SCD for a couple of months, but waited to go 100% until I could

learn about

> it, convert the

> > familiy off of 18 years of vegetarianism (still learning how to

cook), get the

> family through

> > a trip to Paris and my son through a week of drama camp. I knew

that when

> we did it, we

> > wanted to do it right and that I needed total control. We've seen

remarkable

> > improvements in my son (who is also taking enzymes, probiotics,

and cod

> liver oil----as

> > per doctor.)

> >

> > As I was sobbing on the phone with the doctor today, she struggled

with the

> dilemma of if

> > this is die-off, I need this diet for reasons we didn't know, but

also she

> cannot tolerate me

> > being in this much pain. But she is new to this diet, too. (A

doctor at the lab

> who did my

> > son's CSA suggested the book to her. She has read it, as have I,

but never

> had a patient

> > on the diet before.)

> >

> > But I'm in so much pain I'm beginning to question my sanity. Is

there

> anything we are

> > overlooking that we could do? I really cannot be in pain like

this and

> function. Please

> > help, if you have anything to offer.

> >

> > Thanks,

> >

> > Angie

> >

>

[Guest guest]

> either.

>

> I understand the value of this diet, particularly for my son. My son and I

have been

mostly

> SCD for a couple of months, but waited to go 100% until I could learn about

it, convert

the

> familiy off of 18 years of vegetarianism (still learning how to cook), get the

family

through

> a trip to Paris and my son through a week of drama camp. I knew that when we

did it,

we

> wanted to do it right and that I needed total control. We've seen remarkable

> improvements in my son (who is also taking enzymes, probiotics, and cod liver

oil----

as

> per doctor.)

>

> As I was sobbing on the phone with the doctor today, she struggled with the

dilemma of

if

> this is die-off, I need this diet for reasons we didn't know, but also she

cannot tolerate

me

> being in this much pain. But she is new to this diet, too. (A doctor at the

lab who did

my

> son's CSA suggested the book to her. She has read it, as have I, but never

had a patient

> on the diet before.)

>

> But I'm in so much pain I'm beginning to question my sanity. Is there

anything we are

> overlooking that we could do? I really cannot be in pain like this and

function. Please

> help, if you have anything to offer.

>

> Thanks,

>

> Angie

My Poor Dear Angie,

Am I correct in assuming you have been following the Intro Diet? It is now July

4. Are you

still in pain? Can you describe what your typical daily mrenu consisted of

before you

started SCD?

What were your actvities just oprior to starting SCD?

This advice may not be univerally supported by the moderators, but if you are

still in pain,

I would revert to my previous diet and see if the pain subsides. Then try the

SCD Intro Diet

again (chicken soup. beef patties, gelatin, cheesecake etc.).

I also never heard of such an extreme initial reaction.

Please let us know how you are doing today.

Carol F.

Celiac, MCS. Latex Allergy, SCD 6 years

[Guest guest]

Hi Angie,

> I understand the value of this diet, particularly for my son. My

son and I have been mostly

> SCD for a couple of months, but waited to go 100% until I could

learn about it

What were you eating before when you were mostly SCD and what are you

eating now that's different?

Sheila, SCD 2/01, UC 22yrs

mom of and

[Guest guest]

Angie,

I have never heard of anyone experiencing the type of pain that you

are describing just from starting the diet.

I would definitely advise going in to see a doctor. It is possible

that the pain and diet change are related in some way. (I am not a

doctor and don't know if they are or not.)

But being in that much pain is CERTAINLY not typical. I would

recommend that you make an appointment today to see a doctor.

My husband woke up a week ago Sunday in an enormous amount of pain.

By the end of the day, he resorted to going to the ER. If he had just

switched diets, we might have thought the two were related since he

didn't actually DO ANYTHING to cause the pain: no heavy lifting, no

injury of any type.

But somehow he managed to injure himself pretty badly doing absolutely

nothing. Perhaps it was sciatica as was mentioned in a different

post. He's been taking muscle relaxers and using an electrotherapy

unit and he is doing much better.

I am writing all of this to encourage you to find out if there is

something else going on. Just because two things started at similar

times doesn't mean that one is causing the other. I would definitely

get checked by a doctor. I would hate for you to chalk this up to

" die off " because it doesn't sound at all like any other description

of a die-off reaction that I've ever heard.

Please consider seeing your doctor for a full exam.

Jody

mom to -7 and -9

SCD 1/03

[Guest guest]

Angie and Patti,

Leg cramping can be toxisity in your body and not enough fluids

going in to flush it out.

Angie, I know that you said that you were drinking a lot of water

but you need a min of 1 oz of water for every 2 # you weigh. If you

way 128# you need a MIN. of 8 full glasses, 8 oz each of water. I

drink a gallon of water a day and if I go under this for more than a

day I will spend my night walking trying to work out the cramps in

my legs.

Water is such an important part of the picture of health both

getting healthy and staying healthy.

The other thing is if you drink coffee or tea, these things

dehydrate you so you need even more water.

Hope this can help you evaluate whether the amount of water you are

drinking really is a lot or not. Many people are so accustome to

drinking other stuff that when they get 3 or 4 glasses of water in

they think that the water system that they are on will go dry.

<smile>

Sandy M.

>

> Angie,

>

> I'm not sure what to tell you. I have never heard of anyone

suffering pain to this degree as they are beginning SCD. If you had

a serious GI condition, that was already causing you some trouble,

then pain might be understandable... at least somewhat. And, of

course, one would expect GI pain... not leg pain.

>

> Something really seems very wrong here... and I must say, I'm

entirely stumped. I know it would be a very unlikely coincidence,

but I'm wondering if the pain could possibly be caused by something

unrelated to the diet, that just happened to come on just as you

began?

>

> I am not sure the cramping you're experiencing is actually in the

muscles... I am guessing it must be??

> The only other thing I would tell someone who is having muscle

cramps is to make sure they are getting enough calcium. You are

taking a LOT of magnesium...are you used to taking that much?

Perhaps it needs to be balanced by calcium? Usually, magnesium is

taken in a proportion of about half the milligram dosage as calcium.

That's not SCD protocol... that's just my recollection and what I'm

familiar with.

>

> The only other thing I would throw out there would be dehydration.

I guess that depends on how hot the weather is where you are... and

how much you are drinking. Are you getting enough salt, etc. ??

>

> Please note... I am not a doctor and am not trying to give you

medical advice. I just don't know what else to suggest. I think if

the extreme pain continues, and you think it is caused by the diet,

I would recommend stopping for a while.... until you are sure what's

going on.

>

> I'm sorry you're having such a rough time.

>

> Patti

>

> Die-off or something else?

>

>

> My family of four went 100% SCD July 1 in support of my extreme

ADHD 9 year old son

> who has malabsorption problems. Both sons (the other is 12) and

my husband are doing

> okay---some weakness, some stomach upset, some irritability. I

am suffering greatly. I

> am having horrendous cramping from my hips to just above my

knees. It had bothered

> me Saturday night a little, but last night I awoke around 2 a.m.

and have not been back to

> sleep since (it is 11 on Monday night). I cannot lay down

without extreme pain and sitting

> isn't great. Walking is good after about 20 minutes, but

otherwise I'm in an extreme

> amount of pain.

>

> I've been taking epsom salt baths. I've been using a heating

pad. I'm taking 1000 mg/

> magnesium/day, plus Freeda vitaminis plus Vit C (1000 mg.) AND

activated charcoal.

> Yes, all legal supplements and yes taking apart from the

charcoal. I'm drinking tons of

> water. I'm still in agony. I spoke to my son's doctor, and she

wasn't sure what to do

> either.

>

> I understand the value of this diet, particularly for my son.

My son and I have been mostly

> SCD for a couple of months, but waited to go 100% until I could

learn about it, convert the

> familiy off of 18 years of vegetarianism (still learning how to

cook), get the family through

> a trip to Paris and my son through a week of drama camp. I knew

that when we did it, we

> wanted to do it right and that I needed total control. We've

seen remarkable

> improvements in my son (who is also taking enzymes, probiotics,

and cod liver oil----as

> per doctor.)

>

> As I was sobbing on the phone with the doctor today, she

struggled with the dilemma of if

> this is die-off, I need this diet for reasons we didn't know,

but also she cannot tolerate me

> being in this much pain. But she is new to this diet, too. (A

doctor at the lab who did my

> son's CSA suggested the book to her. She has read it, as have

I, but never had a patient

> on the diet before.)

>

> But I'm in so much pain I'm beginning to question my sanity. Is

there anything we are

> overlooking that we could do? I really cannot be in pain like

this and function. Please

> help, if you have anything to offer.

>

> Thanks,

>

> Angie

>

>

>

>

>

>

>

> For information on the Specific Carbohydrate Diet, please read

the book _Breaking the Vicious Cycle_ by Elaine Gottschall and read

the following websites:

> http://www.breakingtheviciouscycle.info

> and

> http://www.pecanbread.com

>

>

[Guest guest]

> Angie and Patti,

> Leg cramping can be toxisity in your body and not enough fluids

> going in to flush it out.

> Angie, I know that you said that you were drinking a lot of water

> but you need a min of 1 oz of water for every 2 # you weigh. If you

> way 128# you need a MIN. of 8 full glasses, 8 oz each of water. I

> drink a gallon of water a day and if I go under this for more than a

> day I will spend my night walking trying to work out the cramps in

> my legs.

> Water is such an important part of the picture of health both

> getting healthy and staying healthy.

> The other thing is if you drink coffee or tea, these things

> dehydrate you so you need even more water.

> Hope this can help you evaluate whether the amount of water you are

> drinking really is a lot or not. Many people are so accustome to

> drinking other stuff that when they get 3 or 4 glasses of water in

> they think that the water system that they are on will go dry.

> <smile>

> Sandy M.

Sandy,

Thinking is changing on how much water to drink daily. CNN's health

expert, Cohen says the 8 glasses a day is an urban myth. I'm

not disputing it just casting another point of view into the mix.

http://edition.cnn.com/2002/HEALTH/diet.fitness/05/24/cohen.water.otsc/

index.html

Carol F.

Celiac, MCS, Latex Allergy, EMS

SCD 6 years

[Guest guest]

1,000 mg of mag is a lot..why are you taking this much..It can cause

cramping..Stop the mag for now and see if it helps.. You may wish to

also only take 500 vit c for now until things settle... Keep taking

the charcoal it will absorb the toxins... and yes I agree with Carol

water but spread your drinking out ..

may I ask if you are all on this amount of Mag ?

Sandy

Dan Nurse GFCF 8+ yrs Organic and environmentally healthy lifestyle

SCD4 months.

>

> My family of four went 100% SCD July 1 in support of my extreme ADHD

9 year old son

> who has malabsorption problems. Both sons (the other is 12) and my

husband are doing

> okay---some weakness, some stomach upset, some irritability. I am

suffering greatly. I

> am having horrendous cramping from my hips to just above my knees.

It had bothered

> me Saturday night a little, but last night I awoke around 2 a.m. and

have not been back to

> sleep since (it is 11 on Monday night). I cannot lay down without

extreme pain and sitting

> isn't great. Walking is good after about 20 minutes, but otherwise

I'm in an extreme

> amount of pain.

>

> I've been taking epsom salt baths. I've been using a heating pad.

I'm taking 1000 mg/

> magnesium/day, plus Freeda vitaminis plus Vit C (1000 mg.) AND

activated charcoal.

> Yes, all legal supplements and yes taking apart from the charcoal.

I'm drinking tons of

> water. I'm still in agony. I spoke to my son's doctor, and she

wasn't sure what to do

> either.

>

> I understand the value of this diet, particularly for my son. My

son and I have been mostly

> SCD for a couple of months, but waited to go 100% until I could

learn about it, convert the

> familiy off of 18 years of vegetarianism (still learning how to

cook), get the family through

> a trip to Paris and my son through a week of drama camp. I knew

that when we did it, we

> wanted to do it right and that I needed total control. We've seen

remarkable

> improvements in my son (who is also taking enzymes, probiotics, and

cod liver oil----as

> per doctor.)

>

> As I was sobbing on the phone with the doctor today, she struggled

with the dilemma of if

> this is die-off, I need this diet for reasons we didn't know, but

also she cannot tolerate me

> being in this much pain. But she is new to this diet, too. (A

doctor at the lab who did my

> son's CSA suggested the book to her. She has read it, as have I,

but never had a patient

> on the diet before.)

>

> But I'm in so much pain I'm beginning to question my sanity. Is

there anything we are

> overlooking that we could do? I really cannot be in pain like this

and function. Please

> help, if you have anything to offer.

>

> Thanks,

>

> Angie

>

[Guest guest]

One more thing..If you are having frequent bowel movements and loose

stool you may be low in Potassium which will cause leg cramps..

Here is a site with some more info on Magnesium. Some get cramps from

need of mag..so it's hard to say ..but if your were not on 1000mg

prior to this I would ease up...

http://www.krispin.com/magnes.html

Sandy

Dan Nurse GFCF 8+ yrs Organic and environmentally healthy lifestyle

> SCD 4 months 2 kids 9(recovered) & 6 ASD

> >

> > My family of four went 100% SCD July 1 in support of my extreme ADHD

> 9 year old son

> > who has malabsorption problems. Both sons (the other is 12) and my

> husband are doing

> > okay---some weakness, some stomach upset, some irritability. I am

> suffering greatly. I

> > am having horrendous cramping from my hips to just above my knees.

> It had bothered

> > me Saturday night a little, but last night I awoke around 2 a.m. and

> have not been back to

> > sleep since (it is 11 on Monday night). I cannot lay down without

> extreme pain and sitting

> > isn't great. Walking is good after about 20 minutes, but otherwise

> I'm in an extreme

> > amount of pain.

> >

> > I've been taking epsom salt baths. I've been using a heating pad.

> I'm taking 1000 mg/

> > magnesium/day, plus Freeda vitaminis plus Vit C (1000 mg.) AND

> activated charcoal.

> > Yes, all legal supplements and yes taking apart from the charcoal.

> I'm drinking tons of

> > water. I'm still in agony. I spoke to my son's doctor, and she

> wasn't sure what to do

> > either.

> >

> > I understand the value of this diet, particularly for my son. My

> son and I have been mostly

> > SCD for a couple of months, but waited to go 100% until I could

> learn about it, convert the

> > familiy off of 18 years of vegetarianism (still learning how to

> cook), get the family through

> > a trip to Paris and my son through a week of drama camp. I knew

> that when we did it, we

> > wanted to do it right and that I needed total control. We've seen

> remarkable

> > improvements in my son (who is also taking enzymes, probiotics, and

> cod liver oil----as

> > per doctor.)

> >

> > As I was sobbing on the phone with the doctor today, she struggled

> with the dilemma of if

> > this is die-off, I need this diet for reasons we didn't know, but

> also she cannot tolerate me

> > being in this much pain. But she is new to this diet, too. (A

> doctor at the lab who did my

> > son's CSA suggested the book to her. She has read it, as have I,

> but never had a patient

> > on the diet before.)

> >

> > But I'm in so much pain I'm beginning to question my sanity. Is

> there anything we are

> > overlooking that we could do? I really cannot be in pain like this

> and function. Please

> > help, if you have anything to offer.

> >

> > Thanks,

> >

> > Angie

> >

>

[Guest guest]

No, not suddenly. We've been having meat about once a day for a month prior to

going

SCD.

Angie

> >

> > My family of four went 100% SCD July 1 in support of my extreme ADHD 9

> year old son

> > who has malabsorption problems. Both sons (the other is 12) and my

> husband are doing

> > okay---some weakness, some stomach upset, some irritability. I am

> suffering greatly. I

> > am having horrendous cramping from my hips to just above my knees. It

> had bothered

> > me Saturday night a little, but last night I awoke around 2 a.m. and have

not

> been back to

> > sleep since (it is 11 on Monday night). I cannot lay down without extreme

> pain and sitting

> > isn't great. Walking is good after about 20 minutes, but otherwise I'm in

an

> extreme

> > amount of pain.

> >

> > I've been taking epsom salt baths. I've been using a heating pad. I'm

taking

> 1000 mg/

> > magnesium/day, plus Freeda vitaminis plus Vit C (1000 mg.) AND activated

> charcoal.

> > Yes, all legal supplements and yes taking apart from the charcoal. I'm

> drinking tons of

> > water. I'm still in agony. I spoke to my son's doctor, and she wasn't sure

> what to do

> > either.

> >

> > I understand the value of this diet, particularly for my son. My son and I

> have been mostly

> > SCD for a couple of months, but waited to go 100% until I could learn about

> it, convert the

> > familiy off of 18 years of vegetarianism (still learning how to cook), get

the

> family through

> > a trip to Paris and my son through a week of drama camp. I knew that when

> we did it, we

> > wanted to do it right and that I needed total control. We've seen

remarkable

> > improvements in my son (who is also taking enzymes, probiotics, and cod

> liver oil----as

> > per doctor.)

> >

> > As I was sobbing on the phone with the doctor today, she struggled with the

> dilemma of if

> > this is die-off, I need this diet for reasons we didn't know, but also she

> cannot tolerate me

> > being in this much pain. But she is new to this diet, too. (A doctor at

the lab

> who did my

> > son's CSA suggested the book to her. She has read it, as have I, but never

> had a patient

> > on the diet before.)

> >

> > But I'm in so much pain I'm beginning to question my sanity. Is there

> anything we are

> > overlooking that we could do? I really cannot be in pain like this and

> function. Please

> > help, if you have anything to offer.

> >

> > Thanks,

> >

> > Angie

> >

>

[Guest guest]

520 mg. of activated charcoal. Sometimes every two hours--but sometimes not

because I

don't want to interfere with taking magnesium.

I am not having stomach cramping. I was taking a.c. to help with this

pain---assuming

die-of. But I wasn't taking it until the pain started, so the a.c. didn't start

this.

Low-grade 99.5 this morning. First time I've felt any bit feverish.

I'm not taking any of the enzymes/cod live oil/probiotics that my son is.

Poop talk: just once since Saturday morning. How to get this moving along

more?? I've

been constipated before in my life----don't feel constipated.

Urine output seems fine. I've never had a uti.

No yogurt.

Saturday and Sunday: chicken soup as per p. 91 BTVC, eggs, homemade gelatin

with legal

grape juice, beef patty. Monday and today added to that bananas, homemade

applesauce,

homemade pearsauce, green beans, cooked carrots.

I thought I was doing a little better today, but having been sitting/lying on my

bed for just

a bit handling bills/email, and I've ended up just sobbing.

I just don't understand this.

Angie

>

> Hi, Angie.

>

> Welcome to the list.

>

> I am wondering about the activated charcoal. How much are you taking? Aside

from the

leg pain, are you suffering from stomach cramping, pain, etc? Is this why you

are taking

it? Too much activated charcoal can cause muscle cramping. This sounds more

severe

than that, however.

>

> Are you running a fever?

>

> I echo Patti's comments on calcium and dehydration (which I know you said that

you

were drinking 'tons of water', but activated charcoal can cause dehydration).

Low

potassium levels can cause leg cramping, as well. But, your vitamin should

cover the

potassium levels adequately. Not sure about the calcium.

>

> Are you taking the enzymes/probiotics/cod liver oil that your son is taking?

Might be a

good idea?

>

> I am going to tread the poop terrain that we so often do on this list---sorry!

But, are

you constipated? How are you bowel movements? Have they been normal?

>

> Constipation can cause lower back and upper leg pain. Call your doctor if you

have

constipation with a fever and intolerable pain.

>

> Could it be a urinary tract/kidney infection? How is your urine output? The

pain can

radiate to the legs.

>

> Also, the standard SCD questions---what are you eating? Have you added

yogurt? Did

you start with the Intro diet--if not, maybe going back to the intro diet for a

few days

would be beneficial--you probably do not feel like eating much at this point

anyway.

>

> I am not a medical professional. I hate to have you in so much pain. I am

hoping that if

you are still at this level of pain today, that you seek medical attention.

>

> I will be thinking of you! Sorry it has been so rough, and I hope you find

relief soon.

>

>

> Sincerely,

>

> SCD 2 years

> Mom to Dakota (8--NF, CDD, Seizures) and (6--happy, healthy, and

supportive

little brother)

>

>

[Guest guest]

And maybe cramping isn't the right word. Slight pain in lower back, greater

pain in back

of lower hips, great pain down backs of thighs. Cannot bend over to pick up

anything.Improvement with hot baths and long walks, but then it builds back up,

particularly if I sit or lie.

Angie

> > >

> > > My family of four went 100% SCD July 1 in support of my extreme

> ADHD 9

> > year old son

> > > who has malabsorption problems. Both sons (the other is 12) and my

> > husband are doing

> > > okay---some weakness, some stomach upset, some irritability. I am

> > suffering greatly. I

> > > am having horrendous cramping from my hips to just above my knees.

> It

> > had bothered

> > > me Saturday night a little, but last night I awoke around 2 a.m.

> and have not

> > been back to

> > > sleep since (it is 11 on Monday night). I cannot lay down without

> extreme

> > pain and sitting

> > > isn't great. Walking is good after about 20 minutes, but

> otherwise I'm in an

> > extreme

> > > amount of pain.

> > >

> > > I've been taking epsom salt baths. I've been using a heating pad.

> I'm taking

> > 1000 mg/

> > > magnesium/day, plus Freeda vitaminis plus Vit C (1000 mg.) AND

> activated

> > charcoal.

> > > Yes, all legal supplements and yes taking apart from the charcoal.

> I'm

> > drinking tons of

> > > water. I'm still in agony. I spoke to my son's doctor, and she

> wasn't sure

> > what to do

> > > either.

> > >

> > > I understand the value of this diet, particularly for my son. My

> son and I

> > have been mostly

> > > SCD for a couple of months, but waited to go 100% until I could

> learn about

> > it, convert the

> > > familiy off of 18 years of vegetarianism (still learning how to

> cook), get the

> > family through

> > > a trip to Paris and my son through a week of drama camp. I knew

> that when

> > we did it, we

> > > wanted to do it right and that I needed total control. We've seen

> remarkable

> > > improvements in my son (who is also taking enzymes, probiotics,

> and cod

> > liver oil----as

> > > per doctor.)

> > >

> > > As I was sobbing on the phone with the doctor today, she struggled

> with the

> > dilemma of if

> > > this is die-off, I need this diet for reasons we didn't know, but

> also she

> > cannot tolerate me

> > > being in this much pain. But she is new to this diet, too. (A

> doctor at the lab

> > who did my

> > > son's CSA suggested the book to her. She has read it, as have I,

> but never

> > had a patient

> > > on the diet before.)

> > >

> > > But I'm in so much pain I'm beginning to question my sanity. Is

> there

> > anything we are

> > > overlooking that we could do? I really cannot be in pain like

> this and

> > function. Please

> > > help, if you have anything to offer.

> > >

> > > Thanks,

> > >

> > > Angie

> > >

> >

>

[Guest guest]

And maybe cramping isn't the right word. Slight pain in lower back, greater

pain in back

of lower hips, great pain down backs of thighs. Cannot bend over to pick up

anything.Improvement with hot baths and long walks, but then it builds back up,

particularly if I sit or lie. But it is both sides. Would sudden sciatica be

on both sides?

Angie

> > >

> > > My family of four went 100% SCD July 1 in support of my extreme

> ADHD 9

> > year old son

> > > who has malabsorption problems. Both sons (the other is 12) and my

> > husband are doing

> > > okay---some weakness, some stomach upset, some irritability. I am

> > suffering greatly. I

> > > am having horrendous cramping from my hips to just above my knees.

> It

> > had bothered

> > > me Saturday night a little, but last night I awoke around 2 a.m.

> and have not

> > been back to

> > > sleep since (it is 11 on Monday night). I cannot lay down without

> extreme

> > pain and sitting

> > > isn't great. Walking is good after about 20 minutes, but

> otherwise I'm in an

> > extreme

> > > amount of pain.

> > >

> > > I've been taking epsom salt baths. I've been using a heating pad.

> I'm taking

> > 1000 mg/

> > > magnesium/day, plus Freeda vitaminis plus Vit C (1000 mg.) AND

> activated

> > charcoal.

> > > Yes, all legal supplements and yes taking apart from the charcoal.

> I'm

> > drinking tons of

> > > water. I'm still in agony. I spoke to my son's doctor, and she

> wasn't sure

> > what to do

> > > either.

> > >

> > > I understand the value of this diet, particularly for my son. My

> son and I

> > have been mostly

> > > SCD for a couple of months, but waited to go 100% until I could

> learn about

> > it, convert the

> > > familiy off of 18 years of vegetarianism (still learning how to

> cook), get the

> > family through

> > > a trip to Paris and my son through a week of drama camp. I knew

> that when

> > we did it, we

> > > wanted to do it right and that I needed total control. We've seen

> remarkable

> > > improvements in my son (who is also taking enzymes, probiotics,

> and cod

> > liver oil----as

> > > per doctor.)

> > >

> > > As I was sobbing on the phone with the doctor today, she struggled

> with the

> > dilemma of if

> > > this is die-off, I need this diet for reasons we didn't know, but

> also she

> > cannot tolerate me

> > > being in this much pain. But she is new to this diet, too. (A

> doctor at the lab

> > who did my

> > > son's CSA suggested the book to her. She has read it, as have I,

> but never

> > had a patient

> > > on the diet before.)

> > >

> > > But I'm in so much pain I'm beginning to question my sanity. Is

> there

> > anything we are

> > > overlooking that we could do? I really cannot be in pain like

> this and

> > function. Please

> > > help, if you have anything to offer.

> > >

> > > Thanks,

> > >

> > > Angie

> > >

> >

>

[Guest guest]

Described food in a response just a few minutes ago. Yes, still in pain. Cannot

even think

right now---daily diet before was not a ton of junk----close to SCD for a

couplpe of

months but meat only about once a day. My activities were working (desk

job---library

book cataloger) and yoga and dance conditioning classes. Right now I cannot

even see

going in to work tomorrow.

Angie

> My Poor Dear Angie,

> Am I correct in assuming you have been following the Intro Diet? It is now

July 4. Are

you

> still in pain? Can you describe what your typical daily mrenu consisted of

before you

> started SCD?

>

> What were your actvities just oprior to starting SCD?

>

> This advice may not be univerally supported by the moderators, but if you are

still in

pain,

> I would revert to my previous diet and see if the pain subsides. Then try the

SCD Intro

Diet

> again (chicken soup. beef patties, gelatin, cheesecake etc.).

> I also never heard of such an extreme initial reaction.

>

> Please let us know how you are doing today.

>

> Carol F.

> Celiac, MCS. Latex Allergy, SCD 6 years

>

[Guest guest]

>

>

> Please consider seeing your doctor for a full exam.

>

And I guess I will check into that tomorrow. As this is 4th of July in USA, no

one is available

unless I went to er. And I think at an er, a doctor would just tell me to get

off the weird diet

and I wouldn't get any help.

Angie

[Guest guest]

The way I was eating before this weekend was like SCD several months down the

road.

Now we've started at the beginning---intro diet for two days then adding cooked

apples,

pears, carrots, green beans, and raw very ripe bananas None of those are new to

me, just

all the cooking.

Angie

>

> Hi Angie,

>

> > I understand the value of this diet, particularly for my son. My

> son and I have been mostly

> > SCD for a couple of months, but waited to go 100% until I could

> learn about it

>

> What were you eating before when you were mostly SCD and what are you

> eating now that's different?

>

> Sheila, SCD 2/01, UC 22yrs

> mom of and

>

[Guest guest]

funny example. as I do weigh 128. I'm not drinking any but water, except

chicken broth.

I would actually love a little tea, but we haven't added anything like that yet.

But I do know

that I am easily drinking 8/8 a day. no problem there. I've always been a big

water

drinker. Angie

> >

> > Angie,

> >

> > I'm not sure what to tell you. I have never heard of anyone

> suffering pain to this degree as they are beginning SCD. If you had

> a serious GI condition, that was already causing you some trouble,

> then pain might be understandable... at least somewhat. And, of

> course, one would expect GI pain... not leg pain.

> >

> > Something really seems very wrong here... and I must say, I'm

> entirely stumped. I know it would be a very unlikely coincidence,

> but I'm wondering if the pain could possibly be caused by something

> unrelated to the diet, that just happened to come on just as you

> began?

> >

> > I am not sure the cramping you're experiencing is actually in the

> muscles... I am guessing it must be??

> > The only other thing I would tell someone who is having muscle

> cramps is to make sure they are getting enough calcium. You are

> taking a LOT of magnesium...are you used to taking that much?

> Perhaps it needs to be balanced by calcium? Usually, magnesium is

> taken in a proportion of about half the milligram dosage as calcium.

> That's not SCD protocol... that's just my recollection and what I'm

> familiar with.

> >

> > The only other thing I would throw out there would be dehydration.

> I guess that depends on how hot the weather is where you are... and

> how much you are drinking. Are you getting enough salt, etc. ??

> >

> > Please note... I am not a doctor and am not trying to give you

> medical advice. I just don't know what else to suggest. I think if

> the extreme pain continues, and you think it is caused by the diet,

> I would recommend stopping for a while.... until you are sure what's

> going on.

> >

> > I'm sorry you're having such a rough time.

> >

> > Patti

> >

> > Die-off or something else?

> >

> >

> > My family of four went 100% SCD July 1 in support of my extreme

> ADHD 9 year old son

> > who has malabsorption problems. Both sons (the other is 12) and

> my husband are doing

> > okay---some weakness, some stomach upset, some irritability. I

> am suffering greatly. I

> > am having horrendous cramping from my hips to just above my

> knees. It had bothered

> > me Saturday night a little, but last night I awoke around 2 a.m.

> and have not been back to

> > sleep since (it is 11 on Monday night). I cannot lay down

> without extreme pain and sitting

> > isn't great. Walking is good after about 20 minutes, but

> otherwise I'm in an extreme

> > amount of pain.

> >

> > I've been taking epsom salt baths. I've been using a heating

> pad. I'm taking 1000 mg/

> > magnesium/day, plus Freeda vitaminis plus Vit C (1000 mg.) AND

> activated charcoal.

> > Yes, all legal supplements and yes taking apart from the

> charcoal. I'm drinking tons of

> > water. I'm still in agony. I spoke to my son's doctor, and she

> wasn't sure what to do

> > either.

> >

> > I understand the value of this diet, particularly for my son.

> My son and I have been mostly

> > SCD for a couple of months, but waited to go 100% until I could

> learn about it, convert the

> > familiy off of 18 years of vegetarianism (still learning how to

> cook), get the family through

> > a trip to Paris and my son through a week of drama camp. I knew

> that when we did it, we

> > wanted to do it right and that I needed total control. We've

> seen remarkable

> > improvements in my son (who is also taking enzymes, probiotics,

> and cod liver oil----as

> > per doctor.)

> >

> > As I was sobbing on the phone with the doctor today, she

> struggled with the dilemma of if

> > this is die-off, I need this diet for reasons we didn't know,

> but also she cannot tolerate me

> > being in this much pain. But she is new to this diet, too. (A

> doctor at the lab who did my

> > son's CSA suggested the book to her. She has read it, as have

> I, but never had a patient

> > on the diet before.)

> >

> > But I'm in so much pain I'm beginning to question my sanity. Is

> there anything we are

> > overlooking that we could do? I really cannot be in pain like

> this and function. Please

> > help, if you have anything to offer.

> >

> > Thanks,

> >

> > Angie

> >

> >

> >

> >

> >

> >

> >

> > For information on the Specific Carbohydrate Diet, please read

> the book _Breaking the Vicious Cycle_ by Elaine Gottschall and read

> the following websites:

> > http://www.breakingtheviciouscycle.info

> > and

> > http://www.pecanbread.com

> >

> >

[Guest guest]

It is usually on one side but it can be on both if the pinch is severe

enough. Being that it is constant pain worse if you sit or lie I would

say yes. The most pressure is put on your back in these positions,

especially sitting. If you are comfortable with going to a

chiropractor-ask around for referrals if you have never been- I would

definitely have it checked out. It could also be a bulging disc in

your low back which may be more indicative of pain on both sides. For

this traction and adjustments are typically used. Until you can get an

appointment I would recommend exactly what you have been doing. Try

not to aggrevate it with it already being inflamed. Moist heat is

better than dry heat if you have a heating pad. Put a moist towel-not

dripping wet over your back and then put the heating pad over that. Or

if you don't have a heating pad fill up a tubesock half full with rice

tie a knot in it and put it in the microwave for a couple of minutes.

This will release some steam and give you moist heat. One last thing,

if you have a 'donut' pillow to sit on those are great for sciatica.

It takes some pressure off your low back that way. Again, I am not a

medical professional, I have just dealt with this alot and this is

what is recommended. What state are you in? I am in Texas and I may be

able to recommend a good one. Good Luck!

Mandy

> > > >

> > > > My family of four went 100% SCD July 1 in support of my extreme

> > ADHD 9

> > > year old son

> > > > who has malabsorption problems. Both sons (the other is 12)

and my

> > > husband are doing

> > > > okay---some weakness, some stomach upset, some irritability.

I am

> > > suffering greatly. I

> > > > am having horrendous cramping from my hips to just above my knees.

> > It

> > > had bothered

> > > > me Saturday night a little, but last night I awoke around 2 a.m.

> > and have not

> > > been back to

> > > > sleep since (it is 11 on Monday night). I cannot lay down without

> > extreme

> > > pain and sitting

> > > > isn't great. Walking is good after about 20 minutes, but

> > otherwise I'm in an

> > > extreme

> > > > amount of pain.

> > > >

> > > > I've been taking epsom salt baths. I've been using a heating pad.

> > I'm taking

> > > 1000 mg/

> > > > magnesium/day, plus Freeda vitaminis plus Vit C (1000 mg.) AND

> > activated

> > > charcoal.

> > > > Yes, all legal supplements and yes taking apart from the charcoal.

> > I'm

> > > drinking tons of

> > > > water. I'm still in agony. I spoke to my son's doctor, and she

> > wasn't sure

> > > what to do

> > > > either.

> > > >

> > > > I understand the value of this diet, particularly for my son. My

> > son and I

> > > have been mostly

> > > > SCD for a couple of months, but waited to go 100% until I could

> > learn about

> > > it, convert the

> > > > familiy off of 18 years of vegetarianism (still learning how to

> > cook), get the

> > > family through

> > > > a trip to Paris and my son through a week of drama camp. I knew

> > that when

> > > we did it, we

> > > > wanted to do it right and that I needed total control. We've seen

> > remarkable

> > > > improvements in my son (who is also taking enzymes, probiotics,

> > and cod

> > > liver oil----as

> > > > per doctor.)

> > > >

> > > > As I was sobbing on the phone with the doctor today, she struggled

> > with the

> > > dilemma of if

> > > > this is die-off, I need this diet for reasons we didn't know, but

> > also she

> > > cannot tolerate me

> > > > being in this much pain. But she is new to this diet, too. (A

> > doctor at the lab

> > > who did my

> > > > son's CSA suggested the book to her. She has read it, as have I,

> > but never

> > > had a patient

> > > > on the diet before.)

> > > >

> > > > But I'm in so much pain I'm beginning to question my sanity. Is

> > there

> > > anything we are

> > > > overlooking that we could do? I really cannot be in pain like

> > this and

> > > function. Please

> > > > help, if you have anything to offer.

> > > >

> > > > Thanks,

> > > >

> > > > Angie

> > > >

> > >

> >

>

[Guest guest]

I went to this amount of magnesium on advice from doctor trying to solve this

mystery.

Why is magnesium seen as good and bad for cramping?

I was trying to take so much vit c/mag to help with constipation. Other ideas

welcome.

Water drinking is very spread out, except for an almost full glass when I take

the charcoal.

Angie

> >

> > My family of four went 100% SCD July 1 in support of my extreme ADHD

> 9 year old son

> > who has malabsorption problems. Both sons (the other is 12) and my

> husband are doing

> > okay---some weakness, some stomach upset, some irritability. I am

> suffering greatly. I

> > am having horrendous cramping from my hips to just above my knees.

> It had bothered

> > me Saturday night a little, but last night I awoke around 2 a.m. and

> have not been back to

> > sleep since (it is 11 on Monday night). I cannot lay down without

> extreme pain and sitting

> > isn't great. Walking is good after about 20 minutes, but otherwise

> I'm in an extreme

> > amount of pain.

> >

> > I've been taking epsom salt baths. I've been using a heating pad.

> I'm taking 1000 mg/

> > magnesium/day, plus Freeda vitaminis plus Vit C (1000 mg.) AND

> activated charcoal.

> > Yes, all legal supplements and yes taking apart from the charcoal.

> I'm drinking tons of

> > water. I'm still in agony. I spoke to my son's doctor, and she

> wasn't sure what to do

> > either.

> >

> > I understand the value of this diet, particularly for my son. My

> son and I have been mostly

> > SCD for a couple of months, but waited to go 100% until I could

> learn about it, convert the

> > familiy off of 18 years of vegetarianism (still learning how to

> cook), get the family through

> > a trip to Paris and my son through a week of drama camp. I knew

> that when we did it, we

> > wanted to do it right and that I needed total control. We've seen

> remarkable

> > improvements in my son (who is also taking enzymes, probiotics, and

> cod liver oil----as

> > per doctor.)

> >

> > As I was sobbing on the phone with the doctor today, she struggled

> with the dilemma of if

> > this is die-off, I need this diet for reasons we didn't know, but

> also she cannot tolerate me

> > being in this much pain. But she is new to this diet, too. (A

> doctor at the lab who did my

> > son's CSA suggested the book to her. She has read it, as have I,

> but never had a patient

> > on the diet before.)

> >

> > But I'm in so much pain I'm beginning to question my sanity. Is

> there anything we are

> > overlooking that we could do? I really cannot be in pain like this

> and function. Please

> > help, if you have anything to offer.

> >

> > Thanks,

> >

> > Angie

> >

>

[Guest guest]

Not having frequent bowel movements. Not having loose stool at all.

thanks---will look at site===wasn't on this much mag. previously.

angie

> > >

> > > My family of four went 100% SCD July 1 in support of my extreme ADHD

> > 9 year old son

> > > who has malabsorption problems. Both sons (the other is 12) and my

> > husband are doing

> > > okay---some weakness, some stomach upset, some irritability. I am

> > suffering greatly. I

> > > am having horrendous cramping from my hips to just above my knees.

> > It had bothered

> > > me Saturday night a little, but last night I awoke around 2 a.m. and

> > have not been back to

> > > sleep since (it is 11 on Monday night). I cannot lay down without

> > extreme pain and sitting

> > > isn't great. Walking is good after about 20 minutes, but otherwise

> > I'm in an extreme

> > > amount of pain.

> > >

> > > I've been taking epsom salt baths. I've been using a heating pad.

> > I'm taking 1000 mg/

> > > magnesium/day, plus Freeda vitaminis plus Vit C (1000 mg.) AND

> > activated charcoal.

> > > Yes, all legal supplements and yes taking apart from the charcoal.

> > I'm drinking tons of

> > > water. I'm still in agony. I spoke to my son's doctor, and she

> > wasn't sure what to do

> > > either.

> > >

> > > I understand the value of this diet, particularly for my son. My

> > son and I have been mostly

> > > SCD for a couple of months, but waited to go 100% until I could

> > learn about it, convert the

> > > familiy off of 18 years of vegetarianism (still learning how to

> > cook), get the family through

> > > a trip to Paris and my son through a week of drama camp. I knew

> > that when we did it, we

> > > wanted to do it right and that I needed total control. We've seen

> > remarkable

> > > improvements in my son (who is also taking enzymes, probiotics, and

> > cod liver oil----as

> > > per doctor.)

> > >

> > > As I was sobbing on the phone with the doctor today, she struggled

> > with the dilemma of if

> > > this is die-off, I need this diet for reasons we didn't know, but

> > also she cannot tolerate me

> > > being in this much pain. But she is new to this diet, too. (A

> > doctor at the lab who did my

> > > son's CSA suggested the book to her. She has read it, as have I,

> > but never had a patient

> > > on the diet before.)

> > >

> > > But I'm in so much pain I'm beginning to question my sanity. Is

> > there anything we are

> > > overlooking that we could do? I really cannot be in pain like this

> > and function. Please

> > > help, if you have anything to offer.

> > >

> > > Thanks,

> > >

> > > Angie

> > >

> >

>

[Guest guest]

I'm in the middle of nowhere Virginia. thanks for the offer. will call doctor

tomorrow.

angie

> > > > >

> > > > > My family of four went 100% SCD July 1 in support of my extreme

> > > ADHD 9

> > > > year old son

> > > > > who has malabsorption problems. Both sons (the other is 12)

> and my

> > > > husband are doing

> > > > > okay---some weakness, some stomach upset, some irritability.

> I am

> > > > suffering greatly. I

> > > > > am having horrendous cramping from my hips to just above my knees.

> > > It

> > > > had bothered

> > > > > me Saturday night a little, but last night I awoke around 2 a.m.

> > > and have not

> > > > been back to

> > > > > sleep since (it is 11 on Monday night). I cannot lay down without

> > > extreme

> > > > pain and sitting

> > > > > isn't great. Walking is good after about 20 minutes, but

> > > otherwise I'm in an

> > > > extreme

> > > > > amount of pain.

> > > > >

> > > > > I've been taking epsom salt baths. I've been using a heating pad.

> > > I'm taking

> > > > 1000 mg/

> > > > > magnesium/day, plus Freeda vitaminis plus Vit C (1000 mg.) AND

> > > activated

> > > > charcoal.

> > > > > Yes, all legal supplements and yes taking apart from the charcoal.

> > > I'm

> > > > drinking tons of

> > > > > water. I'm still in agony. I spoke to my son's doctor, and she

> > > wasn't sure

> > > > what to do

> > > > > either.

> > > > >

> > > > > I understand the value of this diet, particularly for my son. My

> > > son and I

> > > > have been mostly

> > > > > SCD for a couple of months, but waited to go 100% until I could

> > > learn about

> > > > it, convert the

> > > > > familiy off of 18 years of vegetarianism (still learning how to

> > > cook), get the

> > > > family through

> > > > > a trip to Paris and my son through a week of drama camp. I knew

> > > that when

> > > > we did it, we

> > > > > wanted to do it right and that I needed total control. We've seen

> > > remarkable

> > > > > improvements in my son (who is also taking enzymes, probiotics,

> > > and cod

> > > > liver oil----as

> > > > > per doctor.)

> > > > >

> > > > > As I was sobbing on the phone with the doctor today, she struggled

> > > with the

> > > > dilemma of if

> > > > > this is die-off, I need this diet for reasons we didn't know, but

> > > also she

> > > > cannot tolerate me

> > > > > being in this much pain. But she is new to this diet, too. (A

> > > doctor at the lab

> > > > who did my

> > > > > son's CSA suggested the book to her. She has read it, as have I,

> > > but never

> > > > had a patient

> > > > > on the diet before.)

> > > > >

> > > > > But I'm in so much pain I'm beginning to question my sanity. Is

> > > there

> > > > anything we are

> > > > > overlooking that we could do? I really cannot be in pain like

> > > this and

> > > > function. Please

> > > > > help, if you have anything to offer.

> > > > >

> > > > > Thanks,

> > > > >

> > > > > Angie

> > > > >

> > > >

> > >

> >

>

[Guest guest]

Dear Angie,

I had similar feelings a few months back. It seems all the loose stools

led to a urinary tract infection. My back was killing me...on top of the

colon and bathroom problems. You might want to check this out. I'm not

saying this is a UTI for sure but maybe it should be ruled out.

Hoping you feel better soon!

Ronnie

gus17mom wrote:

> And maybe cramping isn't the right word. Slight pain in lower back,

> greater pain in back

> of lower hips, great pain down backs of thighs. Cannot bend over to

> pick up

> anything.Improvement with hot baths and long walks, but then it builds

> back up,

> particularly if I sit or lie.

>

> Angie

>

>

> > > >

> > > > My family of four went 100% SCD July 1 in support of my extreme

> > ADHD 9

> > > year old son

> > > > who has malabsorption problems. Both sons (the other is 12) and

> my

> > > husband are doing

> > > > okay---some weakness, some stomach upset, some irritability. I

> am

> > > suffering greatly. I

> > > > am having horrendous cramping from my hips to just above my

> knees.

> > It

> > > had bothered

> > > > me Saturday night a little, but last night I awoke around 2 a.m.

>

> > and have not

> > > been back to

> > > > sleep since (it is 11 on Monday night). I cannot lay down

> without

> > extreme

> > > pain and sitting

> > > > isn't great. Walking is good after about 20 minutes, but

> > otherwise I'm in an

> > > extreme

> > > > amount of pain.

> > > >

> > > > I've been taking epsom salt baths. I've been using a heating

> pad.

> > I'm taking

> > > 1000 mg/

> > > > magnesium/day, plus Freeda vitaminis plus Vit C (1000 mg.) AND

> > activated

> > > charcoal.

> > > > Yes, all legal supplements and yes taking apart from the

> charcoal.

> > I'm

> > > drinking tons of

> > > > water. I'm still in agony. I spoke to my son's doctor, and she

> > wasn't sure

> > > what to do

> > > > either.

> > > >

> > > > I understand the value of this diet, particularly for my son. My

>

> > son and I

> > > have been mostly

> > > > SCD for a couple of months, but waited to go 100% until I could

> > learn about

> > > it, convert the

> > > > familiy off of 18 years of vegetarianism (still learning how to

> > cook), get the

> > > family through

> > > > a trip to Paris and my son through a week of drama camp. I knew

> > that when

> > > we did it, we

> > > > wanted to do it right and that I needed total control. We've

> seen

> > remarkable

> > > > improvements in my son (who is also taking enzymes, probiotics,

> > and cod

> > > liver oil----as

> > > > per doctor.)

> > > >

> > > > As I was sobbing on the phone with the doctor today, she

> struggled

> > with the

> > > dilemma of if

> > > > this is die-off, I need this diet for reasons we didn't know,

> but

> > also she

> > > cannot tolerate me

> > > > being in this much pain. But she is new to this diet, too. (A

> > doctor at the lab

> > > who did my

> > > > son's CSA suggested the book to her. She has read it, as have I,

>

> > but never

> > > had a patient

> > > > on the diet before.)

> > > >

> > > > But I'm in so much pain I'm beginning to question my sanity. Is

> > there

> > > anything we are

> > > > overlooking that we could do? I really cannot be in pain like

> > this and

> > > function. Please

> > > > help, if you have anything to offer.

> > > >

> > > > Thanks,

> > > >

> > > > Angie

> > > >

> > >

> >

>

>

>

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