Re: Darkness Prevails

[Guest guest]

Hey....I got power this morning but my cable/TV was out til this afternoon.

WOW was it dark last night.

I am hot and cranky. Today is my 39th birthday. 7 yrs ago today my world

changed. I found out (then 6) had CF. That morning I was at work, 7 mos

pregnant laughing with a friend that the drs. were idiots for suspecting it;

that the odds were staggering. Who is laughing now?

I am kind of miserable today. I just feel like CF has taken such a toll on

my life, my marriage is shot, my kids - well - they are OK but constant fighing

over meds and treatments wears you down, friends have vanished, although I

made new wonderful ones. I have no one to confide in - I mean really confide

in - I used to be very close to my mother but she died 13 yrs. ago.

I view pix - I used to be 60 pds lighter til I made a new friend and way of

coping FOOD - I am tired of looking at pix and my life in terms of BEFORE and

AFTER........

/ tell me how they hate having CF, that they are miserable. Where

do I go from here? I used to say " AS long as the baby is healthy " then I

said " as long as there happy " now I am at a loss..........

I know I am lucky............but its trying today

Rosemary in NY with 3 children (13, 10.6 and 6.6)

with CF. I have a dog named TOBI and have

coined the phrase " BREATHE DAMMIT "

[Guest guest]

ROSEMARY,

First of all, HAPPY BIRTHDAY!!!!!!!!!!!!!!!!!!1

I guess as to the rest of your message, it is hard trying to do all by

yourself. It is hard to be positive all the time! It is hard to be the Mom

and the Dad both. I believe that we are never given anything that we can't

handle. It makes us stronger people.

You could be sitting there by yourself!

Get up from the computer and go give your kids a hug and thank God you are

alive and well and you have to wonderful children to hug you back.

My children have given me many many gifts that I know I wouldn't have if it

had not been for CF and the way it changed by life.

Tina, mom of Steph 17yoa wcf, 26 yow, ncf

Re: Darkness Prevails

Hey....I got power this morning but my cable/TV was out til this afternoon.

WOW was it dark last night.

I am hot and cranky. Today is my 39th birthday. 7 yrs ago today my world

changed. I found out (then 6) had CF. That morning I was at work, 7

mos

pregnant laughing with a friend that the drs. were idiots for suspecting it;

that the odds were staggering. Who is laughing now?

I am kind of miserable today. I just feel like CF has taken such a toll on

my life, my marriage is shot, my kids - well - they are OK but constant

fighing

over meds and treatments wears you down, friends have vanished, although I

made new wonderful ones. I have no one to confide in - I mean really

confide

in - I used to be very close to my mother but she died 13 yrs. ago.

I view pix - I used to be 60 pds lighter til I made a new friend and way of

coping FOOD - I am tired of looking at pix and my life in terms of BEFORE

and

AFTER........

/ tell me how they hate having CF, that they are miserable. Where

do I go from here? I used to say " AS long as the baby is healthy " then I

said " as long as there happy " now I am at a loss..........

I know I am lucky............but its trying today

Rosemary in NY with 3 children (13, 10.6 and 6.6)

with CF. I have a dog named TOBI and have

coined the phrase " BREATHE DAMMIT "

[Guest guest]

Oh, Rosemary... normally I'd say " Happy birthday! " but that sounds so

demeaning to what you're going through right now.

I am relieved to know you have partically restored power. I stayed up

late last night watching the news about the blackout, wondering how

everyone who relies on nebulizers and the Vest was faring.

Yesterday was so far the hottest most humid day of the year in

Chicago. 's girlfriend calls this weather " obscene, " and she's

right. Yesterday was like walking around cloaked in a hot wet towel. I

could only imagine it must have been hundred times worse for people

without electricity.

I wish we could all be there to help you celebrate your special day.

I'd bake an enormous chocolate cake, decorated with bright gooey

flowers. And we'd eat it with lots of ice cream and big spoons so not

a drop is wasted.

And when we grew tired of sweets, we'd have chips with salsa and let

the margaritas flow... so we could get wasted.

And we could play pin the scapel on whatever doctor pissed us off that

day.

We'd all pitch in to clean the house, scratch the husband off the list

of things to do, and ship the kids outdoors to burn off the sqabbling,

fussy energy.

When I'm feeling my worst, I like to remember this saying. I don't

know the author.

" The most beautiful stones have been tossed by the wind

and washed by the waters and polished to brilliance by

life's strongest storms. "

Happy birthday, Rosemary. You're a true gem.

Kim

[Guest guest]

Rosemary,

Happy Birthday! Sorry it wasn't the greatest in the world. At least the

power is back on now.

I have been so worried about you and others in the blackout areas. It is bad

enough to deal with the problems of a blackout and trying to take care of

kids needing power to do their nebs and vests makes the problems astronomical.

Hope everything is better now the power is on again.

You are a tough girl. Just hang in there.

I want to have cake, ice cream, chips & salsa, & margarita's with ya too!

Love ya!

Aunt B

[Guest guest]

Rosemary,

I haven't had a lot of time lately to read all of the posts. I

always enjoy reading yours. You are so articulate and can so easily

convey your inner feelings. You are witty and warm. This particular

post really effects me. I have have re-read it several times now and

just printed it out to show to my husband. I hope that you find true

happiness really soon. You desrve it; for all you do for your family

and for this list. As a matter of fact, I hope that this response

finds you in the middle of a harty laugh with a close friend.

Thinking of you,

Gale