Guest guest Posted August 22, 2003 Report Share Posted August 22, 2003 Ricky's CF doc mentioned a trial of Tobi where it would be one quick dose that they inhale like an inhaler. There is a trial coming up and she wants us to participate in this, particularly because we find the time constraints of 20 minutes of Tobi to be wearing. Has anyone heard of this? Becky (mom of Ricky 7 with CF and Andy 5 no CF) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2003 Report Share Posted August 22, 2003 I haven't heard of it but I would love to try it. that wait for Tobi to be finished is like pulling teeth with . Tobi trials Ricky's CF doc mentioned a trial of Tobi where it would be one quick dose that they inhale like an inhaler. There is a trial coming up and she wants us to participate in this, particularly because we find the time constraints of 20 minutes of Tobi to be wearing. Has anyone heard of this? Becky (mom of Ricky 7 with CF and Andy 5 no CF) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2003 Report Share Posted August 22, 2003 I hear you. Ricky acts like he is being tortured. " Not the yucky one! That one takes too long! " blah blah blah. I try to explain to him that it's only for four weeks but he has little concept of time. Then the four weeks without Tobi go by and it's like no time has passed and we're back to it again! As I understand it, the trial involves a sort of injector pen that the child inhales the medication out of. Sort of like the Advair inhaler has its medication, this would be a powdered form of Tobi. For the trial he would just get one dose, and then blood levels would be taken every hour all day. This sounds awful too, but if we can help get this form of the medication approved by the FDA I think I would do it. Becky mom of Ricky (7) with CF and Andy (5) no CF and starting kindergarten on Monday! Re: Tobi trials I haven't heard of it but I would love to try it. that wait for Tobi to be finished is like pulling teeth with . Tobi trials Ricky's CF doc mentioned a trial of Tobi where it would be one quick dose that they inhale like an inhaler. There is a trial coming up and she wants us to participate in this, particularly because we find the time constraints of 20 minutes of Tobi to be wearing. Has anyone heard of this? Becky (mom of Ricky 7 with CF and Andy 5 no CF) Quote Link to comment Share on other sites More sharing options...
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