Re: sharing a story of my Noelle

[Guest guest]

Maureen,

Thank you for sharing your story with us. I can't imagine how difficult it must

be for you, but anytime you want to talk about your Noelle, I'm sure everyone

here would love to listen. I hope you know that Noelle is still touching

people's lives, like all of us here. Thank you again, and I am sorry for your

loss.

Katy

Mom to Austin 4 no CF & Piper 13 months w/CF

[Guest guest]

Noelle sounds like a fighter to me. Thank you for letting me share in her

life story. I hope you are keeping a journal of your journey I find that a

journal has helped me through rough times in my life and whenever I feel weak or

strong, scared or brave, I like to look back and see where i've been and how I

was feeling. Isn't it amazing the strength we learn from our children.

I will keep your family in my thoughts. God Bless your daughter Noelle, an

angel to watch over you.

Amy - mom to Jack (6mon)having sweat test monday, Max(3),Sydney(8),

(12) Amy - Click to read " Max's Story " <A

HREF= " http://www.cappskids.org/CAPPSCranioKidMax.htm " >CAPPS CranioKid Max</A>

[Guest guest]

Yes, we sure would. She was also a very , very pretty gal to look at . I

still keep her picture up in my office. A lovely gal. helps to remind why we

all need to keep awareness out there & more help for our families in this

fight.........Thanks so much for all of you being here & on ALL the lists to

support!!

LOVE & HUGS, grandmomBEV

Re: sharing a story of my Noelle

Maureen,

Thank you for sharing your story with us. I can't imagine how difficult it

must be for you, but anytime you want to talk about your Noelle, I'm sure

everyone here would love to listen. I hope you know that Noelle is still

touching people's lives, like all of us here. Thank you again, and I am

sorry for your loss.

Katy

Mom to Austin 4 no CF & Piper 13 months w/CF

[Guest guest]

Thank you for sharing about Noelle, my daughter will be 20 in October and I

would miss her terribly. I hope you planted a beautiful rose bush in her honor

so you could tend it and watch it bloom and grow to remind you of her. She

sounded very special. I have known several who have left this place called

earth and they were all very special and left a big impact on those they knew.

Please talk about her whenever you need to .

Have a great day of the last days of summer

judy

mom to almost 20 w/cf

[Guest guest]

so sorry to hear about your daughter.. I have 2 daughters with cf. April will be

22 and Lynne will be 18 next week. I am so sorry for you lost. Are you

from the pa area?

[Guest guest]

so sorry to hear about your daughter.. I have 2 daughters with cf. April will be

22 and Lynne will be 18 next week. I am so sorry for you lost. Are you

from the pa area?

[Guest guest]

hi Pam, im from the massachusettes area, thanks for your email.

Maureen----->-@

>From: PamH622@...

>Reply-To: cfparents

>To: cfparents

>Subject: Re: sharing a story of my Noelle

>Date: Fri, 22 Aug 2003 09:25:54 -0400

>

>so sorry to hear about your daughter.. I have 2 daughters with cf. April

>will be 22 and Lynne will be 18 next week. I am so sorry for you

>lost. Are you from the pa area?

>

>

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>be construed as medical advice.

>

>PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

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>

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