Re: /MRSA/VANCO = hospital &kidney damage

[Guest guest]

Hope this e mail finds everyone doing well. I am wondering if that can really

happen in this world of cf. Don't take me wrong tonight. I am depressed,

angry at cf, and very tired.

I am trying not to be negative but after the past 10 day hospital stay, all I

can say is someone better do something to put a stop to cf.

picked up MRSA approx. six weeks or so ago for the first time. Thanks

to all who answered me back regarding MRSA.

Well, after four weeks of IV's my daughter was extremely ill. She was on oral

Zithromax, IV Tobra, Vanco, and Zocyn. She got to the point that she could

barely walk, or move, all of her joints were in extreme pain, she was

continually running 102 fever and finally had to pack up for the six hour drive

once

again.

By the time we got to Sacramento, she was crying from her pain and I was

really scared. was admitted to the hospital to figure out what was going

on

with her. An infectious disease specialist was brought into the picture, a

bronch was done, and tons of blood work.

The next day, we find out that the Vanco was causing kidney damage. The Vanco

level was up to 88 in her blood and wasn't to be over 10. Her creatinine was

up to 4.4 and quite frankly just about everything in her blood work was either

double high, high or low. Her cf doctor, whom I feel is one step under GOD,

took her off of Vanco and Zocyn immediately.

To make a very long story short, now has kidney damage. Every time she

gets sick from now on, we will have to drive the six hour drive and be

admitted to regulate the IV meds and her kidneys.

I have asked and asked anyone and everyone I can about GLUTHONIONE. Something

inside of me is telling me this is the answer to wonders of help with this

terrible disease but yet NO ONE will tell me I can give it to her.

Has anyone that is taking GLUTHONIONE stopped culturing psudo and or MRSA

since inhailing it????

I will not loose my daughter to cf. I have to find out how to help her. If

Vanco can cause such harm, how couldn't it be ok to take GLUTHONIONE?

I just got home, I am beat, I probably don't make since, I should probably

write more in the morning.

Love you all,

Lorenzen, distraught mother of , 16 wcf

[Guest guest]

Wow this all sounds familiar. Savannah has gone toxic on both Tobi and Vanco

and has kidney problems too. She is 10 yrs. old. We too just got out of the

hospital and the MRSA is back under control. We do nebulized Vanco now to help

w/ her infection but not to tax her kidneys. I agree it is tough but keep up

the fight. Your daughter is being watched over. You are right about that.

Take Care-

Mother to 2 w/o CF and Savannah w/CF

[Guest guest]

Dear ,

I am so sorry that has gone through all this, it is just

horrible. Dr. Bishop is a very nice man if you write to him, he will

respond quickly. He is the guy who is doing a lot of work with GSH.

Hudson, the mother who brought GHS to the public light is

hanging around here so you will here from her too, I am sure. I am

going to look for Dr. Bishop's pager and I will e-mail it to you.

My thoughts are with you and .

mom of a 10 wcf, Venanzio 7 nocf, Pepe 3 nocf

This is Dr. Bishops e-mail address: UVCBISHO@...

> Hope this e mail finds everyone doing well. I am wondering if that

can really

> happen in this world of cf. Don't take me wrong tonight. I am

depressed,

> angry at cf, and very tired.

> I am trying not to be negative but after the past 10 day hospital

stay, all I

> can say is someone better do something to put a stop to cf.

> picked up MRSA approx. six weeks or so ago for the first

time. Thanks

> to all who answered me back regarding MRSA.

> Well, after four weeks of IV's my daughter was extremely ill. She

was on oral

> Zithromax, IV Tobra, Vanco, and Zocyn. She got to the point that

she could

> barely walk, or move, all of her joints were in extreme pain, she

was

> continually running 102 fever and finally had to pack up for the

six hour drive once

> again.

> By the time we got to Sacramento, she was crying from her pain and

I was

> really scared. was admitted to the hospital to figure out

what was going on

> with her. An infectious disease specialist was brought into the

picture, a

> bronch was done, and tons of blood work.

> The next day, we find out that the Vanco was causing kidney damage.

The Vanco

> level was up to 88 in her blood and wasn't to be over 10. Her

creatinine was

> up to 4.4 and quite frankly just about everything in her blood work

was either

> double high, high or low. Her cf doctor, whom I feel is one step

under GOD,

> took her off of Vanco and Zocyn immediately.

> To make a very long story short, now has kidney damage.

Every time she

> gets sick from now on, we will have to drive the six hour drive and

be

> admitted to regulate the IV meds and her kidneys.

> I have asked and asked anyone and everyone I can about GLUTHONIONE.

Something

> inside of me is telling me this is the answer to wonders of help

with this

> terrible disease but yet NO ONE will tell me I can give it to her.

> Has anyone that is taking GLUTHONIONE stopped culturing psudo and

or MRSA

> since inhailing it????

> I will not loose my daughter to cf. I have to find out how to help

her. If

> Vanco can cause such harm, how couldn't it be ok to take

GLUTHONIONE?

> I just got home, I am beat, I probably don't make since, I should

probably

> write more in the morning.

> Love you all,

> Lorenzen, distraught mother of , 16 wcf

>

>

>

[Guest guest]

,

I am sorry to hear what a horrible time that you and have

had. Thank you for sharing this experience with us. I will remember

it. Hopefully, knowing about 's experience with Vanco will

prevent us from ever going through the same thing. I hope that a

good rest will help to lift your spirits.

Gale

> Hope this e mail finds everyone doing well. I am wondering if that

can really

> happen in this world of cf. Don't take me wrong tonight. I am

depressed,

> angry at cf, and very tired.

> I am trying not to be negative but after the past 10 day hospital

stay, all I

> can say is someone better do something to put a stop to cf.

> picked up MRSA approx. six weeks or so ago for the first

time. Thanks

> to all who answered me back regarding MRSA.

> Well, after four weeks of IV's my daughter was extremely ill. She

was on oral

> Zithromax, IV Tobra, Vanco, and Zocyn. She got to the point that

she could

> barely walk, or move, all of her joints were in extreme pain, she

was

> continually running 102 fever and finally had to pack up for the

six hour drive once

> again.

> By the time we got to Sacramento, she was crying from her pain and

I was

> really scared. was admitted to the hospital to figure out

what was going on

> with her. An infectious disease specialist was brought into the

picture, a

> bronch was done, and tons of blood work.

> The next day, we find out that the Vanco was causing kidney damage.

The Vanco

> level was up to 88 in her blood and wasn't to be over 10. Her

creatinine was

> up to 4.4 and quite frankly just about everything in her blood work

was either

> double high, high or low. Her cf doctor, whom I feel is one step

under GOD,

> took her off of Vanco and Zocyn immediately.

> To make a very long story short, now has kidney damage.

Every time she

> gets sick from now on, we will have to drive the six hour drive and

be

> admitted to regulate the IV meds and her kidneys.

> I have asked and asked anyone and everyone I can about GLUTHONIONE.

Something

> inside of me is telling me this is the answer to wonders of help

with this

> terrible disease but yet NO ONE will tell me I can give it to her.

> Has anyone that is taking GLUTHONIONE stopped culturing psudo and

or MRSA

> since inhailing it????

> I will not loose my daughter to cf. I have to find out how to help

her. If

> Vanco can cause such harm, how couldn't it be ok to take

GLUTHONIONE?

> I just got home, I am beat, I probably don't make since, I should

probably

> write more in the morning.

> Love you all,

> Lorenzen, distraught mother of , 16 wcf

>

>

>