Re: Laryngoscopy Exam

[Guest guest]

, I'm so sorry that you have been so sick. I can sympathize with the

ear wax removal. It use to be so easy for me years ago and now it is SO

painful. The wax in my ears has gotten sticky like honey and it doesn't

come out easy. The ENT had to scrape it out last time. I understand your

pain. Unfortunately that ENT didn't understand my pain either.

When I went to the ENT at Stanford, he did a fiber optic scope. I don't know

if it is the same. The tube went down my nose (after spraying numbing stuff)

and he looked into my throat. He saw my vocal cords and I really don't know

what else. I have no lung involvement so I don't know what to tell you.

Hope you get some feedback from others.

It is so good to hear from you though. I sure hope you can get all of this

cleared up soon and be back to feeling better. Know you are in my thoughts.

hugs

[Guest guest]

Hi ,

In addition to the helpful " voices of experience " from the group, you

might want to email Dr. Trentham with your question. He could maybe

give you some insight on the pros and cons of the laryngoscopic

exam...maybe? I think he's pretty good about answering emails, or he

might email you and ask you to call him.

Take care and hugs,

Connie H.

So, if anyone out there has any info or experience with this

> procedure, I would REALLY APPRECIATE you sharing your knowledge with

> me....really!

>

[Guest guest]

,

I have been " scoped " several times in this way and it didn't seem to bother

me. However, I have always been suspicious that the esophageal motility

study and 24 hr ph probe the GI doctor did --( BIG " tube " up the nose and

little one left for 24 horrific hours ) -- to rule out reflux disease was

the cause of my nose becoming involved with the RP. Never had any nasal

involvement before those two wonderful procedures! Now my nose is

constantly flaring. The tube they use for the laryngoscope is pretty small.

They can't see that far down into your trachea with it (I saw the images on

a TV screen) and I don't think it takes the place of a spiral CT. Unless

the doctor can insert it farther and mine just didn't; I'm not sure...

Probably just a lot cheaper. ;-) So I guess if your nose is at all

sensitive, it might be better to forgo it. I wouldn't do it if my nose was

bothering me even a little bit.

Kathleen (Tx)

Laryngoscopy Exam

> Sorry, I haven't posted in a while....I think I've been sick since

> November. I recently have had a bout of acute bronchitis on top of

> already chronic bronchitis for over a month....just finished last week, 4

> weeks of antibiotics. My pulmy said that he's seen a particularly

> stubborn bacterial viral strain this year with many of his patients.

>

> I have a concern and I'd like to inquire if any one in the RP group has

> had a laryngoscopic exam?

>

> For the past 2 months, I've been experiencing some bilateral inner ear

> pain, like a dull ear ache; a new symptom, different from the usual outer

> ear pain. The first ENT I saw said that the ear wax, when moistened,

> probably caused some discomfort and proceeded to remove the ear was

> manually with his looped insrument. He was quite rough, even though I

> had briefed him earlier on the sensitivity of my ears. I even told him

> of an incident 3 months ago, where my doctor's nurse did an ear canal

> water irrigation to remove ear wax. Within 24 hours, I had to suffer head

> congestion, increased mucous, infection flare -up, increased prednisone,

> antibiotics etc. etc.

>

> I guess this ENT didn't take me seriously as he decided not to use the

> suction, but, manually moved the ear wax. It was painful, and I told him

> so. He nonchalantly said that the ear drops he would prescribe would

> help. And, within 24 hours, this resulted in much pain that led to a

> flare up, an infection with increased mucous and lots of coughing. I had

> to double my prednisone and do two weeks of antibiotics. I guess I will

> NOT be going back to visit that ENT again.

>

> I just had a consult today with another ENT (gosh, it's hard work to be

> doing all this doctor shopping). He never met a RP patient with tracheal

> stenosis and wanted to do insert this flexible tube through my nose and

> down my throat to see how much stenosis I have. He said that the

> information would be more useful than a spiral cat scan.

>

> After two negative experiences with physicans " unintentally " causing a

> flare-up, I refused the procedure. Yes, I know I wasn't very

> cooperative....and, I'm sure that he was a bit irritated with me (said

> that I put him in a difficult position because he couldn't diagnose and

> treat me). I told him that I wanted to check with my regular doctor, and

> with my RP support group first.

>

> So, I realize that I am a bit paranoid, but, I do want to avoid another

> flare up. I can't seem to find anything in Dr. Trentham or Dr. Herman's

> articles in RP about a laryngoscopic exam, only that the bronchoscopy is

> not recommended, but, a spiral cat scan is suggested.

>

> I plan to revisit this doctor again in three weeks to do some vertigo

> testing. So, if anyone out there has any info or experience with this

> procedure, I would REALLY APPRECIATE you sharing your knowledge with

> me....really!

>

> Thank you very much! from Hawaii......

>

>

>

>

>

> DISCLAIMER!!

> WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS

RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR

BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR

PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND

TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU

>

>

[Guest guest]

,

I have had this done several times and had no problems.

First they squirt a numbing agent up your nose then insert the tube. This exam can really help your ENT see whats being affected by the RP.

Sandy

Sorry, I haven't posted in a while....I think I've been sick sinceNovember. I recently have had a bout of acute bronchitis on top ofalready chronic bronchitis for over a month....just finished last week, 4weeks of antibiotics. My pulmy said that he's seen a particularlystubborn bacterial viral strain this year with many of his patients.I have a concern and I'd like to inquire if any one in the RP group hashad a laryngoscopic exam?For the past 2 months, I've been experiencing some bilateral inner earpain, like a dull ear ache; a new symptom, different from the usual outerear pain. The first ENT I saw said that the ear wax, when moistened,probably caused some discomfort and proceeded to remove the ear wasmanually with his looped insrument. He was quite rough, even though Ihad briefed him earlier on the sensitivity of my ears. I even told himof an incident 3 months ago, where my doctor's nurse did an ear canalwater irrigation to remove ear wax. Within 24 hours, I had to suffer headcongestion, increased mucous, infection flare -up, increased prednisone,antibiotics etc. etc.I guess this ENT didn't take me seriously as he decided not to use thesuction, but, manually moved the ear wax. It was painful, and I told himso. He nonchalantly said that the ear drops he would prescribe wouldhelp. And, within 24 hours, this resulted in much pain that led to aflare up, an infection with increased mucous and lots of coughing. I hadto double my prednisone and do two weeks of antibiotics. I guess I willNOT be going back to visit that ENT again. I just had a consult today with another ENT (gosh, it's hard work to bedoing all this doctor shopping). He never met a RP patient with trachealstenosis and wanted to do insert this flexible tube through my nose anddown my throat to see how much stenosis I have. He said that theinformation would be more useful than a spiral cat scan. After two negative experiences with physicans "unintentally" causing aflare-up, I refused the procedure. Yes, I know I wasn't verycooperative....and, I'm sure that he was a bit irritated with me (saidthat I put him in a difficult position because he couldn't diagnose andtreat me). I told him that I wanted to check with my regular doctor, andwith my RP support group first.So, I realize that I am a bit paranoid, but, I do want to avoid anotherflare up. I can't seem to find anything in Dr. Trentham or Dr. Herman'sarticles in RP about a laryngoscopic exam, only that the bronchoscopy isnot recommended, but, a spiral cat scan is suggested.I plan to revisit this doctor again in three weeks to do some vertigotesting. So, if anyone out there has any info or experience with thisprocedure, I would REALLY APPRECIATE you sharing your knowledge withme....really! Thank you very much! from Hawaii......DISCLAIMER!!WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU

[Guest guest]

,

There's different types of laryngoscopies. The rigid laryngoscopy can be pretty

uncomfortable-I've not had one. My ENT was going to do an indirect

laryngoscopy, but I gagged and coughed too much so she did a flexible

laryngoscopy. There was no pain or discomfort with this one. I had a quick

spray of pontocaine to numb my nose and throat and then a tiny fiber optic wire

with a light on the end was inserted in one nostral, then the other. My ENT got

a first-hand look at my septum, sinuses, throat, glottis and subglottic areas

and determined that I had some acid reflux but no other problems. A prior sinus

scan had revealed nothing. Perhaps you should make sure your doctor fully

understands that scopes can irritate and cause inflammation in these areas on an

RP patient and let you determine if you think you can tolerate the procedure.

The flexible laryngoscopy provided my ENT with a thorough exam and didn't cause

me any discomfort or after-effects. Good luck to you.

(KC)

Laryngoscopy Exam

Re: Sorry, I haven't posted in a while....I think I've been sick since

Re: November. I recently have had a bout of acute bronchitis on top of

Re: already chronic bronchitis for over a month....just finished last week, 4

Re: weeks of antibiotics. My pulmy said that he's seen a particularly

Re: stubborn bacterial viral strain this year with many of his patients.

Re:

Re: I have a concern and I'd like to inquire if any one in the RP group has

Re: had a laryngoscopic exam?

Re:

Re: For the past 2 months, I've been experiencing some bilateral inner ear

Re: pain, like a dull ear ache; a new symptom, different from the usual outer

Re: ear pain. The first ENT I saw said that the ear wax, when moistened,

Re: probably caused some discomfort and proceeded to remove the ear was

Re: manually with his looped insrument. He was quite rough, even though I

Re: had briefed him earlier on the sensitivity of my ears. I even told him

Re: of an incident 3 months ago, where my doctor's nurse did an ear canal

Re: water irrigation to remove ear wax. Within 24 hours, I had to suffer head

Re: congestion, increased mucous, infection flare -up, increased prednisone,

Re: antibiotics etc. etc.

Re:

Re: I guess this ENT didn't take me seriously as he decided not to use the

Re: suction, but, manually moved the ear wax. It was painful, and I told him

Re: so. He nonchalantly said that the ear drops he would prescribe would

Re: help. And, within 24 hours, this resulted in much pain that led to a

Re: flare up, an infection with increased mucous and lots of coughing. I had

Re: to double my prednisone and do two weeks of antibiotics. I guess I will

Re: NOT be going back to visit that ENT again.

Re:

Re: I just had a consult today with another ENT (gosh, it's hard work to be

Re: doing all this doctor shopping). He never met a RP patient with tracheal

Re: stenosis and wanted to do insert this flexible tube through my nose and

Re: down my throat to see how much stenosis I have. He said that the

Re: information would be more useful than a spiral cat scan.

Re:

Re: After two negative experiences with physicans " unintentally " causing a

Re: flare-up, I refused the procedure. Yes, I know I wasn't very

Re: cooperative....and, I'm sure that he was a bit irritated with me (said

Re: that I put him in a difficult position because he couldn't diagnose and

Re: treat me). I told him that I wanted to check with my regular doctor, and

Re: with my RP support group first.

Re:

Re: So, I realize that I am a bit paranoid, but, I do want to avoid another

Re: flare up. I can't seem to find anything in Dr. Trentham or Dr. Herman's

Re: articles in RP about a laryngoscopic exam, only that the bronchoscopy is

Re: not recommended, but, a spiral cat scan is suggested.

Re:

Re: I plan to revisit this doctor again in three weeks to do some vertigo

Re: testing. So, if anyone out there has any info or experience with this

Re: procedure, I would REALLY APPRECIATE you sharing your knowledge with

Re: me....really!

Re:

Re: Thank you very much! from Hawaii......

Re:

Re:

Re:

Re:

Re:

Re: DISCLAIMER!!

Re: WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED

HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING

ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE

NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT

FOR MANY OF US. THANK YOU

Re:

Re: