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As we are now in day 12 of SCD, I have encountered more issues that I

must question. Just need to know advice and if these symptoms

are " normal. " First of all my son is hungry ALL of the time. I

suspect this is from not getting his much desired starches. Second,

he has a lot of gas. I suspect this is from veggies (?). Third he

urinates A LOT. Is this from veggies such as squash or green beans,

which he loves? He is not yet potty trained and he soaks his pull up

at least twice per day maybe more. Fourth, today he had some very

loose stools again. He isn't eating much: turkey, chicken, egg

whites, pears, squash, carrots, green beans, gelatin, pear juice,

little banana. What is recommended by others to eliminate? One more

thing, is it too early then to start the yogurt?

Thanks for all responses.

Cindy mom of Kasam 4 1/2 ASD

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Hi Cindy,

<<First of all my son is hungry ALL of the time. I

suspect this is from not getting his much desired starches.>>

" Hungry all the time " is very common. Yes, I wonder, too... if it's more

carb-craving than actual HUNGER hunger.

<<Second, he has a lot of gas. I suspect this is from veggies (?).>>

This is just a huge change for his system.... so this doesn't surprise me. It

should be pretty temporary.

<<Third he urinates A LOT. >>

I know this is not uncommon either.... but I am drawing a mental blank as to

what the cause is. Either just part of his body de-toxing, or??? I will defer to

someone else's expertise on this one.

<< Fourth, today he had some very

loose stools again. He isn't eating much: turkey, chicken, egg

whites, pears, squash, carrots, green beans, gelatin, pear juice,

little banana. >>

Well.... loose stools may be a temporary bump in the road, but I would have to

suggest trying to puree stuff for a bit, just like I told Kim, if you read that

post. These foods seem fine.... as long as you're peeling and cooking everything

(I assume you are). Why no egg yolks?

<<One more

thing, is it too early then to start the yogurt?>>

Was he dairy free before? If you don't get the yogurt started soon, you really

need to be giving him a legal acidophilus supplement. Very important to

re-populate his gut with good guys as the bad guys take their leave.

Patti, mom to Katera, SCD 2003-04... now back on it since 5/27/06, for support

of seizure control.

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>

Third he urinates A LOT. Is this from veggies such as squash or

green beans, which he loves? He is not yet potty trained and he

soaks his pull up at least twice per day maybe more.

> Cindy mom of Kasam 4 1/2 ASD

>

Cindy, Kasam sounds a lot like BJ. He's 9, eats everything in sight

and is looking in the fridge as soon as he's finished a meal. I had

to get a much bigger lunch box for school because I send in so much

food every day. 2 bowls of meat and veggies with lots of mayo, a

banana, applesauce for his noon pills, and at least two other items

such as chicken pancakes with mayo, and maybe another fruit. Plus

water. And then he has a snack when he comes home.

I went to www.fitday.com and put in a days worth of food, and

realized altho it looked like a lot, there probably weren't enough

calories for him. So he gets lots of mayo. It may keep him from

looking in the fridge for about 15 minutes. We are SERIOUSLY

considering some sort of lock for the door.

The increased urination could be a few things. This is also BJ. He

has atleast 3 changes of clothes at school. We were changing his

sheets almost every night - between 2 and 4. When I mentioned it to

my Mom she said it was the protein. When I cut his protein at

dinner, the nighttime urination decreased. We also discovered that

if he has beef, we can count on a wet bed.

One of the changes I have discovered in changing my diet to no grains

is the fact that my bladder will hold more, and is much less

spastic. Rather than having to pee a little bit many times thruout

the day, I pee a lot just a few times. Makes car rides much easier.

There also can be foods that cause him to pee more. Lettuce does it

for me, and there are probably others.

Peeing a lot is also a sign of diabetes. But that's something you'd

have to check with his pedi with.

Sue

BJ fragile X SCD 14 months

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Thanks for the response Patti

Kasam is not doing egg yolks right now due to the phenols in them

and his not sleeping. Last night he actually slept 9 hours. He is

already on acidopholis and I am in the process of making my first

batch of yogurt as I type. Somebody else posted about the urinating

and suggested it might be from the protein. I figure it might be

from the gelatin as well as he really enjoys that.

Thanks again

Cindy, mom of Kasam 4 1/2 ASD, SCD 12 days

- In pecanbread , " Patti " wrote:

>

> Hi Cindy,

>

> <<First of all my son is hungry ALL of the time. I

> suspect this is from not getting his much desired starches.>>

>

> " Hungry all the time " is very common. Yes, I wonder, too... if

it's more carb-craving than actual HUNGER hunger.

>

> <<Second, he has a lot of gas. I suspect this is from veggies

(?).>>

> This is just a huge change for his system.... so this doesn't

surprise me. It should be pretty temporary.

>

> <<Third he urinates A LOT. >>

> I know this is not uncommon either.... but I am drawing a mental

blank as to what the cause is. Either just part of his body de-

toxing, or??? I will defer to someone else's expertise on this one.

>

> << Fourth, today he had some very

> loose stools again. He isn't eating much: turkey, chicken, egg

> whites, pears, squash, carrots, green beans, gelatin, pear juice,

> little banana. >>

> Well.... loose stools may be a temporary bump in the road, but I

would have to suggest trying to puree stuff for a bit, just like I

told Kim, if you read that post. These foods seem fine.... as long

as you're peeling and cooking everything (I assume you are). Why no

egg yolks?

>

> <<One more

> thing, is it too early then to start the yogurt?>>

> Was he dairy free before? If you don't get the yogurt started

soon, you really need to be giving him a legal acidophilus

supplement. Very important to re-populate his gut with good guys as

the bad guys take their leave.

>

>

> Patti, mom to Katera, SCD 2003-04... now back on it since 5/27/06,

for support of seizure control.

>

>

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Hi Sue

Thanks for the response. He was tested about one month ago for

diabetes (glucose in urine), test came back negative :), so that is

ruled out already. I wonder if it is from all the gelatin he loves

to eat (?) Changing clothes and sheets is our new thing. Extra

clothes at school as well. He only gets turkey and chicken, up to

3 - 4 times per day, maybe it is the protein. I was just looking at

chicken and turkey as possible ways to fill him up to sleep, another

thing we don't do well.

Thanks again

Cindy, mom of Kasam 4 1/2 ASD, SCD 12 days

> >

> Third he urinates A LOT. Is this from veggies such as squash or

> green beans, which he loves? He is not yet potty trained and he

> soaks his pull up at least twice per day maybe more.

> > Cindy mom of Kasam 4 1/2 ASD

> >

> Cindy, Kasam sounds a lot like BJ. He's 9, eats everything in

sight

> and is looking in the fridge as soon as he's finished a meal. I

had

> to get a much bigger lunch box for school because I send in so

much

> food every day. 2 bowls of meat and veggies with lots of mayo, a

> banana, applesauce for his noon pills, and at least two other

items

> such as chicken pancakes with mayo, and maybe another fruit. Plus

> water. And then he has a snack when he comes home.

>

> I went to www.fitday.com and put in a days worth of food, and

> realized altho it looked like a lot, there probably weren't enough

> calories for him. So he gets lots of mayo. It may keep him from

> looking in the fridge for about 15 minutes. We are SERIOUSLY

> considering some sort of lock for the door.

>

> The increased urination could be a few things. This is also BJ.

He

> has atleast 3 changes of clothes at school. We were changing his

> sheets almost every night - between 2 and 4. When I mentioned it

to

> my Mom she said it was the protein. When I cut his protein at

> dinner, the nighttime urination decreased. We also discovered

that

> if he has beef, we can count on a wet bed.

>

> One of the changes I have discovered in changing my diet to no

grains

> is the fact that my bladder will hold more, and is much less

> spastic. Rather than having to pee a little bit many times

thruout

> the day, I pee a lot just a few times. Makes car rides much

easier.

> There also can be foods that cause him to pee more. Lettuce does

it

> for me, and there are probably others.

>

> Peeing a lot is also a sign of diabetes. But that's something

you'd

> have to check with his pedi with.

>

> Sue

> BJ fragile X SCD 14 months

>

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Cindy,

I meant to add one more comment to this. We only suggest delaying starting the

SCD yogurt for kids that were CF before they started the diet. If he was, then

we generally suggest waiting a few months and starting with a very small amount.

If he was already having dairy products without problems, then I don't see why

you couldn't start now.

<<One more

thing, is it too early then to start the yogurt?>>

Was he dairy free before? If you don't get the yogurt started soon, you really

need to be giving him a legal acidophilus supplement. Very important to

re-populate his gut with good guys as the bad guys take their leave.

Patti, mom to Katera, SCD 2003-04... now back on it since 5/27/06, for support

of seizure control.

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Hi Cindy,

> First of all my son is hungry ALL of the time. I

> suspect this is from not getting his much desired starches.

Huge increases in hunger are very common. Moms and Dads often find

they do *a lot* of cooking and food preparation especially at the

beginning of the diet.

Once people start the diet they often have increased

appetites for a few reasons:

-they don't feel sick anymore and actually get their appetite back

-their body is switching from rumen type digestion to actual human

digestion

-their body is healing (which will burn extra calories)

- and the big one we have noticed on the children's list is that

they start catching up in growth. Many have reported huge growth

spurts. Their body is able to continue normal growth patterns now

that it is absorbing nutrients whereas preSCD many have reported

their kids were at the lower percentiles for weight and height.

Put it all together and you end up with huge appetites. It usually

settles down after a while (though kids still go through regular

growth spurts).

>Second,

> he has a lot of gas. I suspect this is from veggies (?).

It could be from vegetables or from die off.

> Third he

> urinates A LOT. Is this from veggies such as squash or green

beans,

> which he loves? He is not yet potty trained and he soaks his pull

up

> at least twice per day maybe more.

Increased urination is very common at the beginning of the diet. It

should level off as he adjusts to the diet.

Elaine discussed this topic at this link:

http://lyris.dundee.net/read/messages?id=252979#252979

> Fourth, today he had some very

> loose stools again. He isn't eating much: turkey, chicken, egg

> whites, pears, squash, carrots, green beans, gelatin, pear juice,

> little banana. What is recommended by others to eliminate?

How were his stools yesterday? Did you add something new the last 2-

3 days.

> One more

> thing, is it too early then to start the yogurt?

Have you been dairy free for a long time? If not, once you get the

diarrhea under control you could slowly start to introduce it. (1/8-

1/4 tsp and slowly increase.

Sheila, SCD 2/01, UC 22yrs

mom of and

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