Guest guest Posted August 29, 2003 Report Share Posted August 29, 2003 Hi Kim, I am interested in getting the info on the diet! Also, I wanted to let you know that I have been taking Magnesium (for myself, I was tired and achy and very low energy) I have been on it for about 3 weeks now and I cannot believe how much better I feel. Before I was having a hard time getting out of bed at 7:30 a.m now I am up at 5:00 and I am able to accomplish so much in a day! Thank you so much for the info!!! Thanks Vicki Clubbing Digital clubbing (fingers and/or toes) can be a symptom of lung disease or liver disease. The screwy thing is, some people with CF who have really bad lungs, say they don't have finger clubbing. And some people with CF who appear much healthier, do have clubbing. My son's fingers started clubbing around second grade. His fingers and toes are clubbed, but he's in good health. At the end of January 2002, he started taking MSM (methlysulphonylmethane) which is a pure grade sulfur source. In less than two months, I noticed improvement in his finger clubbing and his nailbed color was pretty pink again. Sulfur is one dietary component low in people with CF. Estelle Nash, an Australian naturopath, pretty much " cured " her children's CF with a specific diet she created. When I looked over her list of recommended foods, I noticed the diet was high in Omega 3 essential fatty acids, sulfur, and the flavonoid quercitin. So after my son got back that crappy sputum culture showing aspergillus and S. maltophilia, he started taking magnesium, MSM and inhaling tea tree oil -- and eating a high sulfur diet (brussel sprouts at least three times a week, lots of garlic, broccoli) and more salmon and cranberry juice. I'm currently revising the info that will go on a supplement page Bev is building on the pharmacy web site, but if anyone is interested in the list of foods, let me know and I'll send it out this weekend, or if there is great demand, I'll just post it to the group. Kim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2003 Report Share Posted August 29, 2003 Kim - I'm definitely interested in the food list! Jane Clubbing Digital clubbing (fingers and/or toes) can be a symptom of lung disease or liver disease. The screwy thing is, some people with CF who have really bad lungs, say they don't have finger clubbing. And some people with CF who appear much healthier, do have clubbing. My son's fingers started clubbing around second grade. His fingers and toes are clubbed, but he's in good health. At the end of January 2002, he started taking MSM (methlysulphonylmethane) which is a pure grade sulfur source. In less than two months, I noticed improvement in his finger clubbing and his nailbed color was pretty pink again. Sulfur is one dietary component low in people with CF. Estelle Nash, an Australian naturopath, pretty much " cured " her children's CF with a specific diet she created. When I looked over her list of recommended foods, I noticed the diet was high in Omega 3 essential fatty acids, sulfur, and the flavonoid quercitin. So after my son got back that crappy sputum culture showing aspergillus and S. maltophilia, he started taking magnesium, MSM and inhaling tea tree oil -- and eating a high sulfur diet (brussel sprouts at least three times a week, lots of garlic, broccoli) and more salmon and cranberry juice. I'm currently revising the info that will go on a supplement page Bev is building on the pharmacy web site, but if anyone is interested in the list of foods, let me know and I'll send it out this weekend, or if there is great demand, I'll just post it to the group. Kim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2003 Report Share Posted August 31, 2003 ditto, I would like a copy of the food list. Tina Mom to Christian 11 yowcf Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2003 Report Share Posted August 31, 2003 I would like to see the list Kim. Hey and how is your ex doing. Deb A Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2003 Report Share Posted September 2, 2003 had clubbing even before he was diagnosed at age six. He's 24, now, and doing pretty well. The doctors put him on an 8 week regimen of vitamin D, because that was way down in his last blood test. We had to get a bottle of 100 pills, even though he only needs one a week for 8 weeks. What a waste Dori Ownbey...who coined the term " e-venting " Quote Link to comment Share on other sites More sharing options...
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