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TOBI, Tyler & Freaks!!!

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Hello everyone,

Tyler has been acting really strangely the past couple weeks and I can't

figure it out (then again I can't figure out much of anything lately). He is on

his " ON " round of TOBI and that is when I noticed things going astray. Hi

cough has become much more junky, dark circles under his eyes, more tired than

usual, and BOUNCING off the walls......it's like someone pumped him full of

caffeine and sugar. He started Kindergarten and is having problems listening.

He

has been sent to the principal's office already, and gets red crayons most of

the time. (It's their behavioral scale, Green-good, Yellow-think before you

act, Red-bad), I'm not sure if his tiredness is coming from school or him coming

down with something health wise. I know that if Tyler has anything with

artificial red dye in it, he goes haywire...but I know he has not had anything

red. Does anyone have any ideas on what could be causing this? Could he

becoming allergic to TOBI for some odd reason? He hasn't eaten anything out of

the

ordinary, hasn't been doing any activities out of the ordinary.

On a different and more personal note: Do you ever wonder WHY things always

happen to you and ONLY you? I've been doing a lot of that the last several

months. I'll give you a couple of examples....out of 30 classmates, YOUR

schedule is the only one that gets messed up and no way of fixing it....Out of

30 cl

assmates YOUR handout is the only handout missing pages....You're out to lunch

with friends and YOUR lunch order is the only one messed up....should I keep

going on? nah! you get the point. It's not just the little things I'm talking

about here....I'm talking about life altering things that are happening and

none of it is my fault....it's always a " freak of nature " thing I've always

been very good at understanding the reason why things happen, but I can't find

those reasons anymore. I can't figure out what I have done to be the chosen one

of disasters. It seems as though my leprechaun has disappeared or someone

has stolen all my good luck and left me with just the bad luck. Can anyone

please show me how to find the " reasons " again...better yet, find my Leprechaun?

I

would offer a reward but the " freaks of nature " has left me dry!!

Dawn

mom to Tyler 5 w CF

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In a message dated 9/2/2003 12:38:56 PM Central Daylight Time,

Gadget76@... writes:

> Dawn

>

When my youngest is on Tobi she develops a cough too and I think she is more

irritable then normal too. I have talk to the doctor about it and they tell me

that the tobi can irritate some peoples throat. I also think it does make

them more tired too. I try to stress that with her teacher when she is on the

tobi. Have you thought about asking you doctor about using Collistin instead.

Neither one of my daughters have had any problems with Collistin.

Also when I am having a day like you have had today I think about my cousins

son that is 15 now. My cousin was killed a motorcycle accident about 14 years

ago. That's right his mother died when he was a year old. Now about 2 months

ago his father died of a heart attack. He has now know parents at all!! We need

to really realize that these little things are nothing compared to having

each other. This 15 years old has had bad things happen to him since the day he

was born. When my cousin delivered him she got the chicken pox and they both

had to stay in the hospital and had to be quarantine in a room for a week. Him

and his Dad were also homeless for a while too. I think he has never coped with

the loss of my cousin because he was the one driving the motorcycle that

killed her. So my cousins son has really not had much of a break in his life and

things have been tough for him I just hope and pray it gets better for him. I

hope this helps. Deb A

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Dawn,

I believe it is God's way of getting us ready for even harder things(a

little at a time). I know that when I read some of the posts that I am very

thankful that I have a wonderful family and that is having a good

day and that I still have her. I am also very thankful that she likes to

eat and is very active. Some days it is very hard to see things in a

positive light. Be thankful you have friends to have lunch with and maybe

Tyler acting strange is just a phase he is going through this month.

Hope you are having a better day.

Tina W. mother of Steph, 17yoa wcf

TOBI, Tyler & Freaks!!!

Hello everyone,

Tyler has been acting really strangely the past couple weeks and I can't

figure it out (then again I can't figure out much of anything lately). He

is on

his " ON " round of TOBI and that is when I noticed things going astray. Hi

cough has become much more junky, dark circles under his eyes, more tired

than

usual, and BOUNCING off the walls......it's like someone pumped him full of

caffeine and sugar. He started Kindergarten and is having problems

listening. He

has been sent to the principal's office already, and gets red crayons most

of

the time. (It's their behavioral scale, Green-good, Yellow-think before you

act, Red-bad), I'm not sure if his tiredness is coming from school or him

coming

down with something health wise. I know that if Tyler has anything with

artificial red dye in it, he goes haywire...but I know he has not had

anything

red. Does anyone have any ideas on what could be causing this? Could he

becoming allergic to TOBI for some odd reason? He hasn't eaten anything out

of the

ordinary, hasn't been doing any activities out of the ordinary.

On a different and more personal note: Do you ever wonder WHY things always

happen to you and ONLY you? I've been doing a lot of that the last several

months. I'll give you a couple of examples....out of 30 classmates, YOUR

schedule is the only one that gets messed up and no way of fixing it....Out

of 30 cl

assmates YOUR handout is the only handout missing pages....You're out to

lunch

with friends and YOUR lunch order is the only one messed up....should I keep

going on? nah! you get the point. It's not just the little things I'm

talking

about here....I'm talking about life altering things that are happening and

none of it is my fault....it's always a " freak of nature " thing I've always

been very good at understanding the reason why things happen, but I can't

find

those reasons anymore. I can't figure out what I have done to be the chosen

one

of disasters. It seems as though my leprechaun has disappeared or someone

has stolen all my good luck and left me with just the bad luck. Can anyone

please show me how to find the " reasons " again...better yet, find my

Leprechaun? I

would offer a reward but the " freaks of nature " has left me dry!!

Dawn

mom to Tyler 5 w CF

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