Re: The DOC band

January 31, 2009

>Hello Antonia:

I was so happy to see your post, glad it is working out for you.

Can't the pilots wait for you to return on the same leg? How long of

a flight is it?

It is amazing how individualized the DOC band is made, isn't it. When

you look through the DOC calendar you can see how every babies helmet

is just altogether different. Check the February page; on the bottom

second from left is my Grandson Aiden in front of one of his

Angelflight rides.

Congrats,

Heidrun

> Well Jayden got his new helmet from CT in Arizona! They are

> great! We fly out there with Angel flights. I'm so greatful to them

> because without them I would not be able to do this! He went for his

> Eval on Jan 15th. CT asked if they could keep his old Hanger band to

> show patients how much heavier it bulkier it was. They took lots of

> pics with and without the helmet and I was shocked to see how the

> old helmet basically just sat on his head like a jello mold.

> Basically it was like saying this is what your head should look like

> fill it....and it wasnt holding the width at all. GRRRR! Luckily

> Hanger refunded my deductible and voided the claim. They STILL didnt

> see anything wrong with how we were treated by not returning calls

> and violating HIPPA to email me! But oh well...their poor service

> led us elsewhere and I'm very happy. Anyway we picked up our helmet

> the following Monday. Perfect fit. We have had it one week and five

> days and have had one adjustment and so far so good! No issues at

> all except a tiny bit of heat rash on the forehead area, so we have

> been using cortisone for that! I'm very happy so far and I wish I

> would have realized I could have pulled this off sooner! Its

> definately alot of work for fly out Sunday afternoon. Have an appt

> on Monday and fly back Tuesday morning. I have to work Three 12 hour

> days to make up the time and still work 10-12 hours Saturday, but

> anything for my son right now! Now I just gotta work on decorating

> it! I love the CT calander there are so many cute Ideas in there!

>

January 31, 2009

Yipee for you and Jayden !! Don't feel guilty about the time it

took to work out an alternative plan, I'm sure it seemend

overwhelming at first to try to get everything in place. I think that

it was amazing to see everyone come together on this board to try to

come up with a plan for you. Good for you, for doing whatever is

needed to get good care for your son....it's a challenge, but in the

end it will be worth it . Can't wait to hear about his progress.

H.

>

> Well Jayden got his new helmet from CT in Arizona! They are

> great! We fly out there with Angel flights. I'm so greatful to them

> because without them I would not be able to do this! He went for

his

> Eval on Jan 15th. CT asked if they could keep his old Hanger band

to

> show patients how much heavier it bulkier it was. They took lots of

> pics with and without the helmet and I was shocked to see how the

> old helmet basically just sat on his head like a jello mold.

> Basically it was like saying this is what your head should look

like

> fill it....and it wasnt holding the width at all. GRRRR! Luckily

> Hanger refunded my deductible and voided the claim. They STILL

didnt