Re: Please tell me its going to get better

[Guest guest]

Hello,

I am sorry I can't answer a lot of your questions (I will let the ones more

qualified answer those) But, I do want you to know that my son has

had the most horrible eczema since he was 3 mos old. One doctor

said it was the worst he had seen in 30 yrs.

He has been on SCD for a little more than a year now and his eczema

is better, though not completely gone. My little boy is on an extremely

restricted diet..eating only butternut squash, carrots, turkey, pears,

apples and sometimes peaches. When we first started, he had die

off for quite a while. But, I can tell you his gut is in much better shape

today than when we started. Have you tried butternut squash with you little

one...or maybe pears...they are both low allergenic and SCD allowed.

My little boy has been on the diet long enough to enjoy butternut squash

fries

and carrot chips fried occasionally. Most all the kids have a hard time in

the

beginning, but after about a month it will get better.

Do you give your little boy melatonin?

It helps my little boy sleep. I give one hour before bedtime and try to be

sure

he is in a darker room.

God's Blessings to you!! You will make it!!

Tammy

Mom of Peyton SCD 1.2 yrs and Eczema 3 yrs

[Guest guest]

> His reaction to the boiled raisins was interesting. He was up itchy

> all night, then he peed so much the next day he leaked 3 times and

> then finally the next day he pooped them out. Was this a die off

> reaction?

Dried fruit is not to be started until much later in the diet and may

not be tolerated by all.

See top of page 75 edition ten of BTVC.

Carol F.

Celiac, MCS, Latex Allergy, EMS

SCD 6 years

[Guest guest]

With excema THAT bad hasn't a doctor had him tested for allergies

(true IgE allergies?

Even if he has been tested in the past, I would request that it be

done again. It sounds to me as if one of the foods that he is

currently consuming is contributing to making it worse.

Kids can be allergic to anything, even meat. My nephew can only eat

chicken, turkey, buffalo, ostrich and venison.

So, my recommendation would be to get him to a pediatric allergist and

remove all of the foods that he shows positive for on a skin prick

test or a blood RAST test.

After you get the results, feel free to post them here so that we can

help you figure out what to feed him.

I've also read that people have had success using Emu oil on excema to

heal it up faster.

Jody

mom to -7 and -9

SCD 1/03

[Guest guest]

Oh how I feel for you. This seems to be so difficult doesn't it. I do feel that

2 weeks is not very long on SCD and I do believe it will get better. There are

some on this list that can testify to that. I am on SCD not for ASD but I have

UC.

Have you tried making chicken nuggets with a little ketchup? I believe there is

a recipe whereby you can make a crispy coating with plain pork rinds instead of

nut flour. Are you dairy-free? there are others who will have better advice

than me but I just wanted you to know that we got your email and that we are

here to help you.

I certainly agree with Carol about the dried fruit. How about cooked fruit?

Charlene

UC 8 years

SCD 5 1/2 years

We started SCD almost 2 weeks ago with our DS. So far the only food

we " think " he tolerates is cauliflower, green beans and bananas. I

say think because how do you tell a reaction to the food from die off?

He can't digest carrots, walnut flour(we just tried this sunday so he

could have chicken nuggets) or boiled raisins(they showed up in his

BM's) and he had a very itchy reaction to DCCC.

His reaction to the boiled raisins was interesting. He was up itchy

all night, then he peed so much the next day he leaked 3 times and

then finally the next day he pooped them out. Was this a die off

reaction?

He doesn't like the meat anymore. He will sit and chew and chew the

chicken and then won't swallow it. He keeps saying get me something I

like.

He has eaten so much squish(cauliflower) at this point that his

breath smells sulfer(y).

He is uncharacteristically moody and difficult(this started a couple

of months ago). He has always been the happiest, most active child.

Now everything is a struggle. Some days we can't stand to even be

around him. Which really hurts because he is 3. This is supposed to

be the fun time. We walk around on eggshells around him. Something

can be perfectly fine one minute and then the next he is throwing a

fit.

Should I be expecting any improvement in the eczema yet? It is awful.

His legs from top to bottom are covered. The tops of his feet are

raw, cracked, flaky and just so sore and horrible looking. His arms

and hands. His belly itches and it has never been on his belly. He is

getting spots behind his ears again and they have broken out for more

than a year. He is miserable

Is the fact that it is moving around a good sign? Is there light at

the end of this tunnel?

He doesn't sleep more than 2 or 3 hours at a time. He has maybe slept

all night 5 times in his life but at least we were getting 4 and 5

hour stretches at a time. Being tired all the time makes it so much

harder to deal with for all of us.

Am I right in thinking that if his eczema were a food allergy related

thing then since he has been on such a restricted diet for two weeks

shouldn't it be improving? Or does die off interfere with this?

How long can he continue on this restricted diet and be healthy?

He is taking kirkman everyday vit. twice per day and carlson's clo

1/4 teaspoon twice per day.

How do you keep a child who cant tolerate eggs, nuts and fruit full

on SCD?

What kind of testing is suggested for metal toxicity(he was

vaxinated) and mineral/vit. deficiencies, bacteria etc.

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[Guest guest]

>

> With excema THAT bad hasn't a doctor had him tested for allergies

> (true IgE allergies?

>

> Even if he has been tested in the past, I would request that it be

> done again. It sounds to me as if one of the foods that he is

> currently consuming is contributing to making it worse.

>

> Kids can be allergic to anything, even meat. My nephew can only eat

> chicken, turkey, buffalo, ostrich and venison.

>

> So, my recommendation would be to get him to a pediatric allergist

and

> remove all of the foods that he shows positive for on a skin prick

> test or a blood RAST test.

>

> After you get the results, feel free to post them here so that we

can

> help you figure out what to feed him.

>

> I've also read that people have had success using Emu oil on excema

to

> heal it up faster.

>

>

>

> Jody

> mom to -7 and -9

> SCD 1/03

>

He has been allergy tested just recently.

This is the scale they used: 0 undetectable, 1 .35 - .70 low level,

2 .71 - 3.50 moderate level, 3 3.51 - 17.5 high level, 4 17.6 - 50

very high level, 5 51 - 100 very high level and 6 >101 very high level

Here are his numbers:

..58 milk

..46 mucor racemosus - house mold

..52 White mulberry

1.05 Birch

1.64 Dog Dander

1.53 Grass

1.48 Bermuda Grass

1.58 Grass

1.45 Bahia Grass

1.67 Elm

1.31 Hickory/Pecan tree

4.6 Oak

1.62 Sycamore

1.34 common ragweed

1.15 mugwort

1.48 sheep sorrel

1.61 rough pigweed

1.97 nettle

2.06 english plantain

1.27 sweet gum

2.21 wheat

1.86 corn

2.10 peanut

1.49 soy

64.6 egg yolk

>100 egg white

He showed no reaction to codfish,shrimp,pork, beef, cocoa, dust mites

(thank god), and a bunch of food and house molds.

[Guest guest]

You're in a tough spot - I really feel for you. Severe allergies make

any diet that requires further food restrictions difficult. My son

only tolerates about 10 foods - just a few meats (lamb, ostrich, elk,

buffalo, grass-fed beef), oils (sunflower, safflower), and vegetables

(squash, spinach, cabbage). He does tolerate a few grains (quinoa,

buckwheat) but we stopped these to go SCD.

SCD is hard, but it's worth it. Your son most likely has extreme

leaky gut due to a variety of dysbiotic processes (yeast, bacteria),

and SCD is a really good tool to help heal this situation. However,

it's a long haul and you'll need a lot of discipline. My son has been

on SCD since February and we just got our first good test results

back - his long-standing intestinal inflammation is GONE, and his

severe yeast is GONE. We are doing the happy dance, as you might

imagine.

BUT, this is just the first step. The gut takes awhile to heal, and

allergies take even longer to go away. My son still has his

allergies, and we've been avoiding his allergic foods for a long

time. His gut is still leaky enough that when we re-introduce his old

allergens, he re-sensitizes again in a matter of days. Two weeks

isn't nearly long enough. For classic IgE allergies (which is what

your son's test showed, and which eczema is a classic symptom), the

body needs to " outgrow " the allergic reaction and then never re-

develop it. TO do this, you must be very strict about not exposing

the child to his allergens for a long period of time. This generally

takes 6 months at a minimum, and may take years. The body must stop

producing antibodies to the food - it must stop seeing it as a

foreign invader. If you give him even small amounts of the food

during this period, it will trigger an immune response and this can

set his healing back months. A severely allergic child may never

outgrow all of his allergies. But you will probably start outgrowing

some of them within a year if you are disciplined.

The first step is to identify what triggers his eczema. Don't rely on

tests. You must find out the triggers with elimination diets -

restrict and rotate his foods until you identify what triggers his

eczema. This requires you to be a good detective. When his eczema

clears up, you will know you;ve succeeded.

I would stop the Kirkman's vitamins for awhile, their products often

contain soy and corn, which are common allergens. I also recommend

stopping CLO until you get the allergy triggers figured out. Fish is

a common allergen, and cod is one of the worst. Lots of CLOs have

soy, too (Bluebonnet makes a pure, soy-free salmon oil for

EFAs/Omegas). You can give him liver for vit. A.

You don't need eggs, nuts or milk to do the SCD. Many of us don't.

The most important first step to gut health is to eliminate the

sources of dysbiosis (polysaccharide and disaccharide sugars and

starches), to remove sources of gut inflammation (allergens are a big

contributor to gut inflammation, and fibrous foods that are too

difficult for the child to digest are another).

I invite you to join a Yahoo group I started with some other parents

for kids with severe food allergis and autism. We have a lot of kids

who are SCD and on severely restricted diets due to allergies. You'll

fit right in! Here's the URL:

http://health.groups.yahoo.com/group/foodallergyautism

Suzanne

Tom, 3.8, ASD, severe food allergies, SCD 5 mos. and starting to heal!

[Guest guest]

How many foods was he tested for?

Of the foods that he was tested for, which ones showed up negative?

Do you have a dog?

Other than the egg allergy, none of the others are really that high to

correlate with such bad excema. Was he eating eggs before the test?

Was he specifically tested for the foods that he is now eating on SCD?

Jody

mom to -7 and -9

SCD 1/03

[Guest guest]

" My son has been on SCD since February and we just got our first

good test results back - his long-standing intestinal inflammation is

GONE, and his severe yeast is GONE. We are doing the happy dance, as

you might imagine. "

Suzanne,

This makes me want to do the happy dance too.

What GREAT news!

I'm so excited!

Jody

mom to -7 and -9

SCD 1/03

[Guest guest]

Thanks, Jody. It is nice to report good news for a change!

He's regressed cognitively since his 2nd month on SCD, so we're

considering LOD, which is nervous-making when his diet's already so

limited. But at least one thing's getting better.

And the proof is in the pudding ... he's begun sleeping through the

night!

Suzanne

>

> " My son has been on SCD since February and we just got our first

> good test results back - his long-standing intestinal inflammation

is

> GONE, and his severe yeast is GONE. We are doing the happy dance, as

> you might imagine. "

>

>

> Suzanne,

>

> This makes me want to do the happy dance too.

>

> What GREAT news!

> I'm so excited!

>

>

> Jody

> mom to -7 and -9

> SCD 1/03

>

[Guest guest]

This is really just advice for kids who are extremely sensitive to

corn. Many ingredients (like vit.C) are derived from corn, but they

are labeled corn-free since they are said not to contain the corn

protein (at least as far as their tests go ... and tests come in all

different sensitivities in terms of the parts-per-million of protein

they will detect).

But all it takes is one very sensitive kid to react and send a mommy

running to the manufacturer, and sure enough when they finally do

their research and dig deep into their suppliers' sources, we find out

it is corn-derived after all. This has happened to us several times

with Kirkman products labeled corn-free. This doesn't mean they're not

SCD, it is an allergy issue, and only for the very-sensitive kids.

If your child's not that sensitive it shouldn't be a problem.

Suzanne

> >

> > >

> > I would stop the Kirkman's vitamins for awhile, their products

often

> > contain soy and corn, which are common allergens. I also recommend

> > stopping CLO until you get the allergy triggers figured out. Fish

is

> > a common allergen, and cod is one of the worst. Lots of CLOs have

> > soy, too (Bluebonnet makes a pure, soy-free salmon oil for

> > EFAs/Omegas). You can give him liver for vit. A.

> >

> The Kirkman's vitamins that I use are listed as legal on the

> supplements page on pecanbread.

>

[Guest guest]

> But all it takes is one very sensitive kid to react and send a mommy

> running to the manufacturer, and sure enough when they finally do

> their research and dig deep into their suppliers' sources, we find out

> it is corn-derived after all. This has happened to us several times

> with Kirkman products labeled corn-free. This doesn't mean they're not

> SCD, it is an allergy issue, and only for the very-sensitive kids.

>

> If your child's not that sensitive it shouldn't be a problem.

> Suzanne

Yes, you are right Suzanne as witnessed by problems some of us had with

Dole pineapple in pineapple juice that was not its own juice.

Carol F.

Celiac, MCS, Latex Allergy, EMS

SCD 6 years

[Guest guest]

Hi allforlogan,

> We started SCD almost 2 weeks ago with our DS. So far the only food

> we " think " he tolerates is cauliflower, green beans and bananas. I

> say think because how do you tell a reaction to the food from die

off?

How were his stools prior to starting the diet?

How are the bm's now?

Sheila

[Guest guest]

>

> Hi allforlogan,

>

> > We started SCD almost 2 weeks ago with our DS. So far the only

food

> > we " think " he tolerates is cauliflower, green beans and bananas. I

> > say think because how do you tell a reaction to the food from die

> off?

>

> How were his stools prior to starting the diet?

> How are the bm's now?

>

> Sheila

>

They were loose not runny but not at all formed. Now they are formed

and sometimes just a bunch of little balls. Yesterday he had small

black stringy looking pieces in it. I couldn't trace it back to any

food he had eaten. What could that be?

[Guest guest]

Hi allforlogan,

> > > We started SCD almost 2 weeks ago with our DS. So far the only

> food

> > > we " think " he tolerates is cauliflower, green beans and

bananas. I

> > > say think because how do you tell a reaction to the food from

die

> > off?

> >

> > How were his stools prior to starting the diet?

> > How are the bm's now?

> >

> > Sheila

> >

> They were loose not runny but not at all formed. Now they are

formed

> and sometimes just a bunch of little balls.

Your previous post yesterday asked " I

say think because how do you tell a reaction to the food from die

off? "

If he had a reaction to the food then his stools would get worse.

So they would go from formed to loose or constipated.

Also you wrote " He can't digest carrots, walnut flour(we just tried

this sunday so hecould have chicken nuggets) or boiled raisins(they

showed up in his BM's) and he had a very itchy reaction to DCCC. "

Were the carrots cooked and pureed? Since he is only 3 he probably

doesn't chew well and it isn't uncommon for bits of carrots to be in

a formed stool. Did he have loose stools after the carrots or did he

have behavioural problems etc.?

> Yesterday he had small

> black stringy looking pieces in it. I couldn't trace it back to

any

> food he had eaten. What could that be?

This could be from die off - nasty stuff clearing out of his body.

Gross, but better out than in.

Sheila, SCD 2/01, UC 22yrs

mom of and

[Guest guest]

>

> Hi allforlogan,

>

> > > > We started SCD almost 2 weeks ago with our DS. So far the

only

> > food

> > > > we " think " he tolerates is cauliflower, green beans and

> bananas. I

> > > > say think because how do you tell a reaction to the food

from

> die

> > > off?

> > >

> > > How were his stools prior to starting the diet?

> > > How are the bm's now?

> > >

> > > Sheila

> > >

> > They were loose not runny but not at all formed. Now they are

> formed

> > and sometimes just a bunch of little balls.

>

>

> Your previous post yesterday asked " I

> say think because how do you tell a reaction to the food from die

> off? "

>

> If he had a reaction to the food then his stools would get worse.

> So they would go from formed to loose or constipated.

>

> Also you wrote " He can't digest carrots, walnut flour(we just tried

> this sunday so hecould have chicken nuggets) or boiled raisins

(they

> showed up in his BM's) and he had a very itchy reaction to DCCC. "

>

> Were the carrots cooked and pureed? Since he is only 3 he

probably

> doesn't chew well and it isn't uncommon for bits of carrots to be

in

> a formed stool. Did he have loose stools after the carrots or did

he

> have behavioural problems etc.?

>

> > Yesterday he had small

> > black stringy looking pieces in it. I couldn't trace it back to

> any

> > food he had eaten. What could that be?

>

> This could be from die off - nasty stuff clearing out of his

body.

> Gross, but better out than in.

>

> Sheila, SCD 2/01, UC 22yrs

> mom of and

>

The carrots were cooked and pureed and added to meatballs. It took

2 days for the carrots to show up in his stool. He had carrots in

the meatballs sunday morning and they didn't show up until tuesday

afternoon.

By reacting to the food, I mean is it aggrevating his eczema because

he has a problem with it, allergy and eczema wise or is he reacting

to it because he isn't ready to be eating it?

So are you saying he would have loose stool, constipation or

behavior problems if he isn't ready for the food or isn't digesting

it properly and if its only aggrevating the eczema then it would

just make him itchier? I don't know if he is itchier as a die-off

symptom or if he is itchier because something he ate made his eczema

worse or bothers the eczema. Does that make sense? I don't explain

myself very well.

Pretty much all he does right now is scratch, mostly at night but

alot during the day too. He is red, sore and oozy. He scratches to

the point of blood and his feet are horrible.

[Guest guest]

It looks like he isn't digesting beef either. I made a roast and he

ate some of it and his only bm today was small little balls that were

connected by what looked like full pieces of roast. The way it went

in is the way it went out. And it actually looked like it has stringy

chicken in it too but I am not sure on that.

Should we not be eating roast?

[Guest guest]

It sounds like maybe he is not chewing it up. I puree all my daughter's meats

because I know she can't chew it that well... and I want to make it as easy to

digest as possible.

Depending on how long he's been on the diet, his digestion and absorbtion should

improve, but the gut has a hard time doing it's job when chewing is inadequate

at the starting gate.

Patti

Re: Please tell me its going to get better

It looks like he isn't digesting beef either. I made a roast and he

ate some of it and his only bm today was small little balls that were

connected by what looked like full pieces of roast. The way it went

in is the way it went out. And it actually looked like it has stringy

chicken in it too but I am not sure on that.

Should we not be eating roast?

For information on the Specific Carbohydrate Diet, please read the book

_Breaking the Vicious Cycle_ by Elaine Gottschall and read the following

websites:

http://www.breakingtheviciouscycle.info

and

http://www.pecanbread.com

[Guest guest]

Hi " allforlogan " ,

(Scroll down to bottom)

> > > > > We started SCD almost 2 weeks ago with our DS. So far the

> only

> > > food

> > > > > we " think " he tolerates is cauliflower, green beans and

> > bananas. I

> > > > > say think because how do you tell a reaction to the food

> from

> > die

> > > > off?

> > > >

> > > > How were his stools prior to starting the diet?

> > > > How are the bm's now?

> > > >

> > > > Sheila

> > > >

> > > They were loose not runny but not at all formed. Now they are

> > formed

> > > and sometimes just a bunch of little balls.

> >

> >

> > Your previous post yesterday asked " I

> > say think because how do you tell a reaction to the food from

die

> > off? "

> >

> > If he had a reaction to the food then his stools would get

worse.

> > So they would go from formed to loose or constipated.

> >

> > Also you wrote " He can't digest carrots, walnut flour(we just

tried

> > this sunday so hecould have chicken nuggets) or boiled raisins

> (they

> > showed up in his BM's) and he had a very itchy reaction to DCCC. "

> >

> > Were the carrots cooked and pureed? Since he is only 3 he

> probably

> > doesn't chew well and it isn't uncommon for bits of carrots to

be

> in

> > a formed stool. Did he have loose stools after the carrots or

did

> he

> > have behavioural problems etc.?

> >

> > > Yesterday he had small

> > > black stringy looking pieces in it. I couldn't trace it back

to

> > any

> > > food he had eaten. What could that be?

> >

> > This could be from die off - nasty stuff clearing out of his

> body.

> > Gross, but better out than in.

> >

> > Sheila, SCD 2/01, UC 22yrs

> > mom of and

> >

> The carrots were cooked and pureed and added to meatballs. It

took

> 2 days for the carrots to show up in his stool. He had carrots in

> the meatballs sunday morning and they didn't show up until tuesday

> afternoon.

>

> By reacting to the food, I mean is it aggrevating his eczema

because

> he has a problem with it, allergy and eczema wise or is he

reacting

> to it because he isn't ready to be eating it?

When I first started the diet I had eczema along with a host of

other skin issues/health ailments. I didn't get the fatigue that

many people get during die off my die off " reactions " came through

my skin. My face became totally inflammed, very red, itchy and

swollen. It hurt to smile. Since my stomach and bowels felt better

than they had in a very long time I decided to stick it out (also

with the encouragement of the the people of the LI list). After a

week or so the redness died down and my skin cleared. After that it

was better than it had ever been. It seems the toxins being

released came through the skin on my face (also knees, ankles).

Others who've had eczema improve can tell you if theirs got worse

before it got better

> So are you saying he would have loose stool, constipation or

> behavior problems if he isn't ready for the food or isn't

>digesting it properly

Yes. This is because he had loose stools before the diet and now is

having solid stools. If he didn't tolerate the food then his bowel

movements would likely be loose again to display intolerance

(especially so early in starting the diet).

>and if its only aggrevating the eczema then it would

> just make him itchier? I don't know if he is itchier as a die-off

> symptom or if he is itchier because something he ate made his

eczema

> worse or bothers the eczema. Does that make sense? I don't

explain

> myself very well.

You explained it fine

Since his bowels are still good and his eczema is worse I'd lean

more toward die off then intolerance of the food.

> Pretty much all he does right now is scratch, mostly at night but

> alot during the day too. He is red, sore and oozy. He scratches

to

> the point of blood and his feet are horrible.

Are there any creams that help reduce the itchiness of the eczema?

Sheila, SCD 2/01, UC 22yrs

mom of and