Re: Anybody here using Dr. Amy Yasko's protocols?

July 23, 2006

I checked into her briefly. She is interesting in her background and

approach but it seemed very, very expensive and required so many

different supplements which I could never get in my guys even if I

could afford them! At any rate, I do know from what I checked that she

is big on avoiding too much protein. Her issue with SCD is the amount

of protein, which she believes should be limited. She advocates gluten

and casein free and limiting the junk and excitotoxins. All good

things of course! I'm not saying no one working with her is doing

SCD...I think some are...but that she has some issues with SCD and

limited grains.

July 23, 2006

dear Janice:

Dr Jasco's work goes beyond DAN, for certain problems in particular. Do you

know what in particular are your child's metabolic problems? We all share

some similar problems, but biochemically have a different thumbprint. That

can tell you if your child will be helped by her work.

maria

mom to fiol 19mo scd 1/06

>

> I checked into her briefly. She is interesting in her background and

> approach but it seemed very, very expensive and required so many

> different supplements which I could never get in my guys even if I

> could afford them! At any rate, I do know from what I checked that she

> is big on avoiding too much protein. Her issue with SCD is the amount

> of protein, which she believes should be limited. She advocates gluten

> and casein free and limiting the junk and excitotoxins. All good

> things of course! I'm not saying no one working with her is doing

> SCD...I think some are...but that she has some issues with SCD and

> limited grains.

>

> For information on the Specific Carbohydrate Diet, please read the book

> _Breaking the Vicious Cycle_ by Elaine Gottschall and read the following

> websites:

> http://www.breakingtheviciouscycle.info

> and

> http://www.pecanbread.com

>

July 23, 2006

,

I have not yet done the genetic testing she uses to guide

supplementation, but from previous genetic testing done by a clinical

nutritionist I know that some of the genetic metabolic mutations she

addresses are present in both of my boys. Both have leaky gut,

autism, central nervous system dysfunction, apraxia and each has his

own subset of issues they don't share. Neurotransmitter and amino

acid testing I've done recently shows that they are not absorbing the

proteins they are consuming, and high levels of taurine/low levels of

citrulline indicate they may both have the CBS mutation, are producing

large amounts of ammonia, and perhaps a high protein diet is doing

them in. Metabollically, my kids have some serious problems and they

are getting worse, not better.

That is why I am looking for anyone on this list who is following Dr.

Yasko's protocols and still keeping with SCD. I like the ideas behind

SCD/BTVC and I'm curious about whether I can cut back on protein and

still maintain a healthy diet for them without adding back carbs.

Currently I am still having trouble getting vegetables into

them...Then again, this is true of many toddlers, right?

Janice

mom to Billy (3 1/2 autism) and Colby (2 1/2 ASD) both SCD since March

>

> dear Janice:

>

> Dr Jasco's work goes beyond DAN, for certain problems in particular.

Do you

> know what in particular are your child's metabolic problems? We all

share

> some similar problems, but biochemically have a different

thumbprint. That

> can tell you if your child will be helped by her work.

>

> maria

> mom to fiol 19mo scd 1/06

>

July 23, 2006

Dear Janice:

You are very well informed. It sounds like you might benefit from her

evaluation and recommendations. If SCD has been as good to you as it has

been to us, there are always options. She has a very good book that talks

about each of her treatments for each of the mutations and combinations. If

I were in your particular situation and had the money, I would read the book

and still go to her. Some people that know the book well try the treatments

by themselves, that is why she has two prices for the evaluations, the test

alone and the test with her interpretation and recommendations. Maybe it is

just me, but I think that there is always something else you learn from the

evaluation, even if you know and understand her book by heart. I am very

interersted in her work and will try to make some inquiries about SCD and

her. You can also email her and ask her about her willingness to work with

you with a diet like scd.

About the vegetables, sometimes is the most simple thing that they hate and

we are so eager to give them to them that we missed on finding out how they

would actually eat them. People on the list have much experience in finding

out ways of giving them the veggies. What have you tried so far? Which

veggies do they hate the most?..Like the most?

I wish you best of luck, please keep us posted.

mom to fiol 19 mo, all fam SCD 1/06

>

July 24, 2006

> Dear Janice:

>

> You are very well informed. It sounds like you might benefit from her

> evaluation and recommendations. If SCD has been as good to you as it

> has

> been to us, there are always options. She has a very good book that

> talks

> about each of her treatments for each of the mutations and

> combinations.

From our list guidelines:

" Discussions and advertising of alternative diets, illegal foods,

treatments

that are not recommended, or other subjects that are not part of the

science and

practices of SCD are not allowed on the list. "

The size and mission of the list make it best to limit discussions to

SCD .

Since Dr. Yasko uses many supplements and some protocols that are not

SCD compliant it would be appreciated if you would follow the above

guidelines. Perhaps you would like to continue discussing Dr.Yasko

privately by email.

No offense intended.

Carol F.

Celiac, MCS, Latex Allergy, EMS

SCD 6 years

July 24, 2006

Dear Janice:

please feel free to email me privately. you can also join other discussion

groups that can handle the more detailed discussions about SCD. there are a

few on yahoo. It makes sense, since we all have particular situations within

SCD, and we all use treatments that are complementary to SCD. Even though

many things are often discussed here by all, this site has the purpose of

teaching the basic diet and that's it.

Dear Carol:

This discussion is not outside the scope of SCD, since the intention is to

have the doctor adapt the treatment to be accessible to people who do SCD.

It might be outside the scope of the group, if so, then we will continue the

discussion in private, of course.

Lets say that because of this particular person like Janice, dr jasko

creates a treatment that is accessible to those on SCD who need it.

Inclusion, not exclusion. Can you see this? Often people stop doing SCD

becasue it gets too complicated for them, they have no support when they

actually try to apply it to their particular situation. SCD is a Healing

diet and it is sad to see people to depart from the diet because they don't

have the support to put it together as an integral part of their treatments.

I know that you have helped a great deal of peple, including my family, to

learn about SCD. So I take absolutely no offense in your comments. I

understand your intention, thanks.

maria

>

> From our list guidelines:

>

> " Discussions and advertising of alternative diets, illegal foods,

> treatments

> that are not recommended, or other subjects that are not part of the

> science and

> practices of SCD are not allowed on the list. "

>

> The size and mission of the list make it best to limit discussions to

> SCD .

> Since Dr. Yasko uses many supplements and some protocols that are not

> SCD compliant it would be appreciated if you would follow the above

> guidelines. Perhaps you would like to continue discussing Dr.Yasko

> privately by email.

>

> No offense intended.

>

> Carol F.

> Celiac, MCS, Latex Allergy, EMS

> SCD 6 years

>

July 24, 2006

I would be interested in learning about other SCD support groups online. I

know that a yahoo search is available but I would like to stick with groups

that are credible and adhere to SCD rules/guidelines (maybe with additions

or alterations).

Thank you for your time

Tammy SCD 6 weeks - I am not sure if it is working and am thinking I might

need to modify for yeast issues.

Re: Re: Anybody here using Dr. Amy Yasko's protocols?