Hi Everyone

[Guest guest]

Last night I posted a long note but as usual it is lost somewhere in

cyberspace. Hopefully this onw will make the trip. I am sorry that I

dont write more often but I have been having a hard time with the

weakness and pain in my hands and joints. I went to the rhuemmy last

week and he thinks the high sugars is my main problem right now. But

I think it is also from coming off the high doses of pred and then

down to nothing real fast. The cytoxan is still making my hair fall

out all over the place. Right now my throat, nose and ears are all on

fire and hurting but he wants to wait and see before putting me back

on the pred. Wait for what? Till I end back in the hospital or in ICU

again!!!!!! Oh well I dont know about all the other new ones but I

am having a hard time keeping track of who is who. I thought we were

not suppose to have any added stress! HAHAHAH I am constantly going

back looking at the pictures and trying to remember faces to names. I

could talk to each of you all day long but the typing is hard right

now. Maybe one day my mind and memory will get out of this fog and it

will be easier.

It seems like we are all going through tough times right now,either

with ourselves or family members. I want each of you to know that I

am praying for all of you and hopefully we will all see better days

ahead. I pray that God will send strength to the Arnold family as

they face the tough days ahead. My mother died at age 59 with

diabetes and heart related problems.

I know we are looking for a link that we may all have to try and

solve this disease. I have also had endometriosis and 3 miscarrages.

Both of my children were born premature. I have also had 3 back

surgeries from herniated disk and 2 years ago I had cervical disk

surgery also. I was in the hospital last year for high blood pressure

and a rapid pulse. They never could find out the cause so who knows .

Sending each of you a big hug from Texas. luv,