Re: Any siezure control stories?!

[Guest guest]

Hi Anita,

I can give you a story:

I have my 9 year old son on the SCD but without the dairy products,

in order to have it 100 % without Gluten and Casein. We have also

learned that it is very important for my son to have his daily meals

split into 4 times a day in order to have his blood-glucose as

steady as possible when his body consumes the simple carbs.

Therefore we have also learned to remove foods like Honey and to

much concentrated fruit - it gave a much to rapid rise of the blood-

glucose that clearly works as a seizure-starter for my son - NO

DOUBT ABOUT THAT !(you can find more info. regarding the " High

Glycemic foods " to avoid here: www.mendosa.com/gilists.htm )

But now we have marked them as " not legal " regarding seizures. And

now we have been on it for @ 6 months with these small adjustments -

and it is really great for my son. We are now out of any sort of

Meds and have really good seizure-control - the best we have ever

had for all these years...and he has great energy and good mood

now.

And yes we have also tried the keto-diet for a whole year with no

real success, in stead of loosing weight and energy (

Regards /

Allan (Son w/ epilepsy on the SCD for 6 month.)

>

> Hi there!

> My name is Anita and I've just started my two year old son on the

SCD

> diet. Jack has been having siezures since he was twelve months

old,

> and these have delayed his development and led to a diagnosis of

> autism as well as the epilepsy. He has failed to respond to any

> medication and a stint on the ketogenic diet also failed to have

any

> effect on his siezures. I found one testimonial on the BTVC

website of

> a similar case, which was enough to make me try the dairy free SCD

for

> Jack, but I haven't heard/found of any other cases. If anyone out

> there has experience of siezure reduction/control on the diet, I

would

> really really love to hear your story! We are only on day 2, but

I'm

> desperate for something to work for my son!

>

> Yours Hopefully

>

> Anita

>

[Guest guest]

Hi Anita,

I can give you a story:

I have my 9 year old son on the SCD but without the dairy products,

in order to have it 100 % without Gluten and Casein. We have also

learned that it is very important for my son to have his daily meals

split into 4 times a day in order to have his blood-glucose as

steady as possible when his body consumes the simple carbs.

Therefore we have also learned to remove foods like Honey and to

much concentrated fruit - it gave a much to rapid rise of the blood-

glucose that clearly works as a seizure-starter for my son - NO

DOUBT ABOUT THAT !(you can find more info. regarding the " High

Glycemic foods " to avoid here: www.mendosa.com/gilists.htm )

But now we have marked them as " not legal " regarding seizures. And

now we have been on it for @ 6 months with these small adjustments -

and it is really great for my son. We are now out of any sort of

Meds and have really good seizure-control - the best we have ever

had for all these years...and he has great energy and good mood

now.

And yes we have also tried the keto-diet for a whole year with no

real success, in stead of loosing weight and energy (

Regards /

Allan (Son w/ epilepsy on the SCD for 6 month.)

>

> Hi there!

> My name is Anita and I've just started my two year old son on the

SCD

> diet. Jack has been having siezures since he was twelve months

old,

> and these have delayed his development and led to a diagnosis of

> autism as well as the epilepsy. He has failed to respond to any

> medication and a stint on the ketogenic diet also failed to have

any

> effect on his siezures. I found one testimonial on the BTVC

website of

> a similar case, which was enough to make me try the dairy free SCD

for

> Jack, but I haven't heard/found of any other cases. If anyone out

> there has experience of siezure reduction/control on the diet, I

would

> really really love to hear your story! We are only on day 2, but

I'm

> desperate for something to work for my son!

>

> Yours Hopefully

>

> Anita

>

[Guest guest]

Hi, Anita.

We have had excellent success with SCD and seizure management. You can read

about our success over the last 2 years at messages 53948 and 25957 at

http://health.groups.yahoo.com/group/pecanbread/messages. Feel free to e-mail

off list, as well.

But briefly, Dakota is down to few seizures a week (mostly absent, simple

partial, and a few myoclonic). His responses to therapies has been amazing

since SCD. Far less sensory issues. Far fewer illnesses. Far fewer seizures.

Those murky unknown times (something going on but not sure what) are a thing of

the past. Although our doctors are not completely singing the praises of SCD

(like they should be! :-) ), they always say, " keep doing whatever you are doing

because he looks great! " No more skinny legs, pot-belly, pale, smelly little

boy. He is happy, healthy, attentive despite dealing with a host of issues. I

credit the success to SCD.

The one thing that I should mention is that Dakota's grand mals did respond

fairly well (down to several a month) to seizure meds. It was all of the other

seizures that did not, and they are being helped by SCD.

I hope you and your son find similar successes with SCD.

SCD 2 years

Mom to Dakota (8--NF, CDD, seizures) and (6--happy and healthy)

[Guest guest]

Hi Allan

Thanks for taking the time to respond to my email. How did you work out the

connection between your son's siezures and the 'illegal' foods? I'll certainly

check out that link. There's always so much research to do! How quickly did you

see a positive reaction to the diet?

I'm really pleased SCD is working for you. You did really well to stay on the

keto diet for a year! I'm afraid we didn't make it that long! Part of me was

slightly relieved when it didn't work simply because Jack was soooo miserable on

it and it was so difficult getting the calogen down him! I just hope we'll have

success with the SCD.

Here's hoping!

Thanks again

Anita

Allan wrote:

Hi Anita,

I can give you a story:

I have my 9 year old son on the SCD but without the dairy products,

in order to have it 100 % without Gluten and Casein. We have also

learned that it is very important for my son to have his daily meals

split into 4 times a day in order to have his blood-glucose as

steady as possible when his body consumes the simple carbs.

Therefore we have also learned to remove foods like Honey and to

much concentrated fruit - it gave a much to rapid rise of the blood-

glucose that clearly works as a seizure-starter for my son - NO

DOUBT ABOUT THAT !(you can find more info. regarding the " High

Glycemic foods " to avoid here: www.mendosa.com/gilists.htm )

But now we have marked them as " not legal " regarding seizures. And

now we have been on it for @ 6 months with these small adjustments -

and it is really great for my son. We are now out of any sort of

Meds and have really good seizure-control - the best we have ever

had for all these years...and he has great energy and good mood

now.

And yes we have also tried the keto-diet for a whole year with no

real success, in stead of loosing weight and energy (

Regards /

Allan (Son w/ epilepsy on the SCD for 6 month.)

>

> Hi there!

> My name is Anita and I've just started my two year old son on the

SCD

> diet. Jack has been having siezures since he was twelve months

old,

> and these have delayed his development and led to a diagnosis of

> autism as well as the epilepsy. He has failed to respond to any

> medication and a stint on the ketogenic diet also failed to have

any

> effect on his siezures. I found one testimonial on the BTVC

website of

> a similar case, which was enough to make me try the dairy free SCD

for

> Jack, but I haven't heard/found of any other cases. If anyone out

> there has experience of siezure reduction/control on the diet, I

would

> really really love to hear your story! We are only on day 2, but

I'm

> desperate for something to work for my son!

>

> Yours Hopefully

>

> Anita

>

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