Guest guest Posted March 25, 2002 Report Share Posted March 25, 2002 Sqeek Glad to hear that you are doing so well. It is about time I tell you. I am so happy for you and will keep good thoughts and prayers going your way. Hurray for Remicade! Good to hear your ear is getting better too! Take care Lots of love Glenda Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2002 Report Share Posted March 28, 2002 Sqeek, I know the feeling. I don't think I have stopped crying on and off since we lost Carol and it is even harder now with Ute's passing. Mom Jo is right, God is taking care her them now,. and he doesn't make mistakes. It is scarey for all of us. That is why supporting the Foundation and getting the money out to the drs who are doing research and getting those drs to write articles for us to take to our drs who don't know ------ about RP. I don't know much about Ute. I know she only posted a few times. Maybe Heidi wil be able to give us more information. I'm glad you are in a fighting mood. I hope your drs are co operative and will work with you. It all depends on the drs. personality on how we approch them. I have found the Some need to be handled with kid gloves and others the direct approch, some you can't convince at all. LOL Whatever it takes to get them to work with us and listen and read. It took me a long time to train my PCP. LOL But he is a good dr and I knew if I took the time he would eventually listen and he does now. Good luck Squeek and try not to worry. We can't let the stress set us all back. We must move forward for Carol and Ute and one day find the cause and CURE!! Let's do it for all we have lost. hugs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2002 Report Share Posted March 28, 2002 Sqeek, Remember I am only a phone call away! I am here if you need me! If you want I can even go with you to your Doctors. Remember there is always safety in numbers!LOL Try not to worry but just be more aware of what your doctors are doing. Know you are in my thoughts and prayers always! Lots of love Glenda Quote Link to comment Share on other sites More sharing options...
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