Re: Washington Post: What's Autism Got to Do With It?

[Guest guest]

I don't know. I hear a lot about kids not doing much w/ diet or other biomedical

stuff. Some are struggling more than they should, and for some it doesn't seem

to make a difference, as many parents report.

For us life would be just like this if we didn't do diet and other biomedical

interventions. Each parent needs to figure it out for themselves.

I admire the honesty of the writer here, and I think basically it's a more

positive take on the issue in general.

Carolyn Weissberg wrote:

I wonder if the author's son could be helped by SCD .. this is very

very

sad . .. I'm glad she's coping but . . .

_____

Washington Post: What's Autism Got to Do With It?

What's Autism Got to Do With It?

Sunday, July 30, 2006; B08

How do we make sense of the murder of Lash IV, an autistic

12-year-old from McLean, killed by his supposedly loving, well-respected

father? After living with my son Nat's severe autism for 16 years, I am no

stranger to hardship and struggle.

The lowest point in my life was when Nat attacked me at the subway station.

Though 11, he was almost as big as me, and I had my infant son in my arms,

with the stroller hanging heavily from my wrist. None of my parent training

would have prepared me for that moment of sweaty panic as I struggled to

slip the stroller off my arm, hold on tightly to the baby, and fend off

Nat's clawing hands.

I remember the agonizing thoughts running through my brain. This was the

most severe of many such episodes in the preceding few months. I felt myself

going to a dark place in my mind, down that " what if . . . ? " path. Life

would be so much easier had he not been born or if he were. . . .

That evening, I cried as we began to make arrangements to put Nat in a

residential placement. My sadness collided with my guilty relief, as I

dared, at last, to imagine our life without Nat: travel, going to parties

easily, visiting other families.

In the end, I just couldn't send him away. As hard as things were, it just

did not feel right. And so we hung on; we got through it, with calls to

supportive family, new medications and the healing passage of time.

The thing I know now, that I did not know then, is that many parents with or

without disabled children have similar devastating moments, filled with

terrible wishes. Autism does not make my family unique or its circumstances

more tragic than those of any other family. That is what makes the stories

about Lash, and DeGroot and McCarron, all the more

horrifying. These children were killed by their parents, and the way the

stories read, presumably because of their autism.

Like those parents, I have seen some pretty dark days because of autism. But

I have also known some of my brightest moments because of my autistic son.

Understanding Nat and autism have certainly been difficult, excruciating at

times, but by now, so have certain other challenges life has thrown my way.

No question, dealing with autism without understanding it is difficult. But

murdering because of it? Unfathomable and inexcusable. We all have our own

sack of troubles, as my great grandmother, a pogrom survivor, used to say.

And to paraphrase another survivor, Tina : What's autism got to do

with it?

-- Senator

Brookline, Mass.