Guest guest Posted April 3, 2002 Report Share Posted April 3, 2002 Dagny, Thanks so much for the info on the biopsy. Did they ever discover why you were losing your vision? Did it return after you went on the 60mg. of Pred? I go back to the Cleve. Clinic on Monday to see another eye specialist. Hugs, Sandy Dear Sandy: I have had a biopsy for TA, and it proved negative. I was told later that they should do more than one to be a really definitive diagnosis though, and they only did one on me. I had started losing my vision and it was the ophthalmalogist who BLEW UP at the doctor I was going to as he was only giving me some cream to put on my ear! He insisted that I be put immediately on 60 mg prednisone. Which I did, and then when we returned to Seattle for the summer I went to my old internist at Virginia Mason who immediately diagnosed me as having RP. He put me back on 60 mg as I had flown back east with my husband when our son was in a terrible car accident and had forgotten to take my pred with. Big mistake. I was told that one should never ever go off pred cold turkey like that. We worked my pred down to 4 mg, but it took a year to do it. Then after my husband died, the stress threw me back into flaring again, and the rest is just history. Temporal arteritis is a very serious problem and needs to be treated quickly with prednisone. The surgeon shaved a small patch of hair in my right temple and I was sedated enough not to care what he did. The incision was cut into the hair line and was cosmetically unnoticeable. This is probably more info than you wanted, but it's one of the rare occassions when I'm willing to write it down!! I shall say a little prayer that you remain under superb care and get the problem under control. Love, DagnyP.S. , someday when I'm in the proper mood I shall add my long story to all the others about the experiences I had getting good care.: When is your next appointment with Dr. Buckner? Mine will be 9:oo am Tuesday, May 28. I'm sorry your trip to Hawaii was dampened, but glad you found some relaxation.__________________________________________________________________Your favorite stores, helpful shopping tools and great gift ideas. Experience the convenience of buying online with Shop@Netscape! http://shopnow.netscape.com/Get your own FREE, personal Netscape Mail account today at http://webmail.netscape.com/DISCLAIMER!!WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2002 Report Share Posted April 3, 2002 In a message dated 4/3/02 2:44:28 PM Pacific Standard Time, biglou5685@... writes: << y eye trouble started 4 days after I went down to 15mg of Pred. That morning I got the most eye pain and pain in my temple that I could not stand it. Then I noticed I lost my central vision. It still has not come back. My doc had me go back up to 20mg. but still have no central vision. >> Sandy, I hope you are on enough pred. please don't let this go too far. Know that you are in my thoughts and prayers always. Please take care. I love you bunches hugs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2002 Report Share Posted April 3, 2002 Sandy, the only thing I know is that when I started taking 60 mg of prednisone my vision started to improve. The test was negative and the ophthalmalogist in Seattle didn't see me until I had been on high doses of pred for about a month. Beats me if I understand what happened and I really don't think they did either. I had been having a fierce time with left eye flares off and on for a long time (years) prior to all that and thought it was just a problem of being low on vitamins. And then it hit my left ear and the pain was so bad I couldn't sleep on my left side and my right temple was so painful I couldn't sleep on my right side and my vision started getting worse. I even eventually wound up with a neurologist who was on the faculty of the Nevada med scool in Reno and he thought I was nuts and essentially a hypochondriac! I can laugh about this now, but it sure wasn't funny at the time. __________________________________________________________________ Your favorite stores, helpful shopping tools and great gift ideas. Experience the convenience of buying online with Shop@Netscape! http://shopnow.netscape.com/ Get your own FREE, personal Netscape Mail account today at http://webmail.netscape.com/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2002 Report Share Posted April 3, 2002 Dagny, I hope your not seeing that Neurologist anymore. LOL Don't you just hate it when docs treat you like some kind of nut case! My eye trouble started 4 days after I went down to 15mg of Pred. That morning I got the most eye pain and pain in my temple that I could not stand it. Then I noticed I lost my central vision. It still has not come back. My doc had me go back up to 20mg. but still have no central vision. Hugs, Sandy Sandy, the only thing I know is that when I started taking 60 mg of prednisone my vision started to improve. The test was negative and the ophthalmalogist in Seattle didn't see me until I had been on high doses of pred for about a month. Beats me if I understand what happened and I really don't think they did either. I had been having a fierce time with left eye flares off and on for a long time (years) prior to all that and thought it was just a problem of being low on vitamins. And then it hit my left ear and the pain was so bad I couldn't sleep on my left side and my right temple was so painful I couldn't sleep on my right side and my vision started getting worse. I even eventually wound up with a neurologist who was on the faculty of the Nevada med scool in Reno and he thought I was nuts and essentially a hypochondriac! I can laugh about this now, but it sure wasn't funny at the time. __________________________________________________________________Your favorite stores, helpful shopping tools and great gift ideas. Experience the convenience of buying online with Shop@Netscape! http://shopnow.netscape.com/Get your own FREE, personal Netscape Mail account today at http://webmail.netscape.com/DISCLAIMER!!WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU Quote Link to comment Share on other sites More sharing options...
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